Courageous Stories

IBS in real life

Share your experience of living with irritable bowel syndrome (IBS) – it can be therapeutic for you as well as others who suffer. Share your story.

College life

Many college-age students have written us about how disruptive to college life it is to suffer from a functional GI disorder. But some people find clever ways to manage their disorder and still enjoy and excel at school. If you are a college student with a functional GI disorder, we'd love to hear from you. Tell us what special strategies or tips have helped you:

• How do you talk to dorm or roommates about your bathroom needs?

• How do you talk to professors when your disorder makes you miss a class or test?

• What's the best way to organize your morning, to help you get to class on time?

• What tricks allow you to juggle classes on different parts of campus?

• How can you participate in social activities while still avoiding triggers that can cause a flare-up?

Share your tips with us now!

I'm 22 and trying to finish up college. I was diagnosed with IBS a few months ago when I was finally fed up with it and went to the doctor. I was looking forward to a solution: a simple medication and it would go away... but it doesn't seem like that happens. My doctor prescribed an antispasmodic but it only seems to delay problems for a few days. Your stories have made me more wary as it's becoming more evident this really never ends.

I can relate to many of your college stories. I used to enjoy going to the bar with friends. I've tried to continue going. I hold a beer in my hand or get a Coke and tell people it's Coke and Rum. It's quickly become unappealing staying out late and watching others get drunk. I try to at least make an appearance and be ‘social’ but it's hard when friends pressure you to take shots. I haven't figured out how to fake that one yet.

My memory has been decreasing fast. It takes me a few minutes to recall a week ago, and 3 weeks... Forget it! Concentrating and memorizing course work is way more difficult than it should be. Does anyone else have these problems? I looked at symptoms lists and don’t find memory loss related to IBS.

I’ve lost weight and look anorexic. We had a close family death over a year ago and I dread people thinking I now have an eating disorder as result.

I wish IBS had another name, such as Constant Stomach Conditions. It's not an easy name to bring up and I've only told one person that's what I have. I'm pretty sure my boyfriend questions me when I say I'm not feeling well. His mom complains about her back a lot and overemphasizes that it prevents her from doing things, so it's easy to see how he relates my complaints to hers. I don't really tell him about it anymore. Everyday is just fine as far as he knows, because he doesn't get it.

Does all this get better at all?

– Name withheld by request
^{May 6, 2008} 

[Editor’s note: While not diagnostic symptoms of IBS, other non-GI symptoms are sometimes reported by IBS sufferers. Examples include difficulty concentrating, sleep disturbances, muscle pain, or fatigue. Unexplained weight loss is not a symptom of IBS and may signal something else. But if eating seems to aggravate symptoms, altering eating habits in response may explain weight change. Many factors contribute to IBS symptoms, and vary from person to person. It takes time to sort this all out and a physician should help. If symptoms persist after initial treatment, let you doctor know. Visit our web page for help about ways to work with your doctor.] 

I'm 18 and I'm a male. I'm about to head off to college, and honestly, I'm scared sh*tless. I haven't told my friends about my IBS, because I know they won't understand. I'm nervous about going to college, because I know most people just eat junk food and drink. I am going to try to get medication and see a doctor before I leave for college. I don't have a bad case of IBS, but I always have to watch what I eat and keep an eye on the closest bathroom.

– Name withheld by request
^{April 24, 2008}

I've had IBS for few years now and I'll be 19 this month. At first I didn’t know if my stomach problems were normal or not, but after how consistent it was I knew something was off. After I eat I have to go to the bathroom and if I don’t it can get painful. I would be sitting in class and my stomach would hurt and make noises, which is embarrassing when you are in a quiet room with lots of people around.

I finally went to the doctor who diagnosed IBS based on my symptoms. He prescribed a medication, which doesn’t seem to fully work. My boyfriend knows about it and sometimes gets mad when he wants to hang out with friends and I don’t because my stomach’s bothering me. I wish he understood what it’s really like. I even didn’t want to go back to school after I graduated from high school because of my IBS. But I decided that IBS wasn’t going to stop me from having a future. So I just started school and I’m going to try to get through it day by day.

– April
^{April 17, 2008}

I am so happy to have come across all of these people who decided to share their stories. I have had IBS since I was in 7th or 8th grade and now I am going into my third year of college. It has been and will continue to be quite a ride to live with these symptoms and it can get very lonely. I can not have gluten or dairy, don't digest meats well, can't drink alcohol and whenever that comes up with people (for example going out for lunch or dinner or getting a drink on my 21st birthday) I can tell that everyone looks at me and thinks of me very differently. And it is just like everyone has been saying; people think it is all in my head and I am dramatizing it. My friend's brother told me that it was ‘all in my head’ and I felt like I had some mental problem on top of that! But I know I don't and what we all have is so difficult to live with.

Someone said something about being afraid to tell a boyfriend I think and I totally get that! For me, it is embarrassing to even think about telling a guy that I have IBS when he asks me out for dinner and I can not go. It sounds like the biggest turn off. It can be for me anyway a very lonely and painful experience that seems to have no end. Although I am sorry that all of us have to deal with this, I am happy that there is a place where I can feel like I am not the only one.

– Katie
^{April 8, 2008}

I was diagnosed with IBS when I was 15. I am now 22 and the symptoms have gotten worse, but I have become used to them so it doesn't seem as bad.

It is difficult to be a college student and now trying to enter the work world when I have to make presentations and have interviews. I have to think about if there's a bathroom nearby and if I should go out with my friends or not when I'm not feeling well just in case I have an ‘episode.’ I usually have an episode once a month or so, which isn't too bad compared to other stories I have heard. Each time I have one I spend the entire night in the bathroom, usually doubled over in pain waiting for the awful spasms and diarrhea to stop. For the next week I'm usually a bit afraid to eat anything that might trigger it again, and mainly eat toast.

Thankfully my friends and family are very supportive, even though they don't always understand what I'm going through.

– Name withheld by request
^{February 4, 2008}

I've been a sufferer of IBS since I was 16, ever since then I had a number of doctors telling me I was faking and that the pain was all in my head or that I was stressed. Really the only thing I was stressed about was the pain I was in and couldn't understand why! I underwent a lot of scans, scopes and prodding, and my appendix was taken out for no reason, and all because of my IBS.

I was properly diagnosed when I was 18 and then I was told everything I couldn't eat such as wheat and dairy. However even though I've been given all the medication to help deal with my IBS. I still go through bad phases when I could be bent double over in pain for a week and I miss everything and become so bloated I look pregnant. When I get this pain I'm able to deal with my regular daily pain a lot more because it doesn't seem as bad anymore . I realized that I have to do my daily routine with this pain because then when it gets really bad I can’t do anything.

I am now 20 and in my 3rd year of college. I have missed a lot of college social events due to my IBS. The worst thing is when I buy a ticket to the social and am not able to go, that is when I get the most depressed because I miss out. Even though my friends are really good about my IBS and look after me when I'm in pain, I always feel they think I'm being dramatic with the pain and sometimes that I'm faking. It is also embarrassing when people ask what’s wrong with you and when they hear the word bowel syndrome all they can think about is toilet matters – and because I'm a girl I feel this has turned a lot of guys off me.

I'm so happy I came upon this website it really helped reading everyone’s story.

– Name withheld by request
^{January 20, 2008}

Hi, I was diagnosed with IBS a year ago. My story started when I started attending university, there were days where I had to go to the bathroom 5-6 times a day on campus. It affected my social life in college both because I had to skip classes, and because I had to reject offers to go out with friends. The most disturbing moments are when I am in class and my stomach starts to rumble loudly, and I get the urge to leave the class and head to the toilet. Unfortunately, the medication has been no help, but over time I have come to control some of my symptoms. Hopefully, this nightmare will stop someday and my life will return back to normal.

– Name withheld by request
^{November 9, 2007}

I'm twenty years old and have been suffering with symptoms of IBS. Last night I had an accident. It was in the toilets of my Student Union. Unfortunately all the other toilets were blocked, so everyone was queuing to get in. I was so embarrassed and did not know what to do. People were trying to get in, and complaining about the smell… all I could do was sit tight hoping I could soon leave unannounced and clean myself up. The risk of things like this happening scares me, and I started to become afraid to eat. I don't even like leaving the house anymore just in case I get ill.

My friends don't know the extent of my embarrassing problem, and I don't feel I can fully share my experiences with anyone, which is getting me down. So many times I have to decline invitations to hang out because I’m in pain and worried about when I’ll next have to use the toilet; or my friends will be going to lunch somewhere I can't eat so I’ll decline. When I’ve said there's no point in going because I’m not going to eat, my usual excuse, they say come anyway. But the thing people don't understand is, that if I was to go a) how fun is it sitting watching people eat foods you want to but can't? and b) if I did decide to ignore my problems and eat anyway I’d spend the whole time worrying about getting a reaction, which just upsets me and makes me not enjoy being out with my friends.

It's so hard being at university where everything is geared towards drinking and socializing as I often don't feel able because of stomach cramps, or the fear of not being anywhere near a toilet. It's really getting me down, and I don't know what to do about it.

I'm due to have an ultra-scan and a test done so I can hopefully be diagnosed, but I’m so, so scared. I feel there's no one to share my fears with because no one fully understands. I hate it so much. Why can't I be normal like everyone else?

– Name withheld by request
^{October 27, 2007}

 

The need for understanding

Richard Feynman, a Nobel Prize winning physicist and educator once said, “I learned very early the difference between knowing the name of something and knowing something.”  A 2004 national survey conducted by IFFGD found that of those who had heard of “irritable bowel syndrome” only 17% indicated they understood what it means. Despite a dramatic increase over the past decade of scientific knowledge about IBS, many people struggle to find adequate care. Mistaken notions continue, some perpetuated when overlooking how painful the disorder can be.  

I never realized how many people suffer from IBS, and how it affects everyone in different ways. I am an IBS sufferer and I am finding it hard to cope with it at the moment, but having just read your stories I feel I'm not along in this IBS world. Apart from the pain and diarrhea which I suffer from I am also starting to get anxiety and depression. Until I came on this site I never realized that this can be part of IBS as well. Family and friends never seem to realize how much this is affecting me and they say, pull yourself together, you'll be ok in a few days, which is not what I want to hear. I would like to thank all you sufferers for putting your stories on here as I feel this has helped me today and I'm not alone. Here's to the future!

– Name withheld by request
^{May 4, 2008} 

I was diagnosed with IBS about two years ago. I have tried numerous types of medication from antispasmodics to steroids. . I'm on a constant prescription for percocet (oxycodone and acetaminophen) because the pain I experience is so bad. I am in and out of doctors' offices and hospitals trying to search for new alternative treatments but not having any luck. I've been told that it 'Was all in my head' or if I 'Just didn't think about it that it would go away.'

You can’t explain IBS unless you have it yourself. I have some advice to give people reading my story... Don't worry what anyone else thinks and/or says.. Best of wishes to all!

– Bobby
^{April 27, 2008}

[Editor's Note: Narcotics, such as oxycodone, should not be used to treat IBS, though this may at times be done. We are learning that under some circumstances, the use of narcotics can actually cause pain. Narcotics also cause changes in bowel function, which may worsen the other symptoms of IBS. It is advisable that narcotics users work with their physicians to taper off of the narcotics before long-term damage is done. Find out more on this topic.  Go »]

I was just reading all of the stories people have written. What a relief to know there are others out there that understand what I go through. I’m 31 and have had problems with my stomach since I was 14. I have been to numerous doctors and specialists and got no answers until recently.  

When my problems began I was told I would need to have my appendix taken out. Luckily my dad took me home and told the doctor that would not be happening at this time and the next day I felt better. So from there it was lots of speculation by doctors I had seen until about 3 years ago, when I met my current doctor. He diagnosed IBS and his nurse also has IBS, so she is someone I can talk to and trust. What a relief this has been.

I have been coping, but lately have found that my boss and family members are having a hard time understanding what I am going through. They like to tell me that it’s ‘all in my head,’ which does anger me. I would never wish IBS on anybody, but would like for them to step into my shoes for one day and then maybe they would understand what I go through. I have now chosen to go to a psychologist and to a nutritionist. At this point I am up for what ever it takes to cope and deal with my problem.

– Name withheld by request
^{April 16, 2008}

I was diagnosed as having IBS 3 years ago. Living in Japan it is very hard as I don't understand the language that well and struggle with doctors who don't really seem to care. It's good to get on a site and understand that I'm not alone. I guess we can all see that feeling alone is the hardest part to deal with. People invite me out and I am afraid to leave the house these days. I've even taken to carrying a bag of spare clothes and toilet paper just in case. I've never needed it yet but I guess the fear is what stops me from truly living life – when you go to the toilet 7 times a day and your friends lack understanding, when you have to get off a train halfway to your destination to find a bathroom, when you worry maybe the doctors were wrong and you should go back in the hope that it is something with an easy cure. To me no one seems to understand these problems and although I feel for everyone on here I am glad that I am not alone. Be sure to remember that neither are you.

– Name withheld by request
^{April 16, 2008}

'It's all in your head.' 'You're just stressed, that's what your problem is.' 'Just relax, you're too high-strung.' …Just a few of the many expressions of disbelief and/or misunderstanding of others to a condition that I have battled the entire 26 years of my life.

I have never been able to eat out at restaurant, or a picnic, anywhere that did not have a bathroom readily available. I have never been able to walk out the front door of my house without having taken anti-diarrheals an hour in advance . . . and continue to take it throughout the rest of the day. Or I will regret it. I would watch people walking down the street on a hot summer day, eating ice cream without a care in the world. I was so envious of them at first, why couldn't I do that? My parents couldn't answer that, neither could my doctor at the time, nor any of them that came later.

As a child I could not seem to get anyone to understand that I really did always need the Kaopectate or Imodium, even worse, I was even accused of demanding these drugs to gain attention for myself. I was a child, I knew something was wrong, but no one else believed me. I was ashamed, and then I started getting ridiculed by the other children after the first accident. The name-calling still didn't hurt as much as no one believing me. So I stopped talking about it, and thought through every possible way I could learn to live with this and still appear like a normal girl.

After a lot of thought and tears, it seemed to me at the time that I had one option, if I was planning to go to school normally and not humiliate myself with the inevitable accidents. I learned to fear eating. I figured, if there was nothing there, I wouldn't have the problems. I could eat at night, once I got home and purge whatever was left in the morning before getting dressed for school. Seemed pretty simple, I thought it would work out great. I was wrong.

Four years later, I was first treated for anorexia at eleven after a teacher noticed that my ribs were protruding and called an intervention with the school guidance counselor and my parents. They all seemed to believe that I had a self-image problem and was starving myself to be thin. They were wrong. The truth in my case was remarkably simple. Fear was the ultimate appetite suppressant, and potential humiliation was a good motivator. But I couldn't tell them; that would have required telling people about my condition. No one had believed it before, why would they now?

I let them believe that I had a self-image problem, took subsequently prescribed anti-depressants, went to a psychiatrist and lived the lie rather than admit the truth. Instead of continuing the search for the source and a solution to my problem, I constructed my entire life around hiding it by:1) Always having a spare change of clothes, 2) Always carring at least enough cash to buy a soda to get past the 'Bathroom is for Customers Only' situation, 3) Not eating in public unless I had already taken Imodium and given it time to take effect, and taking it immediately after eating too. I had no other options, experience had taught me pretty early on.

If I was caught again starving myself, I could be forced into hospitalization for being a danger to myself and tube-fed. I chose that over admitting to my condition. It just got harder to hide as I got older, but boy, did I try. Especially when I started dating. Spontaneity does not exist in my world; it can't when you HAVE to take a mouthful of Imodium, and give it time to work, just to get out the front door. No surprise romantic dinners, or road trips, or long walks. In order for any of that to happen, I had to plan it to death.

At first, I would try my best to hide my problems with the ever-polite 'sick to my stomach', but as anyone who has spent time with me becomes painfully aware, there was going to be that instance driving down the road when I’d scream, 'Pull over!' They never seemed to understand that once I got to the screaming point, I didn't have time for the next exit or gas station. It made for lots of awkward if not completely humiliating experiences.

Years later as an adult, I found out that my mother has the identical condition. Her shame kept her from even telling me. She and I both suffered in silence for twenty years. We began to research our mutual problem, started going back to doctors. Many doctors again telling us it was stress, or the food we ate. I was even told by one to stop drinking tap water! They gave us anti-depressants, they didn't work. Changed our diets, that didn't work either. Homeopathic remedies, spiritual healings, I have done it all.

I doubt that there is a single 'cure' for this, and I am fairly sure that I will live with this for the rest of my life. But I will not be ashamed anymore. This condition has ruled me for as long as I can remember, and I want my life back. The ones who love me understand the pain I face every day, and give me the strength to fight on. My wish is that there will be a day when everyone can see this disease for what it is, and those that still suffer in silence can receive treatment in comfort and dignity.

– Name withheld by request
^{March 9, 2008}

Ever since my first day of college, 10 years ago, I have been suffering from IBS. Every day I would get in my car, take the 20 minute drive, and half way there I would have to blast the air conditioner and go through the worst pain before I could park my car and walk a half a mile to the nearest bathroom. This happened everyday.

The worst experience I had was a couple months ago. I went to the gym with my boyfriend and 2 minutes after we started working out my stomach started cramping and I knew I had to get out of there. I thought I could make it home, which was 15 minutes away, but that was not the case. After getting into my car I realized there was no way I was going to make it – half way home I had to pull over to the side of the road and run into the woods. I was so embarrassed that my boyfriend had to be there for that, but at least now he somewhat understands what I am going through and does not think it's all in my head. He actually apologized. Now I am terrified to go the gym because I fear that it will happen again.

I feel better now . . . I finally got that off my chest. What makes me feel better is that you will understand my pain.

– Name withheld by request
^{March 11, 2008}

My 'stomach problems' started after a trip to India 9 years ago, I was slightly ill on the trip back but didn’t think anything of it 6 months after returning home I was still having diarrhea up to 9 times a day with bloating stomach cramps, extreme tiredness and feeling generally run down. To cut a long story short I have had all the tests and eventually been told that I have IBS. Its been a long and extremely hard journey but life is better,. The hardest thing is that other people who don’t have IBS can never understand what its like – even the closet friends get fed up with you always needing toilet stops or stressing about new places. I have to be careful not to let food and bowels run my life but you can find a way to live with IBS.

– Emma
^{November 26, 2007} 

I have had IBS for over 20 years. I have tried dietary changes and medications for diarrhea, gas, and cramping. Nothing has helped, except eating nothing but toast, and that’s not a workable option. Unless they experience this condition, it seems there is no way for others – doctor, relative, or friend – to fully comprehend the misery that you go through. I always think that I want to ask everyone, ‘How would you feel if you felt like you had a stomach virus every day for 20 years, and that your bowels act as if you’d taken a laxatives so that you live on the toilet bowl. Or if you had no social life, no job that you really want but had to work at anyway. Or if you had to wake up several hours ahead of work time to try to have all the intestinal stress over before you walk out the door, and all the while have everyone expect you to carry on as usual.’

Can anyone possibly comprehend this if they have not experienced it? Not in my experience. I watch people at work eat breakfast, then lunch, then snack, and I think, ‘Wow, how do they do that?’ Then I realize how people take for granted the simple fact of eating and eliminating without even a thought.

– Name withheld by request
^{October 20, 2007} 

I’m an IBS patient that has struggled daily with a very painful and real disease that can occur at any given moment without warning. Ever since I can remember, I’ve had the classic symptoms, but for years never knew why, or understood that I did indeed have a very debilitating disease.

Even though I struggled with painful ‘attacks,’ I tried to ignore what my body was dealing with or telling me, even when I was at work or social gatherings. Unfortunately, as time went on, the symptoms seemed to become worse, until I could no longer carry on in this manner and my body eventually had broken down.

I had my dream career as a law enforcement officer and had to leave it all behind due to the persistent problems with my illness. You see, wearing a duty belt and bulletproof vest on a daily basis, including grueling shift changes, can be very painful for an IBS sufferer. No amount of pain medicine could relieve my symptoms and allow me to function, as needed. Let alone, running to the bathroom every five minutes, when after-all, I had a very serious important job to do, and time was of the essences when dealing with emergency responses as a patrol officer. Even court dates were a huge issue and eventually I had missed too many days of work, to continue my career.

Years later and after many tests, emergency, and doctor visits, gallbladder and ovarian surgeries, I was finally diagnosed. I later had a complete hysterectomy due to complications with my IBS ‘flair-ups,’ along with other ovarian problems, to try to help relieve some of the discomfort associated with being a woman and dealing with the disease. Unfortunately, it didn’t take the disease away or the symptoms.

I think I’ve tried every diet plan known to man and every advice given by my doctors at one time or another and the problems still persist. In fact, recently, I’ve been suffering for two weeks straight with another long bout of pain and complications. Furthermore, I’ve tried anti-depressants (even though I’m totally against them and not depressed), prescribed medications including tegaserod, additional fiber treatments (that can lead to bloating, gas, pain and other problems), and to no avail; problems continue with new added side effects from the drugs. Some of the symptoms that are relieved briefly and will always return with usually worse problems in the end. This in turn, usually requires higher dosages, additional and/or different medications. Unfortunately, no amount of medicine or diet plan seems to truly alleviate the problems.

Even if as I try to help relieve the symptoms from another daily attack with the knowledge I’ve gained dealing with the disease, I really can’t make it go away. It always returns at a moments notice! There’s no cure or hope to live a normal life, like other people can, knowing that it can occur at any time. This disease is so disabling to those like me that can’t even keep a job, no matter what type it is. I’ve tried several, including working in the home, over the years, since I had to leave the department with no compensation. We can’t claim disabilities, or receive proper medical care, because the government doesn’t recognize it to the standards of other diseases and disorders. So what is a person like me, to do – remain unemployed and feel helpless, knowing that I cannot continue to do a fulfilling and rewarding job that I once enjoyed?

My social and professional life is not as fulfilling as I would like it to be, no matter how hard I try. Those of us that have IBS are not the only one’s that suffer. Family and friends also have to deal with the issues that I deal with on a daily basis. That in itself, is very difficult, especially when they don’t understand this disease or believe it to be serious, because after-all it’s not ‘officially’ serious in other people’s eyes. How would you feel as a law enforcement officer being told by a doctor that you were not right in your head and that’s why you're imagining your pain and suffering? And I know for a fact, that I’m not the only one being told this by medical professionals. For those family members that do see you in actual severe physical pain, they feel helpless and concerned for your welfare, since there’s no relief or cure for you until it passes on it’s own, whenever that is. Then it returns and starts the whole process all over again.

Until you have a loved one, or personally go through the same that many of us have, you cannot even begin to understand this life-long debilitating disease. The seriousness, hurt, frustration, embarrassment, disappointment, extreme pain, loss of a normal life/career, and complete suffering of the symptoms from IBS that inflicts people on a daily basis. Please give this medical problem the same fairness of treatment, research, funding, understanding, and respect that other diseases already have.

Thank you for listening and giving me the opportunity to express my thoughts.

– Name withheld by request
^{September 24, 2007} 

[Editor's note: Surgery is not a treatment for IBS. Yet IBS patients are exposed to more surgical procedures than the general population. Find out more here.]

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Self-diagnosis

There is an excess of health-related information available on the Internet. Some is downright wrong. But even accurate information can be subject to interpretation and wrong conclusions can be drawn. Never self-diagnose an illness that may be as serious and life-altering as IBS. Not only might your self-diagnosis be wrong, but other diseases can co-exist with IBS that a doctor can identify. If you suspect you have IBS, see a doctor. Try not to feel embarrassed – bowel symptoms are among the most common that doctors see. There are strategies for managing IBS that may improve your symptoms and help you feel better. Start with an accurate diagnosis; work with a knowledgeable doctor who listens and cares about your concerns, and who works with you to help find a treatment plan aimed at your needs. For more guidance, see Fact Sheet #185, Talking to Your Doctor About IBS.

I have suffered with undiagnosed gastrointestinal and bowel problems for 31 years. It impacted everything I did and greatly affected my years as a young adult. I finally decided that I would seriously try to uncover the problem because no one else seemed to be able to do that for me. I took margarine (not butter) totally out of my diet for about ten days. I also had myself on a very restrictive diet. As I added back food I noticed that as long as I stayed away from margarine, I had great improvement in my digestive tract. I would say that I feel 75% to 80% better. I don't use margarine at all now. I also avoid using corn oil and those of "lesser" quality. I do use butter, but I'm careful to not have too much. Because I don't use margarine and the "lesser" forms of oil at home, my system can handle the products I consume outside the home. I was truly amazed that eliminating margarine, corn oil, etc. from my diet would have this impact on me. I guess that I'm either allergic to those foods or I have an intolerance for them. Hope this helps someone.

[Editor's Note: Fatty foods take longer to leave the stomach than other foods. Meals that are too large or high in fat may provoke symptoms of abdominal cramps and diarrhea, and IBS sufferers do often find that reducing fats in the diet may help with symptoms. However, other disorders can also cause difficulty digesting fats, including liver disease and gallbladder disease. You should always consult with your doctor when making dietary changes.]

– Name withheld by request
^{February 2, 2008}

For about 2 years now, I have suspected that I have IBS. I have not seen a doctor. It's too humiliating. After reading the stories others here have shared, I think my suspicions may be confirmed. I'm at the end of my rope. I am 47 years old and enjoy an active life . . . or want to but can't because of IBS. I've changed eating habits, tried to pinpoint what foods cause my flareups and nothing helps. I'm about ready to stop eating altogether. I'm tired of the embarassment, the rush to the bathroom only to make it part of the time. I'm supposed to take a vacation come December and I'm thinking of how I'm going to do this. I guess I'll pack an antidiarrheal to take throughout the day. There are no public laundry facilities and I'm not going to take any chances. My intestines are always sore and I'm always tired. I salute those here who have learned to live with this dreadful beast. I wish I had your courage.

– Name withheld by request
^{August 18, 2007}

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Stress

It is helpful to understand stress in IBS as a disturbance in the body – not as a psychological event. The factors that produce stress can be physical, biological, environmental, or psychological. Any of these can activate the central stress system in a person. The central stress system involves the release of chemicals in the brain (such as CRF, corticotropin releasing factor), which in turn affect a biological response that alters the way the brain and the gut interact. This altered brain-gut interaction can result in worsening of IBS symptoms. A viscous cycle can be triggered; pain and discomfort may lead to fear of symptoms, which then activate a stress response that alters brain-gut interactions, which may lead again to pain and discomfort. When this is happening, breaking the cycle can help relieve symptoms.

Thank you to everyone who has shared their stories! The parallels, such as doctors' responses, food triggers, social situations, etc., are amazing. I am a 39 year old female who was diagnosed with IBS when I was in college. However, I think I have had it most of my life.

When Zelnorm® came out, I found relief through that. However, it was not perfect. I still got flare-ups, especially around menstruation. I did a little research on myself and discovered that when there is a change in my hormones during menstruation or around ovulation, my IBS acts up. About a year ago, I ended up in the emergency room due to severe pain. The only thing the doctor did was prescribe a painkiller. The interesting fact was that the painkiller could upset the stomach. Therefore, I chose not to take it. I let the pain subside naturally. After that incident, I told myself that I had enough. I would continue research on my own.

I am not a doctor, but I understand that there is a relationship between the central nervous system, serotonin and hormones. I decided to try an alternative/complimentary method to relieve pressure on the nervous system. This and stomach/back exercises have helped greatly. I am not 100% and still have flare-ups periodically, but at least I can write that flare-ups are occasional now and the pain is more tolerable. I am no longer on the Zelnorm, since that was recalled, but I don't feel that I need it regularly anymore either.

– Name withheld by request
^{January 2, 2008}

I am 32 yrs. old and have been living with IBS since I was in high school. I did not know I had IBS until I was 23. Every time I ate, my stomach would just balloon and my clothes fit extremely tight. I worked in an office environment where if I had to use the bathroom I would have to hold it. That would just worsen my situation because then I would be full of gas and sometimes my stomach would make huge noises. It was horrible!

Once I was diagnosed I learned to deal with my IBS. Now my IBS triggers when I am in stressful situations. For example, when I was in college and I had an exam the next day I would try not to eat so my stomach would not act up, and during class I would snack on crackers so my stomach would not growl. IBS takes over your life. It is such a frustrating illness.

Knowing where a bathroom is located is key to me. I will be starting a new job soon and I almost did not take it because it only has two bathroom stalls. I also almost did not take the job because the office is so quiet that I would not want my stomach to act up and my co-workers hear my insides. I just want to say to everyone with the problem that it is good that we are not alone. 

– Name withheld by request
^{January 2, 2008}  

 

Control

Managing IBS and other bowel disorders often means confronting issues of uncertainty, loss, and control. While you may not always be able to control your symptoms, you may find ways to control how you manage them.

I've found everyone's stories really helpful and can relate so much to them – I often feel quite alone! I was diagnosed with IBS in 1993 and today, at 40, continue to live with the symptoms and periods of debilitating 'attacks.' I gave up on medical intervention shortly after my official diagnosis as I found it quite traumatic dealing with tests and unsympathetic doctors. I try to manage my symptoms as best I can.

Like others, my symptoms are more acute just before and during my period. Diet-wise I find it's helpful to try to avoid wheat and don't touch dairy (am lactose intolerant) and am also starting to think gluten can be a trigger. Overeating is the biggest no-no. Like others I've also been quite slim/thin all my life because of my 'fear' of food and have often been plagued by rumors/gossip about eating disorders or else tolerated well meaning people complimenting me on my figure whilst I jealously watch them tucking into a delicious meal!

As I have aged I've found bloating/flatulence is becoming more troublesome. Stress/anxiety are also major triggers for 'attacks' for me. Regular gentle exercise really helps me and so does meditation and deep breathing. When I'm physically fit I'm much better but I'm scared of too much exercise as it causes attacks.

During an attack, which usually occurs around 2 or 3 am and lasts until dawn, I will take a hot shower or bath, then lie with a hot water bottle and take tiny sips of lukewarm water. I also try to mentally focus on relaxing into the pain rather than flinching from it and repeat to myself 'the pain will pass' 'it'll be ok' and other positive comforting things. Peppermint oil seems to help me and gentle painkillers are also helpful. The aftermath of serious bouts feels to me like recovering from being kicked in the stomach by horse! I disguise my illness at work (and frequent bathroom usage) but can't avoid taking quite a few sick days. I'm optimistic that one day IBS will be curable and wish everyone the best in learning to manage their individual symptoms and the strength to endure them.

– Sue
^{May 4, 2008} 

I was diagnosed as having IBS 3 years ago. Living in Japan it is very hard as I don't understand the language that well and struggle with doctors who don't really seem to care. It's good to get on a site and understand that I'm not alone. I guess we can all see that feeling alone is the hardest part to deal with. People invite me out and I am afraid to leave the house these days. I’ve even taken to carrying a bag of spare clothes and toilet paper just in case. I’ve never needed it yet but I guess the fear is what stops me from truly living life – when you go to the toilet 7 times a day and your friends lack understanding, when you have to get off a train halfway to your destination to find a bathroom, when you worry maybe the doctors were wrong and you should go back in the hope that it is something with an easy cure. To me no one seems to understand these problems and although I feel for everyone on here I am glad that I am not alone. Be sure to remember that neither are you.

– Name withheld by request
^{April 16, 2008}

I am 47 years old and probably started having symptoms while in high school. From time to time I had ‘upset stomach’ episodes but they were irregular and I didn't really pay attention to them. One day, I went out to dinner with my husband and friends at a restaurant and had my first ‘public’ episode of IBS. It was so severe I was bleeding and it frightened me so much I went to the ER. Doctors couldn't figure out what was going on but I followed up with my own doctor who ordered a colonoscopy. Results: all clear. Diagnosis was ‘probable IBS’. I was told to increase my fiber and reduce stress.

I did what I could but from then on I had episodes and could not pin down the causes. Now, about 7 years later, I am still struggling to get this under control. People tell me I'm just stressed or depressed. It's a bit frustrating but at least there is some pattern to it. I nearly always have episodes in the morning after I get up and they run their course in about 3 or 3.5 hours. I've determined cabbage and wheat are major triggers. I'm not sure about dairy, I have not seen a clear pattern with it. I don't get a LOT of pain, just gas discomfort at times. Until I took wheat out of my diet stools were yellow tinged with bright yellow blotting onto tissue paper. Now they are normal color. I still have a way to go to get my IBS under control, but it helps to know I'm not alone. I get episodes about twice a week now except when I do something foolish like eat what's served at a wedding - then I pay for it for 4 mornings. I eat small frequent meals without wheat - gluten free products help. But its still not quite under control, but my doctor doesn't want me on meds and really, neither do I if I can help it - side effects, you know. Well, thanks for letting me tell my story. It really makes a difference to know, again, I am not alone with this in my life.

– Name withheld by request
^{April 9, 2008}

I discovered I had IBS after I gave birth to my little girl in 2005. Everything was normal until after my C-section – afterwards, I could not control the diarrhea.

Most of the medicine I tried for the IBS made my vision blurry and constipated me even when I tried to half the dose. I now take over the counter anti-diarrhea medication when I feel the pain coming on. Having this has definitely changed how I eat when I go somewhere and I also make sure I always know where the bathroom is no matter where I am. It’s just so embarrassing sometimes.

Thankfully I have a wonderful group of friends and family who completely understand.

– Crystal
^{April 1, 2008}

It started in college some 40 years ago. The pain was intense and would last for 5 to 10 minutes. After college and several trips to the doctor and being told there was nothing that could be done to relieve the problem, I started keeping a record or events, type of foods, time of day. Fats and morning were the two common factors that accounted for 70% of attacks. Once I started controlling these factors attacks dropped by 60%.

With this problem you learn where the clean restrooms are and keep yourself focused on where you are in relation to one. I’ve found the best places to stop on the road are motels with lobby restrooms. When in the city I try to use government offices. It helps to always know where the next rest stop is as a back-up.

I tell myself as I approach a new situation: No one really cares about where you are going nor do they know how many times you have already been there. When in public with several people, I set my cell to alarm as if receiving a personal call and excuse myself.

– Name withheld by request
^{March 27, 2008}

I am 34 years old and was diagnosed with IBS in my mid-20s. After reading some of these postings I first want to say that there is hope. In the beginning, before they diagnosed me with IBS, I was constantly having stomach pains, diarrhea, and nausea. After every medical test I could take I was given the IBS diagnosis. For awhile I would have attacks weekly to the point that I stopped being social for fear that I would get sick while I was outside of my home. I missed a lot of work days and thought I would get fired – thank goodness that never happened. Although my family is supportive, no one truly knows what this illness does to you on an emotional level, unless you are a fellow IBS sufferer.

I was finally able to take control over my IBS when I changed my thinking towards it. I decided that I was not going to let this ruin my life. I changed my diet, tried meditation, and learned how to better deal with stress. For some people medication works; for me it did not. It made me feel worse, so I tried a holistic approach of meditating and diet change. I still have attacks, but they are not as frequent. Although I still have my moments of frustration over this illness, I am happy that I can now go out with my husband for a nice dinner without having to run to the nearest restroom.

– Name withheld by request
^{January 31, 2008}

 

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Searching

For many persons, IBS involves a seemingly endless search for answers. Parts of life may be lost as adjustments are made in response to symptoms. It takes time, thought, and courage to keep sorting out and searching for ways to best manage the condition.  

Not so courageous – that's me. I suffer from IBS, probably hypochondria to some extent, anxiety and generally over-exaggerated body sensations in general. I am a sensitive person emotionally and my body is no exception. I am being brutally honest here. I am a good mother of two lovely daughters but I feel unable to work – and one is headed to college soon and I would really like to work then. When I try, the IBS gets worse due to anxious feelings and is complicated by severe symptoms typical of it, plus embarrassing stomach noises and a feeling that I will have sudden – well, I can't even talk about it. Fear makes it worse and my social life is affected by it. I avoid being with people for too long due to symptoms; sitting in our daughter's musical concerts are the worst. But psychotherapy has helped me to some extent as my problems extend beyond just IBS to a social phobia at this point. If you feel this way too, please know you are not alone and that excessive anxiety can worsen the symptoms. I hope to work someday. I wish for all of you freedom from pain and suffering as I know you would for me. Thanks for listening.

– Name withheld by request
^{May 5, 2008} 

[Editor’s note: Living with IBS often requires sufferers to be active researchers, always looking for what does and does not work best, what helps and what hurts. It takes time and focus to sort this all out. These are efforts to be recognized and admired, for the obstacles faced, and the courage it takes to face them.]

I am a 25 year old woman who on the outside seems healthy and full of life. I have been struggling with severe IBS with constipation for about 7 years now. I have had barium x-rays, sigmoidoscopies, and so many medications that I lost track. Still, I’ve found no real answers or treatments that seem to work. I have tried the no eating and all fluid diet. Still the pain and nausea are there no matter what I do or eat. I feel so bloated and full all the time. I am now diagnosed with anxiety and depression. Living with all my symptoms I believe I am both of these. I hardly leave the house. I am lucky to have an understanding Doctor who won't give up. I feel like a guinea pig trying everything I can. Coming across this web site has been a blessing to know I am not alone. I pray for all who struggle with this. Just try to believe there will be a brighter future.

– Rachel
^{March 27, 2008}

I was recently told I had IBS. I am only 24 and thought that was too young, but my doctor says this is usually when it occurs. I was told that stress and what I eat can cause my symptoms to occur. I hate going out to eat and if I do I am always looking for a bathroom so I know where to go. I was put on hyoscyamine, an antispasmodic medicine. So far it has helped a little, but the symptoms are still there. For the first time in about 3 years I made it through a Holiday dinner without a trip to the bathroom. I still have the worst stomach cramps and feel like these symptoms are controlling my life. I am glad I found this site and hope that with time everything will get better.

– Name withheld by request
^{March 24, 2008}

Have you ever felt like you were odd, different from everyone else? Well I have a lot of my life. People look at me and want to be like me because I am thin. Little do they know I am miserable a lot of the time. When I was 20 my stomach started bothering. I was diagnosed with IBS in 1998. I was put on medication (robinul, an anticholenergic) and pretty much lived on water, bread and yogurt. People would bug me to eat and say I was too thin and needed to eat. When my husband and I would go out to eat or have people over I would be embarrassed and not want to tell them why I wasn’t eating, so I would look rude a lot of the time.

I had my little boy at 27 and graduated from college. I went for about 5 years with only mild symptoms, but they are back with anger! I went back to the doctor and was put back on robinul and I also take a dietary supplement for IBS. This helps but I still have really bad days. I get anxiety about riding with others somewhere, or going to someone’s house. I also have problems at school (I am a Kindergarten teacher). Most of the time I just do not eat at school and I eat dinner around 4:30PM. I try to exercise 6 days a week. I was chosen for Jury Duty recently and they act like you are crazy, no compassion..

I have learned that this is the way it is and I am a happy person but I feel it limits me and I would love to do so much more, travel, mission trips, even eat out. Most husbands surprise their wives with a night out to dinner, but that just causes stress and anxiety for me. I hate it and wish it was taken from me. I feel like a weirdo and I find it very embarrassing and uncomfortable. But I deal with it so much better than I did when I was younger. I have found dietary changes that work for me. I try to stay away from sweets, greasy foods, basically things that are tempting. I did go an entire month without getting sick to my stomach. This month my stomach has bothered me several times. I know it is not going to be perfect and I just thank God for the great, fantastic days that I do have. We may be different but we are not alone, even though we may feel like it sometimes. There is hope and with continued research they will come up with better treatments.

– Kimberly
^{March 18, 2008}

IBS is a real issue. It affects dating, going on my daily activities and interacting with people I used to once interact normally. I know everyone says it’s hard to control and really heal; what is hard about it is keeping a normal social life and good self esteem when dealing with this problem. Going to the bathroom 8 times a day is not only disturbing but hard on self esteem, and I'm still looking for ways to solve this.

– Name withheld by request
^{February 14, 2008}

Hi, I was very happy to find this website! My story is very embarrassing. I am a 52 year old female and had a hysterectomy about 5 years ago. Ever since my surgery I have had problems with going to the bathroom and gas problems. Finally today, I called a doctor for a check up. This was after three stops to different bathrooms on the way to my daughter's house. I do not know much about IBS, but need help and found this site to make me a little less stressed. It is very hard to do anything, even going for a long walk without bathrooms around. I hope the doctor can help me when I go in next week.

– Name withheld by request
^{February 12, 2008}

I found out I had IBS about 3 years ago. I suffer with constipation on a daily basis and horrible gas and cramps. My doctor has tried different treatments but nothing seen to work. I stay home a lot because the gas and pain are overwhelming. I find it hard to be in the public with this problem. I use a fiber supplement 3 times a day so I can go to the bathroom. I'm at my wits end and don't know what else to do or how to get it under control.

– Lill
^{February 11, 2008}

I am a female age 52. I have suffered from IBS for over 20 years. My symptoms are pain, gas, bloating and diarrhea; mostly diarrhea. I have not had a formed stool in 15 years, mostly watery or at best mashed potato like. The diarrhea part has gotten worse –more frequent over the years. My bottom gets very irritated at times and I am so sick of constantly cleaning out the toilet and dealing with this.

I noticed when I took a yearly vacation, always a cruise, with bathrooms everywhere my symptoms would lessen. I realized I was more relaxed and also I ate yogurt 2 to 3 times a day then. I started eating more yogurt at home plus added probiotics to my daily diet.  It helped for awhile – fewer bathroom visits and more formed stools – but it doesn’t last. I am trying to keep a food diary to maybe rule out other food or add some foods. I am very happy to have found this web site. Tired of all the tests.  Best wishes to all of you.

– Name withheld by request
^{February 2, 2008}

I have been dealing with IBS flare ups for about 5 years now. I have been to numerous gastroenterologists with no relief. I’ve been prescribed 3 different meds, but when I get a flare up nothing helps. I've had tests including colonoscopy and CAT-scan and my results still point to IBS.

I am questioning myself if it is really IBS. Here's my problem, pain – severe pain. People talk about constipation, but I never get that, and diarrhea comes later when the pain eases up. I’ve gone to the ER 4 to 5 times a year because of pain. It doesn't seem to matter what I eat, and when I have a flare up, I cannot eat or drink anything because this causes the pain to get worse. Would any kind of colon cleanser (high colonic) help? My doctor told me it would cause me more pain. I don't need that. Thanks.

– Patricia
^{December 29, 2007}

Editor's Note: The hallmark feature of IBS is pain (or discomfort); it is associated with a change in bowel habit – either diarrhea, constipation, or both in alteration. Bloating is another common symptom. The pain/discomfort generally gets better with a bowel movement. For many people, pain is the most troublesome symptom. See our Learning Center Library for information on pain management. High colonics (colon cleanser) are not recommended (see our Clinical Corner – 'Is there a health benefit from high colonics?')

I'm very grateful to have found this web site. The last 3 years have been so aggravating. I've always had ‘nervous stomach’, particularly during stressful situations. In 2004, the tests began: stool samples, urine samples, blood tests, barium swallows (eww), multiple doctor visits. All found nothing. I'm healthy as a horse, according to the tests.

It seems to come in waves. Sometimes I feel fine, no problems. Then for weeks at a time, anti-diarrheals are a daily necessity. The hour-long drive to work can be a nightmare. After dinner, every night, bloating and cramps. I've learned to stop eating before I'm full, but the pain still comes sometimes.

My mom also has IBS, a little bit worse than I do. I wish there was an official test to tell you what's wrong, so you don't feel like it’s all because you're eating the wrong thing or because it's ‘just stress’. Even worse, I also suffer from hypoglycemia (low blood sugar) so I have no choice but to eat despite my fear of those unpleasant symptoms, even when I'd prefer to not even look at food. I just hope that research continues while I try to figure out the best solution for me in the meantime. Take care of yourselves!

– Name withheld by request
^{November 19, 2007}

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Working around the problem

Managing the challenges of a bowel disorder in the workplace can be a most difficult situation; it forces a mixing of our most personal and our most public lives. People try many different strategies for managing at work but still report a tremendous amount of stress over the situation. If you have a special strategy for managing your bowel disorder at work, please share your story with us.

Hello I am 20 years old and suffering with IBS. It's very uncomfortable. I travel a lot with my job - about 300 miles every other day, I travel with two other people in the same car. It’s really embarrassing to stop every 30 or 40 minutes to use the restroom. I have recently been looking for a new job, because I have no control over when I have to go to the restroom. It's really sad to me because I love my career and I enjoy the people I work with. I just can't take it anymore.

– Name withheld by request
^{January 27, 2008}

I am a 38 year old female who suffers with IBS on a weekly basis. It starts with diarrhea for a few days, then constipation. Very painful abdomen, can't wear tight jeans. Diet has little to no affect that I can tell. I am under a lot of stress, divorced, and in a custody battle over my son. I am a owner/operator of an 18 wheeler, so it is very frustrating for me to deal with this condition while on the road.

– Name withheld by request
^{December 15, 2007}

Tonight I finally bought my first package of absorbent pads. I've been suffering with IBS for the last 5 months after being symptom-free for about the last 7 years. I had it when I was around 20 now I'm going on 27 and the same symptoms are back. I've had constant diarrhea, which has caused frequent accidents. I have maybe a 1–2 hour window from the time that I eat to the time that I have to go. It's horrible! I just got the job that I've always wanted and I had to have a meeting with my boss because I was caught by her boss leaving my post to use the restroom. A normal person can call for someone to relieve them for a few minutes and wait patiently for the relief person to arrive. I can’t.  Sometimes I don’t make it to the bathroom. I clean up my mess and return to work. I've had to leave work and other places where ordinary life occurs to change clothes because of accidents. I'm thankful that my boss is a very caring, understanding, and supportive person. I also have very nice co-workers with whom I've had to share this embarrassing problem so they would know what was going on with me. My boss suggested the ‘special undergarment’ to help me be able to handle my problem. I told her that I had thought about it before, but I had hoped the problem would go away before it came down to that. 

I do believe it has to do with a lot of different factors like stress and what you eat. But like others I’ve tried to control my stress, diet, and exercise and the problem still remains. I rely on my faith. I believe that the spiritual and physical go hand in hand.  I've recently ended a bad marriage and I am raising three children, along with my new job and handling everyday life as well. It's hard but I know I'll get better. My hope and prayer is that in my sharing this with others that it will bring about the same hope and healing that I have received before and will receive again. 

– Tici
^{September 23, 2007} 

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Support for teens

Teens and young adults who suffer from functional GI disorders are especially vulnerable. The high school and college years are filled with stressors, social activities, and life changes. Feeling constrained by the need for bathroom access can lead to severe social isolation. A young adult living on their own for the first time may not feel they can rely as much on their parents to help manage their personal health, but may not know how to take charge of scheduling doctor visits and finding effective treatment. Support is needed from families and physicians to help these young sufferers transition from a pediatric to an adult model of medical management.

The very first day that I felt the symptoms, I was in class and my stomach felt very weird. Everyone in class was talking and laughing and just having a good time. I felt some gas traveling to my lower intestines and I knew I had to let it go, but I tried to hold it with all my might. I tried and I tried until I couldn't hold so I let go little by little and everyone in class started coughing and covering their nose. I felt so embarrassed that I put my head down the whole day.

My life literally stinks now that I have IBS. Before I had IBS, I had a fun and amazing life with many friends and also my girlfriend. After I was diagnosed, I began to find out that my friends at high school started to avoid me. Not to mention my girlfriend too. I knew at that time, my life and my reputation crumbled dramatically. I am seventeen years old now but I was diagnosed three years ago. I quickly became depressed and stressed out to the max because I thought God did this to me, but I came to my senses soon after. I'm glad that I am not alone in this nightmare.

– Name withheld by request
^{February 15, 2008}

I'm only 16 and I'm suffering from IBS. It's terrible. It keeps me from going to school because I'm in so much pain. I hurry through tests because my stomach makes such loud noises, it's really embarrassing. Sadly, I even have to sit in classes with my elbow pushed into my stomach to keep it from making noises. It barely helps - I have gas all throughout the day. It keeps me from going places I want to go and all I worry about now is my stomach making sounds, or being in pain every morning. It's annoying.

– Name withheld
^{February 11, 2008}

I have always been very active and never noticed any GI disorder-like symptoms until the last 6 months. I am 19 years old, and realize now truly how much of a toll the stressful last 4 years have taken on my body.

Four years ago my younger brother was diagnosed suddenly with cancer. Just recently, on Dec 1, my brother passed away.

I am a very healthy eater; no soda, no high fat foods. Yet, I find that eating anything just tears up my stomach and I have a hard time eating. Every time I eat my stomach balloons up and I find it very hard to go to the bathroom. I have tried cleaning myself out and that just makes it worse at first. I am thin but yet feel like I could probably lose about 30 pounds just by going to the bathroom. It makes me so tired. On some days all I feel like I am up to is sleeping all day and when I work out I feel better but it’s almost like my stomach has been stretched out, it is so uncomfortable. I have been to my doctor for several tests. I really need some help. This is hard for me.

– Breanna
^{December 23, 2007} 

I was diagnosed with IBS in 2005. As a teen still working my way through High School, it’s very difficult to explain to my friends, teachers and others about the disease. I tend to go to the bathroom quite frequently and I sometimes encounter such severe stomach pains that I can't make it through during class. Many teachers have thought that I ask to use the bathroom so I can "skip" out on class (even though I would never do such a thing). Sometimes the stomach aches are so bad that I start crying, but I try to hold the tears back so I can make it through the class period, it never seems to work though. My Health Care teacher actually kicked me out of class because of stomach aching.

If I don't have something in my stomach for my stomach to feed on, it feels like my organs are trying to feed off themselves. The pain is so unbearable it’s hard for people to understand what I mean. I've had so many complications with my stomach, friends, teachers, and doctors; I could make an inspiring movie out of six years of complications. No one will understand how I feel, except anyone else who is going through what I am going through.

– Name withheld
^{November 26, 2007}

I'm 19 years old now and I've been suffering from IBS since I was 9, Since then I have dealt with severe constipation and diarrhea constantly. I've had to leave friend's houses unexpectedly because of an episode. I've had to miss school and work. I only have to know where the bathroom is in any building that I am. Long car trips are the worst. My parents always know that when I say my stomach hurts, they have to quickly find the closest bathroom.

My stomach also makes loud rumbling noises all of the time, which can be incredibly embarrassing. I'm in college, and a lot of the time I have to leave classes because my stomach is making so much noise or I have terrible gas. It's incredibly embarrassing.

I have a wonderful boyfriend and I've tried to explain my problems to him but it's just so mortifying. He knows that when I say my stomach hurts, he's to leave me alone for a while. The other day we went out to eat and we going to go to his parent's house after, but whatever I ate caused an episode so he had to rush me back to my dorm. I literally almost didn't make it...

Living with IBS is really, really hard, mainly because it's such an embarrassing problem that explaining somewhat rude behavior such as leaving a party unexpectedly is impossible. I can't even tell you all how many excuses I've come up with in the past. I hope someday there is real help for IBS sufferers and it becomes a much less taboo topic for us all.

– Name withheld
^{November 4, 2007}

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The burden of illness

IBS may have other symptoms apart from pain and bowel dysfunction. The anger, anxiety, or tiredness that many sufferers report may arise from the burden of trying to manage the recurring and unpredictable symptoms of a chronic illness. These feelings become just as much a part of the illness experience as the underlying disease. Talk to your doctor about addressing all of these aspects in your treatment plan, and check our library for further information.

I am a 40 year old female from Illinois. I have always had a ‘funny tummy’ and was told I had a ‘spastic colon’; however since July 23, 2007, my whole life feels like it has been turned upside down. First I developed a staph infection, then the official IBS set in. I was hospitalized in mid-August and have had every test done, but still I am sick every day. Colonoscopy was negative. Endoscopy was negative. Multiple stool samples and blood work show nothing. Diagnosis: IBS.

I feel like I have lost who I once was and don't know how to get ‘me’ back. The diarrhea starts every morning around 6:30 am and the nausea and stomach pain continue. I don't feel like I'm on an uphill swing until it is time to go to bed and then I absolutely hate it because I know this whole process will resume again tomorrow. I have said countless prayers and feel like a prisoner in my home. I know that I am depressed. I feel sorry for myself and for everyone suffering for this condition. It truly is life altering. I will continue my prayers and medication and plant my feet firmly on the floor again tomorrow a.m. I just wish someone would knock at my door and say ‘I can make you all better.’ Thanks for listening and God Bless!

– Leigh Ann
^{December 4, 2007}

My IBS began just as I was finishing college. I was engaged to be married, looking for a job, living in a new city and all of a sudden certain foods began causing me to have urgent (very urgent) diarrhea. That started making me socially anxious which lead to bathroom urgency all on its own. This became a vicious cycle which, at the time I didn't understand.

I spent the next 20 years living with constant anxiety never knowing just when I would be in trouble. Sometimes I was fine and then, in the same general scenario another time I would be rushing to the bathroom. The only place I felt really comfortable was at home and the place I felt most anxious was at a friend's house for a meal.A gastroenterologist started me on huge doses of a fiber supplement and a sedative. One made me sick and the other made me dim. I moved on.

Finally, when I was about 40 a doctor suggested a low dose of the fiber supplement and that was the best advice I ever got. It has made me much more comfortable. Now I'm 57 and instead of finding better ways of coping with my IBS I find that I am losing ground. I don't have the emotional energy I once had and fighting this affliction every day has worn me out. I now get mild panic attacks when I feel uneasy about my ability to get to a bathroom when needed. I'm always fine with my wife but as soon as anyone else is present I can't handle things like eating out and then going to a show (that makes me anxious just to write down). Bottom line is that it interferes with my life more than ever. Even though my wife has lived with my problem for decades she still doesn't really understand. On top of everything, my company shut down the division I was working in and my IBS is interfering with my ability to find a new job.

There is so much I'm not writing but I know that those of you with IBS understand. There is a percentage of your consciousness that is continuously monitoring your bowels and keeping track of the nearest bathroom. There is a gremlin on your shoulder all the time whispering that you shouldn't have had that last meal or eaten so much. It also wonders how many stalls are in the men's room, will there be toilet paper, will the smell and the sound embarrass me at a friend’s house. And that continuous fear of the day I don't make it. What will I do??

I tell people about my problem...they don't really understand but they are sympathetic and accepting. I don't go into detail but I let them know that there is a reason for my odd behavior. It actually makes me calmer and less likely to have an attack. It's nothing to be ashamed of and if others want my company they will have to accommodate my affliction.

Well. if any of this sounds familiar welcome to my world. I'm sorry to say that your existence gives me a feeling of comfort that I am not alone. I know that everyone has a different experience with IBS, but no one should have to live like this. I understand what you're going through even if no one else does and I care.

Thank you to all who have written their stories...it has helped.

– Ken
^{December 3, 2007}

I am a 65 year old female that was diagnosed with IBS many years ago. I had the usual symptoms (cramps and diarrhea) after a meal. I’ve put up with it for approximately 30 years. 

Nine months ago I went to the hospital for an unrelated procedure and contracted an infection in the hospital known as C. difficile. I have never been that sick in my life. After large doses of antibiotics I was sent home and my bowel has not worked even halfway right since. The doctor insists it is still IBS, but I have never read or heard of anyone with IBS experiencing what I am. Severe cramping with pencil size stools or not being able to pass anything. The abdominal pressure is so great I am forced to strain. Laxative and anti-spasm medicines relive it for a short time. Then it is up to 20 or more pencil size movements in a day. When I consume a few meals, it starts all over again. 

I have not been able to work full time in the past nine months. I am self employed and it’s taking its toll financially. I have had 5 CT scans and a colonoscopy with no positive diagnosis. I would like to know if anyone else diagnosed with IBS has ever experienced these symptoms, and if any relief was found. 

This disease has controlled my life completely. It feels as if my bowel is being constricted in some way. I can't go anywhere without a box full of pills for the spasms. I do take fiber supplements and stool softeners but when it locks up the only thing to get it loose is laxatives and/or anti-spasm meds. I pray everyday for a miracle. I feel for anyone who is crippled by this cruel disease.

[Articles of interest in IFFGD Library: Clostridium Difficile Infection; Gut Bacteria and IBS]

– Name withheld by request
^{October 10, 2007} 

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Body, mind, spirit

Two generalizations can be made about the consequences of chronic illnesses: 1) the person with a chronic illness experiences impaired functioning in more than one, often multiple, body, mind, and spirit systems; and 2) the illness-related demands on the individual are never completely eliminated.^_[1] There is no cure for IBS. Treatment is aimed at relieving symptoms, but is not always enough; help in learning how to live with the condition may also be needed. Much has changed to improve understanding of IBS in just the past 5 years. If you have been struggling for years to live with a diagnosis, ask a specialist in functional GI disorders what new treatment strategies may be available.

Thanks to all of you who shared your stories on IBS; what an awful disorder it is. I have had it all my life and many times would rather not eat. It impacts my sleep and energy level and just makes me feel less happy. I do have some good days and wish there were more of them. I hope everyone can find someone in their lives for support because we need that. It seems prayer, deep breathing and hypnosis are helpful to me and I will continue to do those. I pray that everyone can stay strong.

– Stu
^{April 26, 2008}

I actually started crying when I was reading these stories. I've been so down lately because of what's been happening with my IBS, and it helps so much, so know it isn't just me.

I've had IBS since I was 10, around when my parents divorced. I'm 19 now, and things are so much worse than they've ever been. It started becoming chronic pain, frequent and absolutely debilitating, in the summer between my freshman and senior year in high school. I went on a school trip to Austria, and among all the stress and rush of changing planes, I got horribly ill. I was stuck in the seat by the window because my two friends were sleeping on their tray tables, and we couldn't land when we were supposed to because of the weather, and I didn't end up making it to the bathroom. So here I was, with my entire freshman class, crying and trying not to let on what had happened, with chaperones I didn't know who were, at best, completely apathetic to something I was too embarrassed to tell them about. The trip was a nightmare. I didn't know the language, at all, was yelled at several times by the people who cleaned the bathrooms from being in there so much and not knowing that I was supposed to tip them, having to randomly leave for another city at the drop of a hat for a few hour ride in a bus with no bathrooms- all while trying to hide it from everyone, even my mom. She'd really spent a lot on the trip, we aren't exactly rich, and I didn't want her to know what a nightmare it was turning out to be. It resulted in her not talking to me for three days, not answering my phone calls or my emails, because I confided to my best friend how horrible it was, how much I wanted to come home, and didn't specify it was because I was sick.

I ended up losing 30 pounds in two and half weeks. I literally stopped eating, just drank tea and the occasional apple. It was like a walking nightmare, not knowing here any bathrooms were, not being able to read any of the signs, lying to everyone when I was in so much pain that I just wanted to curl up and cry.

I got home and progressively got worse. Being in social situations was horrible. Even thinking about going somewhere without a bathroom was horrible. It still is. I've tried biofeedback, getting rid of dairy and wheat, exercising, anti-anxiety medications of every color. And now, I'm just thinking maybe I'll never get better. I want to go and thrash around in my favorite band's mosh pit, be able to stand out back by the bus afterwards for hours and wait just on the chance of getting an autograph. I want to go visit my girlfriend. I want to be the spontaneous person I am, I want to drive across the country on a whim, just because I want to. But I can't. And having to leave college, having to have my mom come pick me up because I just couldn't do it, couldn't take it anymore, having to admit that to myself and sit at home with nothing to do and nowhere to go. It's horrible.

It's true. Every story I read, the bottom line is – no one understands. Not unless you have it. We're not faking it. We can't just 'get over it' or 'psych ourselves down'. This is a horrible illness, and it's making me shake just writing this down. When I never tell anybody, I hate people worrying about me, I hate pity and sympathy. I just want to get better.

Thanks to everyone who wrote their story, and gave me the courage to write mine.

– Name withheld by request
^{February 20, 2008}

This is the first time I have ever gotten to read stories about IBS, and I can say that the symptoms and embarrassment and feelings affecting self-esteem sound as if I have already written this.                             

I am a 54 year old male and I have had this condition for my entire life. As a kid I was constantly getting sick in school, had to go to the school nurse and my mother would pick me up and take me home. Back then few understood IBS so I was told I just had a ‘nervous stomach.’ I had all kinds of tests and x-rays and the doctors would tell my parents that they could find nothing wrong with me. Ironically, my Mother was an R.N. working in a doctor's office. That didn't seem to matter because my parents said I should just tough it out. There was not much sympathy as a kid. I even had one school nurse tell me I would ‘amount to nothing’ because of my problems.

When I graduated from high school the thought of going away to college was terrifying. Luckily I had wanted to study Engineering and the area I live in (S.E. WI.) had one of the best engineering schools in the country located in Milwaukee. So I was able to live at home and drive back and forth to school each day, but the stress of college was no help to my IBS. I missed a lot of classes and because of other circumstances I was never able to finish college. I had been working since I turned 16 and was able to get full time employment at a job. Because of the number of days I missed work I was never promoted. As an adult I have used so many excuses . . . any kind of stress will trigger my IBS. I've also learned which foods to stay away from. I've had to do a lot of sacrificing because of my IBS.                      

I was finally officially diagnosed with IBS about 11 years ago. This condition has caused me to spend most of my adult life alone because dating was just too stressful. Still, I met someone who I thought was sympathetic and understanding about my IBS. Since she left me five years ago, (I constantly heard, ‘but you look fine, this must be all in your head’), I have gotten lonelier and lonelier, but my IBS doesn't flare as much. I consider this a lousy trade off.

I have found that days when I eat nothing I feel better than days when I do. I feel like if I never had to eat again I would be the happiest person in the world. I used to have a lot of dreams and goals but now I just try to live day to day. I never go out to dinner or see a movie any more. I just don't like doing those types of things alone, even though I could just get up and walk out of a movie if an attack came on and it would not affect anyone. I am like many of you out there. I have been to parties, weddings, sporting events and picnics and I always find a way to avoid food.

Thank you to all of you out there to give me this chance to express some of my frustration in dealing with IBS.     

– David Ugloi
^{February 2, 2008}

I'm a 52 year old woman and have been dealing with IBS for more than a decade now. It seemed to begin in earnest after the death of my Dad and sister all in one year. I have dealt with depression and anxiety ever since and have been using prescribed drugs to help with those symptoms.

I couldn't help but smile to myself, however, as I read several of the stories shared here. Not because I found their situations amusing but because they sound all too familiar! I don't travel any more than I absolutely have to. I missed my father-in-law's funeral out of state because of symptoms (couldn't make the trip). I've had too many flare-ups while on the road and it's a very anxious situation for me.

As a matter of fact, anxiety is an unfortunate side-effect of my IBS and the more anxious I become, the more frequent the flare-ups become, and vice-versa. It has made me fearful at times to leave the house, but I too know where all the bathrooms are in town. I shop in one particular grocery store mostly because I know they have an adequate restroom set-up. I don't travel out of town very often but when I do I usually have to take an anti-anxiety drug to help me get where I need to go.

Additionally, I do use loperamide during a flare-up, which most often will quiet things down in 30 minutes or so, but will also often constipate me. So it's a temporary fix, though I appreciate that fix when I'm working and can't run home every time the painful cramps and frequency kick in.

I struggle with fears with regard to it all. I wonder if my fears are irrational. Some are too embarrassing to share, but after reading some of the shared stories, it is nice to know that I'm not alone. I have had to tell several folks that I work with about my condition and most of the time people seem understanding, as is my family for which I am very thankful. Someday I hope there will be a true cure for this condition because it can ruin a lot of activities in one's life. Thanks to all of you for sharing!

– Andi
^{January 25, 2008}

I have suffered with IBS for well over 20 years.  I have had one doctor after another tell me to eliminate stress, take loperamide and learn to live with it.  I have been afraid my whole life to go to the mall or anywhere I did not know where the ladies room was because I only have seconds to get there when I need it.  My children and husband hate going anywhere with me because I can't leave the restroom.  I have spent many hours in the restroom while they shopped unable to walk with them for even 5 minutes. 

I have cried and I have hid in the house eating food I knew would make it worse and gaining weight because I feel so hopeless.  After 20 years of this it feels like there is no hope and I will never be able to leave the house without fear and enjoy my family.  It is my worst fear.  Yet I have to live with it everyday and no one understands how alone it feels.  My husband tells me he understands yet there is always the smart remark when I have to use the restroom for the third time or I am too tired from the day and the daily pain I feel to make love at night.   I know he doesn't know what I feel and it feels like no one does.  I sit alone in this corner and hate my body and hate my life and pray to God to take me.   I only hope one day I can overcome this somehow and learn to breathe again and learn to live without fear.  I dream of that  – just the simple hope of living without fear.  Maybe one day. 

– Name withheld by request
^{January 18, 2008}

Going without

Many people with IBS wonder if certain foods trigger their symptoms. Some IBS sufferers are able to identify a specific food(s) that aggravates their symptoms, and make a change in their diet that helps. For many others, a change in diet has little or no effect. For still others, the very act of eating activates digestive processes within the gut that can bring on symptoms regardless of the food. (If that is the case for you see if eating more frequent smaller meals, rather than a few larger meals helps.) Approach dietary measures systematically and with caution.

I've been experiencing IBS symptoms since I was in my early 20's and now I am 46. My symptoms are triggered by foods and stress. I've noticed that when I eat fatty foods it takes only 20-30 minutes before I start to experience sharp pains in my stomach, and a sudden urge to use the restroom. Sometimes it is so urgent, I have to actually excuse myself and go to the restroom when eating out. I've found that most meats can trigger a reaction too. However, I noticed that if I consume a glass of red wine before eating a steak dinner, I do not have the symptoms.

Stress is a big issue for me as well. Whenever I have an argument with my husband it can put me into an "IBS Moment" and I have diarrhea for a day or two. I actually left my stressful job as an advertising production manager and am now working in Real Estate. Most mornings I do not eat breakfast, much to the chagrin of my mother and husband. And yes, right before or during my monthly cycle I tend to have "flare-ups" which I conclude to be associated with hormone levels. My doctor gave me a prescription (an anti-spasmodic medicine) which I have to take sub-lingually BEFORE I eat a meal and sometimes I remember and sometimes I don't. Sometimes it just doesn't have any affect at all.

I have learned to live with this illness and have been keeping notes on what my "trigger foods" are. Like someone with allergies, I try to avoid the things I know will "set me off" but sometimes I don't have that opportunity and I have learned to suffer quietly over the years.

– Michelle
^{January 25, 2008}

I am 28 year old female and have had stomach problems ever since I can remember. Even when I was a little kid I remember crying on the toilet because I couldn't go #2. I didn't go to a gastro until I was 23 and worked at my first office job. He said it was IBS and prescribed a drug targeted for IBS with constipation. It seemed to work, however, it made the constipation into full force diarrhea on occasion. Sounds weird, but I would rather have diarrhea then not be able to go. The pain associated with constipation is too much for me to handle.

Stress makes it worse and working in advertising is full of stress. Sometimes I feel so disgusting because I have to literally run to the bathroom sometimes and it is not pretty. I know where every bathroom is in every grocery store, mall, restaurant etc. Like a similar story above, I almost did not take my current job because it is a small agency and there is only one bathroom right out in the open. I know that everyone probably knows I have a problem, which takes away from my professionalism and bothers me.

I love to go out with my friends and have a few drinks but I have realized it really sets off my symptoms and I am a mess for at least 2 days after I go out. I am starting to realize it might not be worth it, although I will miss my glasses of wine.

I have decided to try another gastro doctor and have an appointment this week. I am hoping to get some tests done and find out that it’s anything other than IBS, as I have never had an endoscopy.

I have lost about 10 pounds recently because who wants to eat when all you feel afterwards is bloated, gassy and tired. So then I have to deal with the comments about how I don’t eat because I have some kind of eating disorder which only adds to the stress.

Good luck to all of you and hang in there.

– Name withheld by request
^{January 20, 2008}

Hello, my name is Rachel. From the outside I look like a healthy, happy, normal 26 year old.... If only that were the case.

My problems with IBS all started on my 13th birthday. I have not lived a normal day since before that birthday. I went to doctors and specialists and had every test done. All I was told was that, ‘nothing’ was wrong with me. My last specialist went as far as to say it was all in my head and he wanted to put me on antidepressants. Can you believe that?

So for over 14 years of my life I’ve lived in pain and discomfort. My bowels only work once a month for me; the pain is excruciating. I have ended up in the emergency room numerous times. It is so scary. I can barely work anymore.

I eat all organic foods, no dairy, no real meat (all soy and tofu – yummy) lots of fruits and vegetables, high fiber, drink a lot of water, exercise, and still I am struggling tremendously. I have chronic pain in my lower abdomen. The pain is always there and when I eat it’s easily doubled in severity. Plus I get bloated, like being inflated with air, every time I eat.

I am dealing with all of this one day at a time and my spiritual faith helps me keep a positive attitude daily through all of these trials and tribulations., Since doctors have raised their hands in the air with no answers, I am determined to find some answers on my own. Hopefully they are out there somewhere for all of us struggling with this.

– Rachel
^{October 11, 2007}

I am so glad to finally find a website with people 'like me.' Since childhood I have had a 'bad stomach' and been sensitive to certain foods. The IBS really started last year. I have lost over 60 pounds in 1 year due to it. I have cut out lots of food from my diet, especially those high in fat, to help with symptoms or to try and prevent them. My symptoms vary from severe diarrhea within minutes of eating, to instant sweating and teeth chattering pain. It's really hard for me since I have two children, one almost 13 and one almost 4 years old. My husband travels a lot so I have to care for the children no matter how I feel. I also get afraid to leave the house at times and no longer work or attend school due to my condition. I know how it feels to be waiting in line at the grocery, suddenly having to go to the bathroom and barely making it. My husband is very understanding but sometimes you can't understand if you don't experience it. I am glad to know that others know how it feels. Hope my story helps someone else feel a bit more normal.

[Editor's note: Unintended weight loss is not a symptom of IBS. The gut becomes active when eating and many people connect symptoms and food. Not everyone is bothered by food, or by the same foods. Care must be taken to maintain healthy eating habits and not sacrifice nutrition or enjoyment by being needlessly restrictive. Take some time to learn how to sort this out is. Find out more here.]

– Stacie
^{October 5, 2007} 

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Sacrifice

IFFGD’s 2002 IBS in the Real World Survey found that people are sacrificing huge parts of their personal lives as they battle to manage their symptoms.

I have been reading other peoples stories for years but have never thought to write one myself. Aside from my doctor and my family, no one knows I have IBS.

I am 23 now and have had it since I was 16. I even remember the exact day I got it. It’s such a horrible thing that no one likes to put up with, yet after a while, I think it just becomes part of your life. I can't even remember life without it now, can't remember what it's like to be 'normal'. I look at my friends with all their boy problems, money problems – I listen to them and just think to myself 'I would kill to have their problems over this' How are they not happy ALL the time? I have a few days where I feel great and don't have any symptoms and I am just so content with life no matter what else is going on. I know people say ‘it could be worse’ but that never really helps your situation does it.

I have read many stories with much worse symptoms than mine and I really, really feel for you all. Here I am writing on an IBS forum and I still can't bring myself to write my symptoms – I hate this more than anything. You try not to let it take over, and it doesn't – it just interferes with so much. It makes you a person you don't want to be. I want to move out of home so badly, but cannot afford it on my own. The thought of having a house mate is just not an option for me. What if I need to use the toilet ad they are in the house? What if they have friends over and I need to use the toilet? I read the stories of people who have boyfriends or girlfriends and I think – How did you bring yourself to tell them? How do you even bring it up? I hate telling my doctor about it let alone a guy!

Seems like I am the only person I know who suffers from it which makes it even harder to even think about telling anyone. I don't think people without it could fully understand the effects of it, which is fair enough I guess. Like someone else said here, ‘sometimes I just wish they could spend a couple days in my shoes, just to see what it's like’. I think that all the time but, on the other hand, would never wish this upon anyone.

Sorry this is so long - but once you start writing, you realize just how much there is to say! Well without sounding all sentimental I hope you get through your own battle and come out better for it.

– Name withheld by request
^{April 29, 2008} 

My name is Mary Ann and I have IBS which manifests itself in cramping and loose watery stools brought on by food and stress. I can't go anywhere without an anti-diarrheal as I am terrified that I will get sick and not be able to get home because I don't have loperamide to take. The anti-diarrheal at least allows me to live a somewhat normal life. I just had a bad episode of IBS today so I have resigned myself to a very basic diet for my IBS probably for the rest of my life. Both of my brothers have had ulcerative colitis – both had to have their colons removed. I don't know why these problems have afflicted my family. All I know is that I hope that research will someday bring a cure for bowel disorders. Thanks for listening.

– Mary Ann
^{February 11, 2008}

I was diagnosed with IBS about 3 years ago after being prescribed medicines for GERD, then seeing a GYN and having my ovaries and adhesions removed because of pain in my lower abdomen. The surgery reduced some but not all of the pain. So they settled on IBS as my problem. I tried lots of medicine for it but nothing really worked.

Now I work part time and only in the morning. That way I can go without breakfast, work until 1:00 pm and then go home with no problem. Going out or to a movie is a problem. I know where every bathroom is in every store in our county.   

Home cooking doesn’t seem to bother me as much as eating out. I have made many dietary changes as I found what works best for me. I’ve stopped going to doctors for this. I’ve had so many scans, scopes, scopes, poking and prodding. I’ve just learned to live with it.

– Jan
^{January 16, 2008}

I’m 20 years old and have been suffering from IBS every since I was 15. It’s been so embarrassing; I hardly ever go anywhere because I fear I might have to run to the restroom. Not much helps. A lesson learned – you all out there are not alone. I’m right there with you.

– Matthew
^{August 1, 2007} 

I have worked all my life and looked so forward to retirement with my husband; then IBS set in. It has just taken everything out of me. When I plan a trip, golfing, or just shopping with the girls, most all of the time I have to cancel. I follow my diet to the letter, take extra fiber every day and have read every piece of information on the Internet for help and nothing helps. I have been to several doctors and they say the same – there is nothing they can do. I just try to enjoy the good days I have and when a flare up occurs I know it will be lost days. I can not feel sorry for myself but I do feel sorry for my husband who puts up with me and having this problem all of the time.

– Name withheld by request
^{July 8, 2007}

 

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At a loss

IBS is not caused by stress, but having the disease can certainly be stressful. While there is no cure, symptoms can usually be improved when working with a knowledgeable doctor. Sadly, not all doctors understand the condition, leaving their patients to find solutions on their own. IFFGD maintains a resource list of physicians interested in treating patients with the condition. Contact us for information.

I was diagnosed with IBS in 2005. I have been very ill ever since then. I have constant flare-ups, and my main symptom is diarrhea. I also have daily bloating. I had an endoscopy, and it was discovered that my stomach is not functioning normally either. I have problems digesting food. Because of the constant problems I have with this, I cannot work. So I am in financial trouble, which adds stress that I shouldn't be in. I keep praying that they will research, and invent a medicine that will take care of this horrible disease. My mom has IBS (called spastic colon in her day) and she was on a medicine that took all of it away, then they took it off the market. I am on medication for my stomach problem, and I am taking a cholesterol medicine to control the diarrhea. My doctors just keep telling I have to "live with it".

– Trish
^{February 22, 2008}

I have had stomach problems ever since I was a little girl. I remember my mom having to give me enemas frequently just to help me go to the bathroom. I was always constipated. Now, I am 32 and still constipated more so than not. I do get diarrhea but usually only for a day. I deal more so with constipation. I have to constantly take a fiber supplement or it will be bad. If I forget, I can be constipated for several days.

I am not sure which foods if any really trigger my symptoms. I guess fatty foods and dairy are suspects in particular. If my stomach hurts it hurts all day and even into the next day… sometimes for 15–20 hours. It is hard to describe the pain to someone who doesn't experience this. It is definitely not a normal upset stomach because I know the difference! I get what I call ‘hard tummy’ where my stomach gets hard as a rock and bloated and it looks as if I am pregnant. My pants are tight and I cannot keep them buttoned up. I just feel huge and uncomfortable. Sometimes I think that the pain would subside if I went to the bathroom, but I can't even do that because of the constipation! It is very embarrassing and annoying. My boyfriend tries to understand but it affects our love life as well... the gassiness and pain and bloating…

I am so happy that I found this site because I feel a little better knowing that I am not alone in what I am feeling.

– Name withheld by request
^{February 18, 2008}

My eyes teared up reading the stories that are so very similar to mine. I am 68 years old and have had IBS since I was about 20 years old. At the time, no one knew what the problem was, I was told by a doctor that he hoped whatever was bothering me would go away. In other words he thought it was all in my head. I can't count the number of embarrassing moments I have had, many similar to those listed and worse.

I do know that stress does have an effect on exacerbating my symptoms as does dairy. For the last five years, my symptoms have grown farther and farther apart, although I still have them every few months... diarrhea and cramping and time after time on the toilet. The thing that has helped me mainly is hypnosis. It has helped me immensely.

I too always know where the nearest toilet is when I go out, and am careful to not eat too much before venturing out shopping or on a trip. Cruises are great because of the prevalence of bathrooms nearby as noted by one of the other submitters.

[Editor's Note: For more information on hypnosis as a treatment for IBS, please visit our Learning Center: Go »]

– Name withheld by request
^{February 15, 2008}

I suffer from IBS and I usually get it in the mornings before I leave for work. I am sometimes on the toilet anywhere from 30 minutes to an hour. My mum always says it is down to stress but even when I am looking forward to going out with friends I get it. I take some meds if it gets really bad and I do try to watch what I eat, but I find it really hard.

– Name withheld by request
^{December 17, 2007}

Hello, I am a 42 year old female, and just came home from one of my countless doctor's appointments depressed again. I don't know whether I am coming or going anymore. I have had stomach pain for years. However, within the last year it has increased. I have had the endoscopy, colonoscopy, hysterectomy, and it seems like whatever else they can do you to you. My pain is significantly severe at times with cramping and stabbing pains. I also seem to suffer more from constipation. I have yet to find a doctor who is sympathetic to my plight. And no one has offered any kind of treatment, so it does seem hopeless at times. Although, I am on my way to another appointment in hopes of finding some kind of relief. I am also lucky that I have an understanding family, as this is most important for piece of mind. Good luck to all who suffer from this insidious disorder. My thoughts and prayers are with you all.

– Name withheld by request
^{December 13, 2007}

I am so gla