Courageous Stories: Archive

 

Share your experience of living with a digestive disorder – it can be therapeutic for you as well as others who suffer. Share your story.

 

 

I have suffered with IBS for a number of years prior to being diagnosed. The most distressing thing for me is incontinence and the ensuing depression which this evokes. I have given up well paid jobs because of it and have suffered a severe loss of social life.

It seems that my whole life is dominated by my bowel to the extent that some days I am afraid to leave the house. I have encountered severe incontinence where my bowel has evacuated itself in the street, in my car and once in a store when we were on holiday in America. I get none or very little warning. There is absolutely no control over it, I can only try to reach a toilet, which isn't always successful.

The other type of incontinence is where my bowel releases smaller amounts of stool frequently throughout the day without my realizing it is happening. This again results in me being afraid to leave the house and I get very down at constantly having to clean myself, wash my underwear and shower only for it to happen again a short time later. I am becoming more and more desperate and am at my wits end with it all.

– Name withheld by request
^{May 21, 2008}

I was diagnosed with IBS in 2004. At first I did not understand what was going on. I still suffer from constipation, cramps, gas and runny stomach. I take medicine, eat less and exercise, and avoid red meat and dairy product; yet sometimes I still have attacks. I don't know the cause but I hope someday this nightmare will be over.

– Zanele
^{January 29, 2008}

It seems like ‘forever’ that I have been experiencing symptoms of IBS. When I was in my early 20’s I called the condition ‘funky tummy.’ Now in my early 40’s, I still experience the painful cramps, loud belly noises, and embarrassing moments of ‘bolting’ for the bathroom. I was prescribed tegaserod and a fiber supplement a few years back and felt worse. Very recently I started suffering a bad bout and am now on my second week of this depressing painful journey. My doctor has placed me on a prescription drug for the bloating and wants to discuss other drugs (don't know which ones) to ‘assist’ me with daily discomfort. I certainly don't know how each day will turn out but I do know that having people in my life understand and accept me and my IBS has been a great comfort. May there come a day when all of us are IBS free!

– Name withheld by request
^{January 15, 2008}

I have been having problems for a few years and didn't know what the problem was until recently, when my doctor referred me to a specialist. He found that I have been suffering from IBS and finally I feel like I can put a name to this awful monster that entered my life. Now the hard part is to find out the foods that trigger the bouts of diarrhea that hits at the worst times. I was told by this doctor to keep track of what I eat and to try and see what triggers it and what I can eat without problems. I was told that one size doesn't fit all and that what causes it in one person doesn’t necessarily trigger it in another. I am so glad to see that I am not alone...Good luck to all and good health.

– Stephanie
^{June 5, 2008}

[Editor’s note: Food or eating is just one of many triggers that can aggravate IBS symptoms. Use the IFFGD Daily Diary to help sort out your personal triggers. Go»]

Hi, I am a 22 year old college student, my symptoms of IBS became very strong when I was 17. I had stomach pains so bad that I stayed up crying at night in my mothers arms. I was finally diagnosed with IBS and have been struggling with it since then.

I have been to may different doctors- all of them have suggested different diet techniques. I have come to believe that with IBS, there is not just one diet that works for everyone, you have to explore different foods. Its hard because before I had IBS I loved to try new foods, now I have found that most of the time new foods upset my stomach and I am forced to choose plainer foods – which I don’t mind because in the end I feel great. What’s hard is to look at other people who are free to do, eat and drink whatever they want, while we are here struggling not to be bloated or in my case (constipation) pass a movement. Honestly, I don’t think I would be as positive as I am today without telling people about it. If someone asks what is wrong, I tell them what is going on with my stomach and how I have IBS. You would be surprised with how many people can relate to it!! Also, if they have experienced something like it, their solutions may help you out.

My now husband, has been by my side for 3 years now! He is the one that has to help me with the medicines. He is amazing, he sits next to me when I am in the bathroom, and starts a casual conversation to get my mind off things. His support is endless!

I have found that by reading a book, or even bringing my laptop to the bathroom to concentrate on has been a significant help. Sometimes my muscles contract at the wrong times preventing my bowel movement from taking place. When concentrating on other things, my muscles relax and that helps.

I guess why I am writing is because I was overwhelmed by the amount of people who are afraid to talk about it. DONT BE! I'm not going to say that some people aren’t going to be grossed out about it... but we have what we have. And I’ve found that those who are closest to me understand and appreciate my honesty.

– Jennifer
^{June 2, 2008}

It was so great to read these stories! As a public-restroom ‘expert’ (bookstores are usually the best), I always wonder what people do with all their time when they don’t have IBS. But I finally got a fairly good handle on my IBS (primarily diarrhea) last summer when I finally went to a gastroenterologist. I’m in my late 30’s and my mom is a nurse, but even having a gastroenterology professional in the family does not remove the fact that it has been an embarrassing problem I did not want to discuss with strangers.

I was ecstatic when loperamide entered my world. The first time I tried it, I knew I at least had a temporary fix. My best friends understand the need for me to not stray too far from a restroom after eating but my partner has less patience for it, especially a big attack, the cramps from which take us home and make me curl up in a ball on the bed.

That’s what led me to the specialty doctor (finally). He prescribed hyoscyamine (an anticholinergic/antispasmodic), which greatly improved my symptoms. I feel so much better most of the time that I think I’m ‘cured,’ that is, until I forget a dose. Now my partner just gets irritated if I forget a dose. It definitely makes a huge difference in our lives. It used to bother me a lot when people around me didn’t understand but really, there’s no way they can and it’s understandable that people used to having uninterrupted fun or uninterrupted staff meetings or non-stop car travel would see the constant interruption that we live with daily as annoying. It is annoying!

The longer I have paid attention to it, the more I believe in the brain-gut connection. I’m a mental health professional and I try to use relaxation exercises to control the anxiety and GI symptoms which seem to run a complete, chicken-egg circuit. I still have symptoms, and foods I need to avoid, but I have also had much less anxiety since beginning the hyoscyamine. Outside of the normal sedating effects of an anticholinergic medicine, I also realized how much of my anxiety was a result (or part of the circuit) of triggers/messages from my hyperactive GI system. Anyway, I’m just thrilled to be losing my expertise with public restrooms and so glad I finally went to a professional!

– Jenny
^{March 15, 2008}

Ten years ago, nervously taking my first airplane trip, I developed the habit of chewing a pack of gum in a day. After two years I started to experience severe diarrhea and abdominal pain. I thought I was lactose intolerant or had woman problems. It wasn't until after 7 years of severe gas pressure (I compare it to childbirth) that a doctor actually sat with me and gave me a pamphlet on IBS. I cried with relief. I suffered with constipation and back pressure extending into my abdomen that lasted for at least a day.

But now I am kicking myself for chewing all that gum because I’ve learned that sorbitol, which is in many gums and candies, can trigger symptoms. Now I can't have caffeine, greasy foods, gum or even gummi bears, or I am on the couch for a day. Not to mention any foods that give me too much gas such as some fruits and dairy. I just try to avoid my triggers and read all labels on gum and candies. Today was a good day to not be in pain. God Bless you all in your healing.

– Kimberly Reels
^{January 25, 2008}

[Editor’s note. Diet does not cause IBS, but some dietary factors can cause digestive upset in virtually anyone – and in those with IBS can make symptoms feel worse. For example, eating too much of some types of sugar that are poorly absorbed by the bowel can cause cramping or diarrhea. Examples include: sorbitol, which is commonly used as a sweetener in many dietetic foods, candies, and gums; and fructose, which is also used as a sweetener and found naturally in honey as well as some fruits. Read more about diet on our Dietary Measures page. Go » ]

 

 

I remember being diagnosed with IBS as a teenager, but can't recall my symptoms being this frequent or severe back then. I am now 28 and I've been dealing with IBS on a regular basis for about 3 years.

In March of 2005, my husband had a grand mal epileptic seizure. Fortunately, I was home when he had it and was able to help him and call 911. Unfortunately, witnessing this event affected me tremendously and caused my IBS to come on full-swing. I was so upset that I wasn't sleeping and barely able to eat for weeks.

I have worried about having everything from appendicitis to cancer at one time or another, depending on where my pain is focused at the time. It makes me feel like a hypochondriac, but I don't want to be stupid and ignore symptoms that might be life threatening. It is frustrating to never be sure if it really is just IBS, or if you need to be taking a trip to the ER. I noticed that several people are fearful of their symptoms being something more serious. It’s a scary thing to live with, and as everyone has said, unless you have it, you just can't understand.

Thank you to everyone who has shared your stories. I feel so bad for the people who are suffering far worse than I am and hope they will find relief. I have to say that reading all these stories does make me extremely fearful that my IBS will not get better, but worse, in time. There have been days with my combination of digestion issues and IBS that I will just cry in frustration feeling totally helpless. I can't imagine feeling any more sick than that and being told by doctors that they really can't do anything to help. I pray for all of us that we will get better and learn how to cope with this burden. I am sick and tired of being sick and tired! ‘God grant us the serenity to accept the things we cannot change....’

– Name withheld by request
^{June 24, 2008}

I am going to be 50 years old next week and have had IBS for the last 5 years. I have pretty much given up hope of having any kind of normal life. If I don't have the runs then it is constipation. I have had every test possible and tried every drug on the market. I will get relief for a few weeks and then it starts all over again. I am in danger of losing my job (yet again) because of attendance issues. Sometimes the pain is so bad I just sit and rock and cry. I have tried food diaries, high fiber, low fiber and not eating at all. Nothing seems to work. All the doctors say is that it will not kill me. However that is scant comfort when financially and emotionally it gets worse and worse. My husband is very understanding but even he gets frustrated when I don't know what has triggered the latest attack. At least reading the stories here has let me know I am not alone. I do know this is not in my head. But I certainly hope they find something soon to help with this.

– Name withheld by request
^{June 18, 2008}

Hi , my IBS has been with me since the age of 16, I'm 51 now. I have been to several doctors, had all kinds of tests done, and not one could tell me how to treat it . My Mom also has it and so does my daughter who is 32.

The pain is so severe that I would have to take a pillow with me to keep my neighbors or family from hearing the moaning and from passing out from the pain and hitting the sink or the tile floor! After an hour of that I would be as white as a ghost, my clothes so wet from the sweating, and I was tired and exhausted . I just found out after years that there may be a way for me to eat for my IBS. I am looking for a list of foods that don't trigger IBS.

– Name withheld by request
^{May 26, 2008}

I was diagnosed with IBS 15 years ago. I just couldn't believe that my symptoms weren't something else – I was in so much discomfort. I was frustrated with the doctors just turning a blind eye to what I was feeling. Every few years I convince my family doctor to conduct further tests just to make sure... yup... still IBS. Is IBS a catchall for digestive woes? My brother also suffers from IBS but his symptoms and food triggers are different from mine. He suffers from no bloating, where I always look like I am 6 months pregnant. I noticed that someone put down that they have cut out wheat products. I believe this to be one of my triggers as well. But no doubt about it, my worst trigger is stress. Stress and IBS seem to have the same amount of impact when begging for help: No one understands or respects what it feels like and I have found nothing that can be done to take away the pain of both! I believe I suffered from IBS in my teens. I am frustrated that I have spent 15 years trying to find ways to manage my IBS – I think I have and then the symptoms change and I start fresh. I am still in my 30's and can only hope and pray that I can find a way to manage my symptoms soon or researchers discover why so many of us have to suffer and hide.

– Name withheld by request
^{May 26, 2008}

I was diagnosed with IBS in 2005. I have been very ill ever since then. I have constant flare-ups, and my main symptom is diarrhea. I also have daily bloating. I had an endoscopy, and it was discovered that my stomach is not functioning normally either. I have problems digesting food. Because of the constant problems I have with this, I cannot work. So I am in financial trouble, which adds stress that I shouldn't be in. I keep praying that they will research, and invent a medicine that will take care of this horrible disease. My mom has IBS (called spastic colon in her day) and she was on a medicine that took all of it away, then they took it off the market. I am on medication for my stomach problem, and I am taking a cholesterol medicine to control the diarrhea. My doctors just keep telling I have to "live with it".

– Trish
^{February 22, 2008}

I have had stomach problems ever since I was a little girl. I remember my mom having to give me enemas frequently just to help me go to the bathroom. I was always constipated. Now, I am 32 and still constipated more so than not. I do get diarrhea but usually only for a day. I deal more so with constipation. I have to constantly take a fiber supplement or it will be bad. If I forget, I can be constipated for several days.

I am not sure which foods if any really trigger my symptoms. I guess fatty foods and dairy are suspects in particular. If my stomach hurts it hurts all day and even into the next day… sometimes for 15–20 hours. It is hard to describe the pain to someone who doesn't experience this. It is definitely not a normal upset stomach because I know the difference! I get what I call ‘hard tummy’ where my stomach gets hard as a rock and bloated and it looks as if I am pregnant. My pants are tight and I cannot keep them buttoned up. I just feel huge and uncomfortable. Sometimes I think that the pain would subside if I went to the bathroom, but I can't even do that because of the constipation! It is very embarrassing and annoying. My boyfriend tries to understand but it affects our love life as well... the gassiness and pain and bloating…

I am so happy that I found this site because I feel a little better knowing that I am not alone in what I am feeling.

– Name withheld by request
^{February 18, 2008}

My eyes teared up reading the stories that are so very similar to mine. I am 68 years old and have had IBS since I was about 20 years old. At the time, no one knew what the problem was, I was told by a doctor that he hoped whatever was bothering me would go away. In other words he thought it was all in my head. I can't count the number of embarrassing moments I have had, many similar to those listed and worse.

I do know that stress does have an effect on exacerbating my symptoms as does dairy. For the last five years, my symptoms have grown farther and farther apart, although I still have them every few months... diarrhea and cramping and time after time on the toilet. The thing that has helped me mainly is hypnosis. It has helped me immensely.

I too always know where the nearest toilet is when I go out, and am careful to not eat too much before venturing out shopping or on a trip. Cruises are great because of the prevalence of bathrooms nearby as noted by one of the other submitters.

[Editor's Note: For more information on hypnosis as a treatment for IBS, please visit our Learning Center: Go »]

– Name withheld by request
^{February 15, 2008}

 

I have been reading other peoples stories for years but have never thought to write one myself. Aside from my doctor and my family, no one knows I have IBS.

I am 23 now and have had it since I was 16. I even remember the exact day I got it. It’s such a horrible thing that no one likes to put up with, yet after a while, I think it just becomes part of your life. I can't even remember life without it now, can't remember what it's like to be 'normal'. I look at my friends with all their boy problems, money problems – I listen to them and just think to myself 'I would kill to have their problems over this' How are they not happy ALL the time? I have a few days where I feel great and don't have any symptoms and I am just so content with life no matter what else is going on. I know people say ‘it could be worse’ but that never really helps your situation does it.

I have read many stories with much worse symptoms than mine and I really, really feel for you all. Here I am writing on an IBS forum and I still can't bring myself to write my symptoms – I hate this more than anything. You try not to let it take over, and it doesn't – it just interferes with so much. It makes you a person you don't want to be. I want to move out of home so badly, but cannot afford it on my own. The thought of having a house mate is just not an option for me. What if I need to use the toilet ad they are in the house? What if they have friends over and I need to use the toilet? I read the stories of people who have boyfriends or girlfriends and I think – How did you bring yourself to tell them? How do you even bring it up? I hate telling my doctor about it let alone a guy!

Seems like I am the only person I know who suffers from it which makes it even harder to even think about telling anyone. I don't think people without it could fully understand the effects of it, which is fair enough I guess. Like someone else said here, ‘sometimes I just wish they could spend a couple days in my shoes, just to see what it's like’. I think that all the time but, on the other hand, would never wish this upon anyone.

Sorry this is so long - but once you start writing, you realize just how much there is to say! Well without sounding all sentimental I hope you get through your own battle and come out better for it.

– Name withheld by request
^{April 29, 2008} 

My name is Mary Ann and I have IBS which manifests itself in cramping and loose watery stools brought on by food and stress. I can't go anywhere without an anti-diarrheal as I am terrified that I will get sick and not be able to get home because I don't have loperamide to take. The anti-diarrheal at least allows me to live a somewhat normal life. I just had a bad episode of IBS today so I have resigned myself to a very basic diet for my IBS probably for the rest of my life. Both of my brothers have had ulcerative colitis – both had to have their colons removed. I don't know why these problems have afflicted my family. All I know is that I hope that research will someday bring a cure for bowel disorders. Thanks for listening.

– Mary Ann
^{February 11, 2008}

I was diagnosed with IBS about 3 years ago after being prescribed medicines for GERD, then seeing a GYN and having my ovaries and adhesions removed because of pain in my lower abdomen. The surgery reduced some but not all of the pain. So they settled on IBS as my problem. I tried lots of medicine for it but nothing really worked.

Now I work part time and only in the morning. That way I can go without breakfast, work until 1:00 pm and then go home with no problem. Going out or to a movie is a problem. I know where every bathroom is in every store in our county.   

Home cooking doesn’t seem to bother me as much as eating out. I have made many dietary changes as I found what works best for me. I’ve stopped going to doctors for this. I’ve had so many scans, scopes, scopes, poking and prodding. I’ve just learned to live with it.

– Jan
^{January 16, 2008}

I've been experiencing IBS symptoms since I was in my early 20's and now I am 46. My symptoms are triggered by foods and stress. I've noticed that when I eat fatty foods it takes only 20-30 minutes before I start to experience sharp pains in my stomach, and a sudden urge to use the restroom. Sometimes it is so urgent, I have to actually excuse myself and go to the restroom when eating out. I've found that most meats can trigger a reaction too. However, I noticed that if I consume a glass of red wine before eating a steak dinner, I do not have the symptoms.

Stress is a big issue for me as well. Whenever I have an argument with my husband it can put me into an "IBS Moment" and I have diarrhea for a day or two. I actually left my stressful job as an advertising production manager and am now working in Real Estate. Most mornings I do not eat breakfast, much to the chagrin of my mother and husband. And yes, right before or during my monthly cycle I tend to have "flare-ups" which I conclude to be associated with hormone levels. My doctor gave me a prescription (an anti-spasmodic medicine) which I have to take sub-lingually BEFORE I eat a meal and sometimes I remember and sometimes I don't. Sometimes it just doesn't have any affect at all.

I have learned to live with this illness and have been keeping notes on what my "trigger foods" are. Like someone with allergies, I try to avoid the things I know will "set me off" but sometimes I don't have that opportunity and I have learned to suffer quietly over the years.

– Michelle
^{January 25, 2008}

I am 28 year old female and have had stomach problems ever since I can remember. Even when I was a little kid I remember crying on the toilet because I couldn't go #2. I didn't go to a gastro until I was 23 and worked at my first office job. He said it was IBS and prescribed a drug targeted for IBS with constipation. It seemed to work, however, it made the constipation into full force diarrhea on occasion. Sounds weird, but I would rather have diarrhea then not be able to go. The pain associated with constipation is too much for me to handle.

Stress makes it worse and working in advertising is full of stress. Sometimes I feel so disgusting because I have to literally run to the bathroom sometimes and it is not pretty. I know where every bathroom is in every grocery store, mall, restaurant etc. Like a similar story above, I almost did not take my current job because it is a small agency and there is only one bathroom right out in the open. I know that everyone probably knows I have a problem, which takes away from my professionalism and bothers me.

I love to go out with my friends and have a few drinks but I have realized it really sets off my symptoms and I am a mess for at least 2 days after I go out. I am starting to realize it might not be worth it, although I will miss my glasses of wine.

I have decided to try another gastro doctor and have an appointment this week. I am hoping to get some tests done and find out that it’s anything other than IBS, as I have never had an endoscopy.

I have lost about 10 pounds recently because who wants to eat when all you feel afterwards is bloated, gassy and tired. So then I have to deal with the comments about how I don’t eat because I have some kind of eating disorder which only adds to the stress.

Good luck to all of you and hang in there.

– Name withheld by request
^{January 20, 2008}

 

I am 30 years old, and I have suffered from IBS for as long as I can remember. When I was younger, even in college, it was manageable. It did not control my life. I would get IBS attacks but I would tell my close friends and they had my back.

Now that I am older, the IBS has gotten to the point where it controls me. I travel as little as possible. I turn down invitations for a social life because I don't want to get sick. Of course, worrying about getting sick usually makes me get sick. If I could only convince my mind to help my body! But generally, I get diarrhea two or three times a day, regardless of what I eat.

However, I have also learned that I can't NOT eat. I get weak and light-headed. My plans to just not eat all day so I can have a good time backfired.

Most people think I am exaggerating and don't get me. They actually get mad at me when I tell them my IBS is the reason that I can't go out. I have an apartment with 2 bathrooms even though I live alone because it relaxes me to know that one is always open.

It has also interfered with my relationship with men, needless to say. I always say I wish I could find a man with IBS and we could spend the rest of our days being sick together!

Hang in there, everyone, and don't be afraid to tell people about your IBS. Even if they don't understand, they usually won't make fun of you.

– AMS
^{June 10, 2008}

After reading through some of the stories, I am realizing I guess my doctor is right with IBS. I just have so much pain that I keep wanting them to find something that can be curable. My doctor wants me to have another test, a barium swallow, to make sure my stomach is not herniated.

I used to have severe constipation, probably was lucky if I could go to the bathroom once a week. I started on the tegaserod and when it went off the market I started on lubiprostone. I guess you are supposed to take it twice a day, but right now I take it only once a day. I have to have the right time to try to take it in the morning so it won't interfere with work.

Since taking the lubiprostone, I can have a bowel movement every day. My problem is the swelling and upper abdominal pain and distention. It seems that everyone talks about lower pain... my is upper... so is that IBS? [Editor’s Note: The pain or discomfort of IBS can occur anywhere in the abdomen.]

I am so tired of the pain and not wanting to go anywhere because of bloating and soreness. I can hardly stand to touch my upper right abdominal area. It is extremely tender. The pain never goes away.

Finding out that there is really no cure and the stories that everyone goes through has not helped me... it only makes me feel it is hopeless.

– Name withheld by request
^{May 19, 2008}

 

[Editor’s Note: There are virtually no diseases that have a ‘cure.’ The only drug that cures a condition is an antibiotic for an infection (and even this is being challenged by resistant strains of bacteria). Fortunately, many diseases are short term and resolve on their own like the common cold or the flu. But in chronic conditions, symptoms persist. There are many different chronic conditions that between them affect all systems of the body. Treatments, whether drug or otherwise, are aimed at reducing symptoms. There are a lot of contributing factors to IBS. It takes time and research by each individual to figure out what does and does not help, hurt, and work best for their IBS. It’s not hopeless, but help is needed. Remember, you can call IFFGD toll-free (in the U.S.) at 1-888-964-2001 (outside the U.S. 1-414-964-1799) and talk to any of the caring people here who will try to offer useful guidance.]

Thanks to all of you who shared your stories on IBS; what an awful disorder it is. I have had it all my life and many times would rather not eat. It impacts my sleep and energy level and just makes me feel less happy. I do have some good days and wish there were more of them. I hope everyone can find someone in their lives for support because we need that. It seems prayer, deep breathing and hypnosis are helpful to me and I will continue to do those. I pray that everyone can stay strong.

– Stu
^{April 26, 2008}

I actually started crying when I was reading these stories. I've been so down lately because of what's been happening with my IBS, and it helps so much, so know it isn't just me.

I've had IBS since I was 10, around when my parents divorced. I'm 19 now, and things are so much worse than they've ever been. It started becoming chronic pain, frequent and absolutely debilitating, in the summer between my freshman and senior year in high school. I went on a school trip to Austria, and among all the stress and rush of changing planes, I got horribly ill. I was stuck in the seat by the window because my two friends were sleeping on their tray tables, and we couldn't land when we were supposed to because of the weather, and I didn't end up making it to the bathroom. So here I was, with my entire freshman class, crying and trying not to let on what had happened, with chaperones I didn't know who were, at best, completely apathetic to something I was too embarrassed to tell them about. The trip was a nightmare. I didn't know the language, at all, was yelled at several times by the people who cleaned the bathrooms from being in there so much and not knowing that I was supposed to tip them, having to randomly leave for another city at the drop of a hat for a few hour ride in a bus with no bathrooms- all while trying to hide it from everyone, even my mom. She'd really spent a lot on the trip, we aren't exactly rich, and I didn't want her to know what a nightmare it was turning out to be. It resulted in her not talking to me for three days, not answering my phone calls or my emails, because I confided to my best friend how horrible it was, how much I wanted to come home, and didn't specify it was because I was sick.

I ended up losing 30 pounds in two and half weeks. I literally stopped eating, just drank tea and the occasional apple. It was like a walking nightmare, not knowing here any bathrooms were, not being able to read any of the signs, lying to everyone when I was in so much pain that I just wanted to curl up and cry.

I got home and progressively got worse. Being in social situations was horrible. Even thinking about going somewhere without a bathroom was horrible. It still is. I've tried biofeedback, getting rid of dairy and wheat, exercising, anti-anxiety medications of every color. And now, I'm just thinking maybe I'll never get better. I want to go and thrash around in my favorite band's mosh pit, be able to stand out back by the bus afterwards for hours and wait just on the chance of getting an autograph. I want to go visit my girlfriend. I want to be the spontaneous person I am, I want to drive across the country on a whim, just because I want to. But I can't. And having to leave college, having to have my mom come pick me up because I just couldn't do it, couldn't take it anymore, having to admit that to myself and sit at home with nothing to do and nowhere to go. It's horrible.

It's true. Every story I read, the bottom line is – no one understands. Not unless you have it. We're not faking it. We can't just 'get over it' or 'psych ourselves down'. This is a horrible illness, and it's making me shake just writing this down. When I never tell anybody, I hate people worrying about me, I hate pity and sympathy. I just want to get better.

Thanks to everyone who wrote their story, and gave me the courage to write mine.

– Name withheld by request
^{February 20, 2008}

This is the first time I have ever gotten to read stories about IBS, and I can say that the symptoms and embarrassment and feelings affecting self-esteem sound as if I have already written this.                             

I am a 54 year old male and I have had this condition for my entire life. As a kid I was constantly getting sick in school, had to go to the school nurse and my mother would pick me up and take me home. Back then few understood IBS so I was told I just had a ‘nervous stomach.’ I had all kinds of tests and x-rays and the doctors would tell my parents that they could find nothing wrong with me. Ironically, my Mother was an R.N. working in a doctor's office. That didn't seem to matter because my parents said I should just tough it out. There was not much sympathy as a kid. I even had one school nurse tell me I would ‘amount to nothing’ because of my problems.

When I graduated from high school the thought of going away to college was terrifying. Luckily I had wanted to study Engineering and the area I live in (S.E. WI.) had one of the best engineering schools in the country located in Milwaukee. So I was able to live at home and drive back and forth to school each day, but the stress of college was no help to my IBS. I missed a lot of classes and because of other circumstances I was never able to finish college. I had been working since I turned 16 and was able to get full time employment at a job. Because of the number of days I missed work I was never promoted. As an adult I have used so many excuses . . . any kind of stress will trigger my IBS. I've also learned which foods to stay away from. I've had to do a lot of sacrificing because of my IBS.                      

I was finally officially diagnosed with IBS about 11 years ago. This condition has caused me to spend most of my adult life alone because dating was just too stressful. Still, I met someone who I thought was sympathetic and understanding about my IBS. Since she left me five years ago, (I constantly heard, ‘but you look fine, this must be all in your head’), I have gotten lonelier and lonelier, but my IBS doesn't flare as much. I consider this a lousy trade off.

I have found that days when I eat nothing I feel better than days when I do. I feel like if I never had to eat again I would be the happiest person in the world. I used to have a lot of dreams and goals but now I just try to live day to day. I never go out to dinner or see a movie any more. I just don't like doing those types of things alone, even though I could just get up and walk out of a movie if an attack came on and it would not affect anyone. I am like many of you out there. I have been to parties, weddings, sporting events and picnics and I always find a way to avoid food.

Thank you to all of you out there to give me this chance to express some of my frustration in dealing with IBS.     

– David Ugloi
^{February 2, 2008}

I'm a 52 year old woman and have been dealing with IBS for more than a decade now. It seemed to begin in earnest after the death of my Dad and sister all in one year. I have dealt with depression and anxiety ever since and have been using prescribed drugs to help with those symptoms.

I couldn't help but smile to myself, however, as I read several of the stories shared here. Not because I found their situations amusing but because they sound all too familiar! I don't travel any more than I absolutely have to. I missed my father-in-law's funeral out of state because of symptoms (couldn't make the trip). I've had too many flare-ups while on the road and it's a very anxious situation for me.

As a matter of fact, anxiety is an unfortunate side-effect of my IBS and the more anxious I become, the more frequent the flare-ups become, and vice-versa. It has made me fearful at times to leave the house, but I too know where all the bathrooms are in town. I shop in one particular grocery store mostly because I know they have an adequate restroom set-up. I don't travel out of town very often but when I do I usually have to take an anti-anxiety drug to help me get where I need to go.

Additionally, I do use loperamide during a flare-up, which most often will quiet things down in 30 minutes or so, but will also often constipate me. So it's a temporary fix, though I appreciate that fix when I'm working and can't run home every time the painful cramps and frequency kick in.

I struggle with fears with regard to it all. I wonder if my fears are irrational. Some are too embarrassing to share, but after reading some of the shared stories, it is nice to know that I'm not alone. I have had to tell several folks that I work with about my condition and most of the time people seem understanding, as is my family for which I am very thankful. Someday I hope there will be a true cure for this condition because it can ruin a lot of activities in one's life. Thanks to all of you for sharing!

– Andi
^{January 25, 2008}

I have suffered with IBS for well over 20 years.  I have had one doctor after another tell me to eliminate stress, take loperamide and learn to live with it.  I have been afraid my whole life to go to the mall or anywhere I did not know where the ladies room was because I only have seconds to get there when I need it.  My children and husband hate going anywhere with me because I can't leave the restroom.  I have spent many hours in the restroom while they shopped unable to walk with them for even 5 minutes. 

I have cried and I have hid in the house eating food I knew would make it worse and gaining weight because I feel so hopeless.  After 20 years of this it feels like there is no hope and I will never be able to leave the house without fear and enjoy my family.  It is my worst fear.  Yet I have to live with it everyday and no one understands how alone it feels.  My husband tells me he understands yet there is always the smart remark when I have to use the restroom for the third time or I am too tired from the day and the daily pain I feel to make love at night.   I know he doesn't know what I feel and it feels like no one does.  I sit alone in this corner and hate my body and hate my life and pray to God to take me.   I only hope one day I can overcome this somehow and learn to breathe again and learn to live without fear.  I dream of that  – just the simple hope of living without fear.  Maybe one day. 

– Name withheld by request
^{January 18, 2008}

 

The very first day that I felt the symptoms, I was in class and my stomach felt very weird. Everyone in class was talking and laughing and just having a good time. I felt some gas traveling to my lower intestines and I knew I had to let it go, but I tried to hold it with all my might. I tried and I tried until I couldn't hold so I let go little by little and everyone in class started coughing and covering their nose. I felt so embarrassed that I put my head down the whole day.

My life literally stinks now that I have IBS. Before I had IBS, I had a fun and amazing life with many friends and also my girlfriend. After I was diagnosed, I began to find out that my friends at high school started to avoid me. Not to mention my girlfriend too. I knew at that time, my life and my reputation crumbled dramatically. I am seventeen years old now but I was diagnosed three years ago. I quickly became depressed and stressed out to the max because I thought God did this to me, but I came to my senses soon after. I'm glad that I am not alone in this nightmare.

– Name withheld by request
^{February 15, 2008}

I'm only 16 and I'm suffering from IBS. It's terrible. It keeps me from going to school because I'm in so much pain. I hurry through tests because my stomach makes such loud noises, it's really embarrassing. Sadly, I even have to sit in classes with my elbow pushed into my stomach to keep it from making noises. It barely helps - I have gas all throughout the day. It keeps me from going places I want to go and all I worry about now is my stomach making sounds, or being in pain every morning. It's annoying.

– Name withheld
^{February 11, 2008}

I am a 38 year old woman, working in the big corporate world. I have been suffering (I use this term mildly) for over two years with social anxiety and now IBS. I am seriously considering quitting my job as the sudden spasms accompanied by severe pain are starting to impinge on my performance in the workplace. I cancel client lunches, avoid promotions, and travel as little as possible. But how much longer will the Execs put up with this?

I give many thanks to the Gastro specialist who spent over an hour with me in his office today, educating me on my condition that now has a name. It is specialists like him that give people like me hope.

– Name withheld by request
^{June 5, 2008}

Hello I am 20 years old and suffering with IBS. It's very uncomfortable. I travel a lot with my job - about 300 miles every other day, I travel with two other people in the same car. It’s really embarrassing to stop every 30 or 40 minutes to use the restroom. I have recently been looking for a new job, because I have no control over when I have to go to the restroom. It's really sad to me because I love my career and I enjoy the people I work with. I just can't take it anymore.

– Name withheld by request
^{January 27, 2008}

I was diagnosed with IBS about 7 years ago, and was put on an antispasmodic. I watch my diet arefully which helps. I suffer from bloating, tightness, constipation very bad just before and during the 2nd through 5th days of my period.

I am surprised to know so many of us are suffering from IBS, I really thought it was something rare. My husband wanted to know what I will do when I'm on my period and have to work. He doesn't know the severity of the issue, but I will introduce him to this website. Thanks for your support and hope that my story can encourage better health and spirit for you all.

– Gwen
^{May 16, 2008}

Not so courageous – that's me. I suffer from IBS, probably hypochondria to some extent, anxiety and generally over-exaggerated body sensations in general. I am a sensitive person emotionally and my body is no exception. I am being brutally honest here. I am a good mother of two lovely daughters but I feel unable to work – and one is headed to college soon and I would really like to work then. When I try, the IBS gets worse due to anxious feelings and is complicated by severe symptoms typical of it, plus embarrassing stomach noises and a feeling that I will have sudden – well, I can't even talk about it. Fear makes it worse and my social life is affected by it. I avoid being with people for too long due to symptoms; sitting in our daughter's musical concerts are the worst. But psychotherapy has helped me to some extent as my problems extend beyond just IBS to a social phobia at this point. If you feel this way too, please know you are not alone and that excessive anxiety can worsen the symptoms. I hope to work someday. I wish for all of you freedom from pain and suffering as I know you would for me. Thanks for listening.

– Name withheld by request
^{May 5, 2008} 

[Editor’s note: Living with IBS often requires sufferers to be active researchers, always looking for what does and does not work best, what helps and what hurts. It takes time and focus to sort this all out. These are efforts to be recognized and admired, for the obstacles faced, and the courage it takes to face them.]

I am a 25 year old woman who on the outside seems healthy and full of life. I have been struggling with severe IBS with constipation for about 7 years now. I have had barium x-rays, sigmoidoscopies, and so many medications that I lost track. Still, I’ve found no real answers or treatments that seem to work. I have tried the no eating and all fluid diet. Still the pain and nausea are there no matter what I do or eat. I feel so bloated and full all the time. I am now diagnosed with anxiety and depression. Living with all my symptoms I believe I am both of these. I hardly leave the house. I am lucky to have an understanding Doctor who won't give up. I feel like a guinea pig trying everything I can. Coming across this web site has been a blessing to know I am not alone. I pray for all who struggle with this. Just try to believe there will be a brighter future.

– Rachel
^{March 27, 2008}

I was recently told I had IBS. I am only 24 and thought that was too young, but my doctor says this is usually when it occurs. I was told that stress and what I eat can cause my symptoms to occur. I hate going out to eat and if I do I am always looking for a bathroom so I know where to go. I was put on hyoscyamine, an antispasmodic medicine. So far it has helped a little, but the symptoms are still there. For the first time in about 3 years I made it through a Holiday dinner without a trip to the bathroom. I still have the worst stomach cramps and feel like these symptoms are controlling my life. I am glad I found this site and hope that with time everything will get better.

– Name withheld by request
^{March 24, 2008}

 

I am 40 and have suffered with IBS since I was a pre-teen. It has been better and gotten worse at times. After the birth of my sons, I had more episodes. It is very tied to my hormones and going on a birth control pill that limits my menstrual cycle helped a lot. I am currently having many episodes due to the removal of my gall bladder. I have a job that I work at in different towns.

The best advice I can give is know your triggers like what you can eat and stick to it when you have to go out (just like a diabetic), surround yourself with supportive and understanding people that have your best interest in mind, and don't be afraid to use a public restroom. I am a "girly girl" and this took me years to get over, but I won't compromise my life or lifestyle over what other people may say about a physical condition. They wouldn't laugh or make fun of someone with cancer, epilepsy or any other aliment they can't control. So live your life, research your disorder and be strong.

– Name withheld by request
^{June 11, 2008}

I am 37 years old and I was diagnosed with IBS when I was 19. It came on after several bad experiences in my life and not understanding how to handle my emotions. I notice it comes and goes for me with life changing events (i.e., death of a parent, death of a friend, divorce, career problems....).

I have to take anti-anxiety medication just to function 'normally' (work, kids, ball games, stuff I just can’t miss out on). Without my medication I have agoraphobic tendencies and shut everyone out. I also take an anti-depressant that has a side effect of constipation, which is my primary reason for taking it. It helps me feel more in control. I have struggled with justifying taking my medications, but I know in my heart I would miss out on so much, just because I would always be worried about 'what if?...'.

It is truly a dreadful disorder but I do have something optimistic to point out. When I try to be calm or take time to relax, manage stress well and stay super busy...I almost always forget about it. I sometimes even forget to take my meds; that's when I know I am doing ok mentally with it.

I have done so much research and I am such a strong-minded person, I will go through my life not letting this get the best of me. Thank you all for sharing your stories. There is nothing worse than thinking no one knows how you feel.

– Name withheld by request
^{May 12, 2008}

I've found everyone's stories really helpful and can relate so much to them – I often feel quite alone! I was diagnosed with IBS in 1993 and today, at 40, continue to live with the symptoms and periods of debilitating 'attacks.' I gave up on medical intervention shortly after my official diagnosis as I found it quite traumatic dealing with tests and unsympathetic doctors. I try to manage my symptoms as best I can.

Like others, my symptoms are more acute just before and during my period. Diet-wise I find it's helpful to try to avoid wheat and don't touch dairy (am lactose intolerant) and am also starting to think gluten can be a trigger. Overeating is the biggest no-no. Like others I've also been quite slim/thin all my life because of my 'fear' of food and have often been plagued by rumors/gossip about eating disorders or else tolerated well meaning people complimenting me on my figure whilst I jealously watch them tucking into a delicious meal!

As I have aged I've found bloating/flatulence is becoming more troublesome. Stress/anxiety are also major triggers for 'attacks' for me. Regular gentle exercise really helps me and so does meditation and deep breathing. When I'm physically fit I'm much better but I'm scared of too much exercise as it causes attacks.

During an attack, which usually occurs around 2 or 3 am and lasts until dawn, I will take a hot shower or bath, then lie with a hot water bottle and take tiny sips of lukewarm water. I also try to mentally focus on relaxing into the pain rather than flinching from it and repeat to myself 'the pain will pass' 'it'll be ok' and other positive comforting things. Peppermint oil seems to help me and gentle painkillers are also helpful. The aftermath of serious bouts feels to me like recovering from being kicked in the stomach by horse! I disguise my illness at work (and frequent bathroom usage) but can't avoid taking quite a few sick days. I'm optimistic that one day IBS will be curable and wish everyone the best in learning to manage their individual symptoms and the strength to endure them.

– Sue
^{May 4, 2008} 

I was diagnosed as having IBS 3 years ago. Living in Japan it is very hard as I don't understand the language that well and struggle with doctors who don't really seem to care. It's good to get on a site and understand that I'm not alone. I guess we can all see that feeling alone is the hardest part to deal with. People invite me out and I am afraid to leave the house these days. I’ve even taken to carrying a bag of spare clothes and toilet paper just in case. I’ve never needed it yet but I guess the fear is what stops me from truly living life – when you go to the toilet 7 times a day and your friends lack understanding, when you have to get off a train halfway to your destination to find a bathroom, when you worry maybe the doctors were wrong and you should go back in the hope that it is something with an easy cure. To me no one seems to understand these problems and although I feel for everyone on here I am glad that I am not alone. Be sure to remember that neither are you.

– Name withheld by request
^{April 16, 2008}

I am 47 years old and probably started having symptoms while in high school. From time to time I had ‘upset stomach’ episodes but they were irregular and I didn't really pay attention to them. One day, I went out to dinner with my husband and friends at a restaurant and had my first ‘public’ episode of IBS. It was so severe I was bleeding and it frightened me so much I went to the ER. Doctors couldn't figure out what was going on but I followed up with my own doctor who ordered a colonoscopy. Results: all clear. Diagnosis was ‘probable IBS’. I was told to increase my fiber and reduce stress.

I did what I could but from then on I had episodes and could not pin down the causes. Now, about 7 years later, I am still struggling to get this under control. People tell me I'm just stressed or depressed. It's a bit frustrating but at least there is some pattern to it. I nearly always have episodes in the morning after I get up and they run their course in about 3 or 3.5 hours. I've determined cabbage and wheat are major triggers. I'm not sure about dairy, I have not seen a clear pattern with it. I don't get a LOT of pain, just gas discomfort at times. Until I took wheat out of my diet stools were yellow tinged with bright yellow blotting onto tissue paper. Now they are normal color. I still have a way to go to get my IBS under control, but it helps to know I'm not alone. I get episodes about twice a week now except when I do something foolish like eat what's served at a wedding - then I pay for it for 4 mornings. I eat small frequent meals without wheat - gluten free products help. But its still not quite under control, but my doctor doesn't want me on meds and really, neither do I if I can help it - side effects, you know. Well, thanks for letting me tell my story. It really makes a difference to know, again, I am not alone with this in my life.

– Name withheld by request
^{April 9, 2008}

 

 

 

I am 32 yrs. old and have been living with IBS since I was in high school. I did not know I had IBS until I was 23. Every time I ate, my stomach would just balloon and my clothes fit extremely tight. I worked in an office environment where if I had to use the bathroom I would have to hold it. That would just worsen my situation because then I would be full of gas and sometimes my stomach would make huge noises. It was horrible!

Once I was diagnosed I learned to deal with my IBS. Now my IBS triggers when I am in stressful situations. For example, when I was in college and I had an exam the next day I would try not to eat so my stomach would not act up, and during class I would snack on crackers so my stomach would not growl. IBS takes over your life. It is such a frustrating illness.

Knowing where a bathroom is located is key to me. I will be starting a new job soon and I almost did not take it because it only has two bathroom stalls. I also almost did not take the job because the office is so quiet that I would not want my stomach to act up and my co-workers hear my insides. I just want to say to everyone with the problem that it is good that we are not alone. 

– Name withheld by request
^{January 2, 2008} 

 

For about 2 years now, I have suspected that I have IBS. I have not seen a doctor. It's too humiliating. After reading the stories others here have shared, I think my suspicions may be confirmed. I'm at the end of my rope. I am 47 years old and enjoy an active life . . . or want to but can't because of IBS. I've changed eating habits, tried to pinpoint what foods cause my flareups and nothing helps. I'm about ready to stop eating altogether. I'm tired of the embarassment, the rush to the bathroom only to make it part of the time. I'm supposed to take a vacation come December and I'm thinking of how I'm going to do this. I guess I'll pack an antidiarrheal to take throughout the day. There are no public laundry facilities and I'm not going to take any chances. My intestines are always sore and I'm always tired. I salute those here who have learned to live with this dreadful beast. I wish I had your courage.

– Name withheld by request
^{August 18, 2007}

 

I have struggled with constipation and occasional diarrhea my whole life. When I was little I always struggled but my mother didn't allow ‘potty discussions’ so I didn't talk about it. I've always had terrible gas. When I went to slumber parties as a kid, I'd wake up to everyone making fun of me for my gas all night long. It was humiliating. I told my mother and she said that my story was ‘disgusting’ and to never tell her that kind of thing again! I needed help!

It wasn't until I was in college and had roommates that I realized how abnormal my bowel movements and gas really was. We'd go out to eat a meal and a while later they were in the bathroom. I didn't have to have a bowel movement. I could go weeks without one. When I FINALLY went to the bathroom hardly anything would come out. There would always be stuff right there but it wouldn't come out. And, actually, soft stools were more problematic than hard ones. It was like paste and I couldn't ever feel ‘clean’.

I wake up in the morning with a flat stomach but as soon as I take a bite of ANY sort of food my stomach bloats out like I'm pregnant. I often have severe abdominal cramps. I have gas CONSTANTLY.

Nothing has helped so far. I have to take more than 20 laxatives every two weeks or so just to ‘cleanse’ my system because I never seem to evacuate my bowels completely. No one has helped me. I still haven't told my husband because I feel so disgusting.

Often I have to put on medical gloves and go in there to help get stuff out. I feel so gross just writing this! But what can I do? It can't just stay in there. I'm miserable.

I don't feel good. I'm ashamed. I'm so bloated and uncomfortable. I pray that this issue will be resolved and taken seriously in the medical community. My quality of life has suffered. I can't imagine what it will be like for me when I'm an old lady!

– Name withheld by request
^{August 31, 2008}

I have been dealing with IBS for many years. I don't travel any more because of the IBS and when I do go somewhere I need to know where the bathrooms are so I usually don't venture very far from home.

The hardest part for me is the anxiety it causes and the difficulty in getting people to understand the impact it has on my life. I think a lot of people don't get the fact that it's a serious hindrance to a persons' life. I missed both of my in-law's funerals, who live a good distance away, because of my fear of traveling. That doesn't go over very well with most people and in many ways I can see their point. But when I'm on the road and what I call a "gut attack" takes place, I usually have to go several times in a short period of time. Stopping once and then having to wait for the next rest area which may 40 miles up the road just isn't an option. The cramps are usually too severe and the need even greater. I also deal with an anxiety/panic thing when these attacks occur on the road or when I'm away from home. For the most part, people are pretty understanding, but it is hurtful when someone just doesn't "get it" and judges me for it.

– Andi
^{July 22, 2008}

I am so glad that I came across this website and found so many other young people suffering from IBS as well, because I thought I was the only one! I am only 21 years old and have suffered since I was 15 or 16 years old. My junior year of high school, I missed 28 days of class due to intense abdominal pain, mixed with diarrhea or constipation. It just came right out of the blue and has persisted up until now, and it is getting worse.

I have missed out on so many events as well as important things due to the way I feel. I've had every diagnostic test in the book because no one could find anything really ‘wrong’ with me... colonoscopies, CAT scans, MRIs, upper endoscopes...you name the test, I've had it, and I'm so young. I've been given so many prescription meds I could open up my own pharmacy, yet none of them ever work!

The worst part is being told that ‘everything is in my head.’ People think I'm crazy because medical tests show nothing. My friends are getting irritated because I always say no when asked to go out, or sometimes when I'm out, I have to go home because I don't feel good. It's the most terrible thing ever, and I have missed out on so much because of it. The worst part is that none of my friends or family understand because they don't know what it's like to live like this. I hope that something can be done about this disorder because it has really prevented me from doing a lot of things, going a lot of places, and more. I am glad that there are other people out there who share my story and can relate! 

– Natalie
^{June 2, 2008}

I was originally diagnosed with IBS about 15 years ago but I believe it has been with me all my life. From as far back as I can remember I have suffered from stomach problems. I am also lactose intolerant, which adds another factor to the drama. I have tried different prescription drugs and have changed my diet many times over the years but nothing seems to really work effectively. I lost about 75 pounds in a year and a half because I decided the best way to treat my symptoms was by not eating. My family thought I was on drugs and tried to have an intervention until I fully explained to them my life on a daily basis. Bloating, cramping, diarrhea, constipation, spasms so bad I cannot stand up… I had an episode so bad last year I had to go to the emergency room. My whole life revolves around my IBS. I am sitting here now writing this story and I want to cry because my stomach is hurting really bad and there is nothing I can do about it. Depressed does not even begin to cover my feelings right now.

– Keisha
^{May 21, 2008}

I never realized how many people suffer from IBS, and how it affects everyone in different ways. I am an IBS sufferer and I am finding it hard to cope with it at the moment, but having just read your stories I feel I'm not along in this IBS world. Apart from the pain and diarrhea which I suffer from I am also starting to get anxiety and depression. Until I came on this site I never realized that this can be part of IBS as well. Family and friends never seem to realize how much this is affecting me and they say, pull yourself together, you'll be ok in a few days, which is not what I want to hear. I would like to thank all you sufferers for putting your stories on here as I feel this has helped me today and I'm not alone. Here's to the future!

– Name withheld by request
^{May 4, 2008} 

I was diagnosed with IBS about two years ago. I have tried numerous types of medication from antispasmodics to steroids. . I'm on a constant prescription for percocet (oxycodone and acetaminophen) because the pain I experience is so bad. I am in and out of doctors' offices and hospitals trying to search for new alternative treatments but not having any luck. I've been told that it 'Was all in my head' or if I 'Just didn't think about it that it would go away.'

You can’t explain IBS unless you have it yourself. I have some advice to give people reading my story... Don't worry what anyone else thinks and/or says.. Best of wishes to all!

– Bobby
^{April 27, 2008}

[Editor's Note: Narcotics, such as oxycodone, should not be used to treat IBS, though this may at times be done. We are learning that under some circumstances, the use of narcotics can actually cause pain. Narcotics also cause changes in bowel function, which may worsen the other symptoms of IBS. It is advisable that narcotics users work with their physicians to taper off of the narcotics before long-term damage is done. Find out more on this topic.  Go »]

I was just reading all of the stories people have written. What a relief to know there are others out there that understand what I go through. I’m 31 and have had problems with my stomach since I was 14. I have been to numerous doctors and specialists and got no answers until recently.  

When my problems began I was told I would need to have my appendix taken out. Luckily my dad took me home and told the doctor that would not be happening at this time and the next day I felt better. So from there it was lots of speculation by doctors I had seen until about 3 years ago, when I met my current doctor. He diagnosed IBS and his nurse also has IBS, so she is someone I can talk to and trust. What a relief this has been.

I have been coping, but lately have found that my boss and family members are having a hard time understanding what I am going through. They like to tell me that it’s ‘all in my head,’ which does anger me. I would never wish IBS on anybody, but would like for them to step into my shoes for one day and then maybe they would understand what I go through. I have now chosen to go to a psychologist and to a nutritionist. At this point I am up for what ever it takes to cope and deal with my problem.

– Name withheld by request
^{April 16, 2008}

I'm 18 and I'm a male. I'm about to head off to college, and honestly, I'm scared sh*tless. I haven't told my friends about my IBS, because I know they won't understand. I'm nervous about going to college, because I know most people just eat junk food and drink. I am going to try to get medication and see a doctor before I leave for college. I don't have a bad case of IBS, but I always have to watch what I eat and keep an eye on the closest bathroom.

– Name withheld by request
^{April 24, 2008}

I've had IBS for few years now and I'll be 19 this month. At first I didn’t know if my stomach problems were normal or not, but after how consistent it was I knew something was off. After I eat I have to go to the bathroom and if I don’t it can get painful. I would be sitting in class and my stomach would hurt and make noises, which is embarrassing when you are in a quiet room with lots of people around.

I finally went to the doctor who diagnosed IBS based on my symptoms. He prescribed a medication, which doesn’t seem to fully work. My boyfriend knows about it and sometimes gets mad when he wants to hang out with friends and I don’t because my stomach’s bothering me. I wish he understood what it’s really like. I even didn’t want to go back to school after I graduated from high school because of my IBS. But I decided that IBS wasn’t going to stop me from having a future. So I just started school and I’m going to try to get through it day by day.

– April
^{April 17, 2008}

I am so happy to have come across all of these people who decided to share their stories. I have had IBS since I was in 7th or 8th grade and now I am going into my third year of college. It has been and will continue to be quite a ride to live with these symptoms and it can get very lonely. I can not have gluten or dairy, don't digest meats well, can't drink alcohol and whenever that comes up with people (for example going out for lunch or dinner or getting a drink on my 21st birthday) I can tell that everyone looks at me and thinks of me very differently. And it is just like everyone has been saying; people think it is all in my head and I am dramatizing it. My friend's brother told me that it was ‘all in my head’ and I felt like I had some mental problem on top of that! But I know I don't and what we all have is so difficult to live with.

Someone said something about being afraid to tell a boyfriend I think and I totally get that! For me, it is embarrassing to even think about telling a guy that I have IBS when he asks me out for dinner and I can not go. It sounds like the biggest turn off. It can be for me anyway a very lonely and painful experience that seems to have no end. Although I am sorry that all of us have to deal with this, I am happy that there is a place where I can feel like I am not the only one.

– Katie
^{April 8, 2008}

I have suffered from constipation, bloating and gas for about 20 yrs. It started in college when I was under a considerable amount of stress and subsided when I graduated. It resurfaced in a teaching position a year or two later. The teaching duties were stressful enough but dealing with the constant bloating/embarrassment was unbearable. In the end I left the profession but the stress of dealing with the job and my IBS symptoms led me to develop major depression

For the last 12 yrs I've been in a job as a store manager which is challenging, but not as overwhelming as teaching. I still have bloating every day but it's more manageable because of things that I'm doing to take care of myself. I changed my diet, exercise regularly, and worked out a bowel management program to help control my bowel movements.

I just started seeing a nutritionist and she has been very helpful with suggestions since she has struggled with IBS in the past. I'm concerned about always cutting out otherwise healthy foods which aggravate my IBS symptoms and she is helping me avoid that. When I'm done eating I spend time 10 min meditating at the table repeating two affirmations: 'I have perfect digestion' and 'I rest after eating'. Occasionally I need lubiprostone or a stool softener or an enema but I would rather rely on fiber and water doing its job than to always rely on those stronger measures.

Thank you to everyone who posted stories like this one on the IFFGD websites; it helps me to not feel so alone with this chronic health issue. My hope for all of us is strength, perseverance, stress relief and understanding friends/coworkers. Be well!

– Name withheld by request
^{August 2, 2008}

I’ve suffered with IBS symptoms ever since I can remember. First mistake: I did not know it was a medical problem and I ignored it. As a child, I thought it was embarrassing to mention something like that to anyone and to be honest I still do, which makes me feel bad every time I get the pain and need to visit the bathroom. That stresses me even more and makes the symptoms stronger and more painful. I have tried every kind of treatment. The problem remains. I now understand that no doctor or treatment will cure me. So I fight this thing by myself.

These are some of the things I do to face IBS: Every day in the gym no matter how tired I am. At first I had problems in the gym because of the IBS but I did not quit and now I enjoy that time very much. I avoid food that I have found makes my IBS worse. I try not to panic every time the IBS hits. This is very important, but it is hard too. Wherever I am I visit the bathroom as many times as I need and I don’t care about what others say. It was that or staying home for the rest of my life. I picked the first one! I talk about my problem to people I trust. It makes me feel better and I also try to use humor. Most importantly I never accept defeat. In my case at some point I felt that whatever I do I’ll never be able to live a normal life because of this syndrome. That is the worst thing that this disease can do. So my advice is never quit, do things that make you happy, and feel good about your selves.

– Name withheld by request
^{July 9, 2008}

My bout with IBS started about seven years ago. I got really sick (was in bed for three weeks) and was prescribed a number of antibiotics. Soon after that the IBS started. On a bad day I am in the bathroom 6-8 times. I went to various doctors, had numerous test and everything and everyone said I was just fine. There was no way everything was fine. The worst was having accidents in public, especially at dinner parties. To have to suddenly leave because I had an accident was really embarrassing. Having it for seven years, I have leaned some ‘tricks of the trade’ if you will. I am not a doctor so please consult yours if you have any questions. Hopefully some of you will find this helpful.

To describe my IBS, my symptoms include frequent diarrhea, cramping, occasional bloating, in extreme cases, mild dehydration.

Over the years I have learned to live with my biological misfortune (I also have Cerebral Palsy) and here is how:

1. I always pack a set of clothing in my trunk. I try and have a black pair of pants and a pair of khakis. (Most commonly what I wear so if I have to change most people will not notice.)

2. For the diarrhea I take an antidiarrheal plus an antigas OTC. Takes care of the diarrhea and bloating for about four-seven days. I can tell by my bowel movements when it's time to take more.

3. Periodically I will stop taking any medicine for a few days to see how my system is doing. There have been a few times where I can go three to four months without needed anything. As soon as the symptoms come back, I continue taking the above regimen.

4. I have found that drinking soda prolonged the worst times and greatly increased my discomfort.

As you probably know, you are not alone. I know how lonely this can feel. My only advice is, find out what works for you and fight it head on! IBS is only disabling if you let it be.

Hopefully my experiences will help someone. I know how it feels to be searching for help and feel like there is nothing out there.

Good Luck and keep pressing on!

– Name withheld by request
^{July 6, 2008}

I was diagnosed as having IBS 3 years ago. Living in Japan it is very hard as I don't understand the language that well and struggle with doctors who don't really seem to care. It's good to get on a site and understand that I'm not alone. I guess we can all see that feeling alone is the hardest part to deal with. People invite me out and I am afraid to leave the house these days. I've even taken to carrying a bag of spare clothes and toilet paper just in case. I've never needed it yet but I guess the fear is what stops me from truly living life – when you go to the toilet 7 times a day and your friends lack understanding, when you have to get off a train halfway to your destination to find a bathroom, when you worry maybe the doctors were wrong and you should go back in the hope that it is something with an easy cure. To me no one seems to understand these problems and although I feel for everyone on here I am glad that I am not alone. Be sure to remember that neither are you.

– Name withheld by request
^{April 16, 2008}

I discovered I had IBS after I gave birth to my little girl in 2005. Everything was normal until after my C-section – afterwards, I could not control the diarrhea.

Most of the medicine I tried for the IBS made my vision blurry and constipated me even when I tried to half the dose. I now take over the counter anti-diarrhea medication when I feel the pain coming on. Having this has definitely changed how I eat when I go somewhere and I also make sure I always know where the bathroom is no matter where I am. It’s just so embarrassing sometimes.

Thankfully I have a wonderful group of friends and family who completely understand.

– Crystal
^{April 1, 2008}

It started in college some 40 years ago. The pain was intense and would last for 5 to 10 minutes. After college and several trips to the doctor and being told there was nothing that could be done to relieve the problem, I started keeping a record or events, type of foods, time of day. Fats and morning were the two common factors that accounted for 70% of attacks. Once I started controlling these factors attacks dropped by 60%.

With this problem you learn where the clean restrooms are and keep yourself focused on where you are in relation to one. I’ve found the best places to stop on the road are motels with lobby restrooms. When in the city I try to use government offices. It helps to always know where the next rest stop is as a back-up.

I tell myself as I approach a new situation: No one really cares about where you are going nor do they know how many times you have already been there. When in public with several people, I set my cell to alarm as if receiving a personal call and excuse myself.

– Name withheld by request
^{March 27, 2008}

I have suffered from IBS since I was in the 6th grade – that would be 19 years ago. Looking back it was bad. I remember eating breakfast and then going to school and then my bowels would start in. Oh the pain, and of course the urgent need to go. I would hold it because it would be explosive, smell terrible, and often make a noise. At that age it was so embarrassing.

One day I held it and went to the school nurse; I wanted to go home because of my abdominal pain. The nurse called my mom to come and get me from school and as I was waiting in the parking lot I pooped my pants. I could not hold it anymore. That was the most devastating thing as a 12 year old girl. From that point on during the school week I would starve myself until I would get home from school. My parents thought it was all in my head and that I didn’t need to go to the doctor. I suffered with this until I turned 21, went to the doctor and was diagnosed.

During pregnancy my IBS was terrible. I became constipated – the worst ever. I have 3 children and with each one I learned how to control the IBS. I am now 31 years old and for the last 5 years I have suffered from constipation with IBS. I have finally found that an osmotic laxative, polyethylene glycol 3350, on a daily basis helps me though I still have occasional episodes where I get bloated, nausea, and have severe pain with diarrhea.

IBS has affected me in many ways as I look back through my life. It's a battle. No one really understands how miserable it is unless you live with it.

– Name withheld by request
^{March 20, 2008}

Have you ever felt like you were odd, different from everyone else? Well I have a lot of my life. People look at me and want to be like me because I am thin. Little do they know I am miserable a lot of the time. When I was 20 my stomach started bothering. I was diagnosed with IBS in 1998. I was put on medication (robinul, an anticholenergic) and pretty much lived on water, bread and yogurt. People would bug me to eat and say I was too thin and needed to eat. When my husband and I would go out to eat or have people over I would be embarrassed and not want to tell them why I wasn’t eating, so I would look rude a lot of the time.

I had my little boy at 27 and graduated from college. I went for about 5 years with only mild symptoms, but they are back with anger! I went back to the doctor and was put back on robinul and I also take a dietary supplement for IBS. This helps but I still have really bad days. I get anxiety about riding with others somewhere, or going to someone’s house. I also have problems at school (I am a Kindergarten teacher). Most of the time I just do not eat at school and I eat dinner around 4:30PM. I try to exercise 6 days a week. I was chosen for Jury Duty recently and they act like you are crazy, no compassion..

I have learned that this is the way it is and I am a happy person but I feel it limits me and I would love to do so much more, travel, mission trips, even eat out. Most husbands surprise their wives with a night out to dinner, but that just causes stress and anxiety for me. I hate it and wish it was taken from me. I feel like a weirdo and I find it very embarrassing and uncomfortable. But I deal with it so much better than I did when I was younger. I have found dietary changes that work for me. I try to stay away from sweets, greasy foods, basically things that are tempting. I did go an entire month without getting sick to my stomach. This month my stomach has bothered me several times. I know it is not going to be perfect and I just thank God for the great, fantastic days that I do have. We may be different but we are not alone, even though we may feel like it sometimes. There is hope and with continued research they will come up with better treatments.

– Kimberly
^{March 18, 2008}

Ever since my first day of college, 10 years ago, I have been suffering from IBS. Every day I would get in my car, take the 20 minute drive, and half way there I would have to blast the air conditioner and go through the worst pain before I could park my car and walk a half a mile to the nearest bathroom. This happened everyday.

The worst experience I had was a couple months ago. I went to the gym with my boyfriend and 2 minutes after we started working out my stomach started cramping and I knew I had to get out of there. I thought I could make it home, which was 15 minutes away, but that was not the case. After getting into my car I realized there was no way I was going to make it – half way home I had to pull over to the side of the road and run into the woods. I was so embarrassed that my boyfriend had to be there for that, but at least now he somewhat understands what I am going through and does not think it's all in my head. He actually apologized. Now I am terrified to go the gym because I fear that it will happen again.

I feel better now . . . I finally got that off my chest. What makes me feel better is that you will understand my pain.

– Name withheld by request
^{March 11, 2008}

'It's all in your head.' 'You're just stressed, that's what your problem is.' 'Just relax, you're too high-strung.' …Just a few of the many expressions of disbelief and/or misunderstanding of others to a condition that I have battled the entire 26 years of my life.

I have never been able to eat out at restaurant, or a picnic, anywhere that did not have a bathroom readily available. I have never been able to walk out the front door of my house without having taken anti-diarrheals an hour in advance . . . and continue to take it throughout the rest of the day. Or I will regret it. I would watch people walking down the street on a hot summer day, eating ice cream without a care in the world. I was so envious of them at first, why couldn't I do that? My parents couldn't answer that, neither could my doctor at the time, nor any of them that came later.

As a child I could not seem to get anyone to understand that I really did always need the Kaopectate or Imodium, even worse, I was even accused of demanding these drugs to gain attention for myself. I was a child, I knew something was wrong, but no one else believed me. I was ashamed, and then I started getting ridiculed by the other children after the first accident. The name-calling still didn't hurt as much as no one believing me. So I stopped talking about it, and thought through every possible way I could learn to live with this and still appear like a normal girl.

After a lot of thought and tears, it seemed to me at the time that I had one option, if I was planning to go to school normally and not humiliate myself with the inevitable accidents. I learned to fear eating. I figured, if there was nothing there, I wouldn't have the problems. I could eat at night, once I got home and purge whatever was left in the morning before getting dressed for school. Seemed pretty simple, I thought it would work out great. I was wrong.

Four years later, I was first treated for anorexia at eleven after a teacher noticed that my ribs were protruding and called an intervention with the school guidance counselor and my parents. They all seemed to believe that I had a self-image problem and was starving myself to be thin. They were wrong. The truth in my case was remarkably simple. Fear was the ultimate appetite suppressant, and potential humiliation was a good motivator. But I couldn't tell them; that would have required telling people about my condition. No one had believed it before, why would they now?

I let them believe that I had a self-image problem, took subsequently prescribed anti-depressants, went to a psychiatrist and lived the lie rather than admit the truth. Instead of continuing the search for the source and a solution to my problem, I constructed my entire life around hiding it by:1) Always having a spare change of clothes, 2) Always carring at least enough cash to buy a soda to get past the 'Bathroom is for Customers Only' situation, 3) Not eating in public unless I had already taken Imodium and given it time to take effect, and taking it immediately after eating too. I had no other options, experience had taught me pretty early on.

If I was caught again starving myself, I could be forced into hospitalization for being a danger to myself and tube-fed. I chose that over admitting to my condition. It just got harder to hide as I got older, but boy, did I try. Especially when I started dating. Spontaneity does not exist in my world; it can't when you HAVE to take a mouthful of Imodium, and give it time to work, just to get out the front door. No surprise romantic dinners, or road trips, or long walks. In order for any of that to happen, I had to plan it to death.

At first, I would try my best to hide my problems with the ever-polite 'sick to my stomach', but as anyone who has spent time with me becomes painfully aware, there was going to be that instance driving down the road when I’d scream, 'Pull over!' They never seemed to understand that once I got to the screaming point, I didn't have time for the next exit or gas station. It made for lots of awkward if not completely humiliating experiences.

Years later as an adult, I found out that my mother has the identical condition. Her shame kept her from even telling me. She and I both suffered in silence for twenty years. We began to research our mutual problem, started going back to doctors. Many doctors again telling us it was stress, or the food we ate. I was even told by one to stop drinking tap water! They gave us anti-depressants, they didn't work. Changed our diets, that didn't work either. Homeopathic remedies, spiritual healings, I have done it all.

I doubt that there is a single 'cure' for this, and I am fairly sure that I will live with this for the rest of my life. But I will not be ashamed anymore. This condition has ruled me for as long as I can remember, and I want my life back. The ones who love me understand the pain I face every day, and give me the strength to fight on. My wish is that there will be a day when everyone can see this disease for what it is, and those that still suffer in silence can receive treatment in comfort and dignity.

– Name withheld by request
^{March 9, 2008}

I was diagnosed with IBS in 2005. I have been very ill ever since then. I have constant flare-ups, and my main symptom is diarrhea. I also have daily bloating. I had an endoscopy, and it was discovered that my stomach is not functioning normally either. I have problems digesting food. Because of the constant problems I have with this, I cannot work. So I am in financial trouble, which adds stress that I shouldn't be in. I keep praying that they will research, and invent a medicine that will take care of this horrible disease. My mom has IBS (called spastic colon in her day) and she was on a medicine that took all of it away, then they took it off the market. I am on medication for my stomach problem, and I am taking a cholesterol medicine to control the diarrhea. My doctors just keep telling I have to "live with it".

– Trish
^{February 22, 2008}

I actually started crying when I was reading these stories. I've been so down lately because of what's been happening with my IBS, and it helps so much, so know it isn't just me.

I've had IBS since I was 10, around when my parents divorced. I'm 19 now, and things are so much worse than they've ever been. It started becoming chronic pain, frequent and absolutely debilitating, in the summer between my freshman and senior year in high school. I went on a school trip to Austria, and among all the stress and rush of changing planes, I got horribly ill. I was stuck in the seat by the window because my two friends were sleeping on their tray tables, and we couldn't land when we were supposed to because of the weather, and I didn't end up making it to the bathroom. So here I was, with my entire freshman class, crying and trying not to let on what had happened, with chaperones I didn't know who were, at best, completely apathetic to something I was too embarrassed to tell them about. The trip was a nightmare. I didn't know the language, at all, was yelled at several times by the people who cleaned the bathrooms from being in there so much and not knowing that I was supposed to tip them, having to randomly leave for another city at the drop of a hat for a few hour ride in a bus with no bathrooms- all while trying to hide it from everyone, even my mom. She'd really spent a lot on the trip, we aren't exactly rich, and I didn't want her to know what a nightmare it was turning out to be. It resulted in her not talking to me for three days, not answering my phone calls or my emails, because I confided to my best friend how horrible it was, how much I wanted to come home, and didn't specify it was because I was sick.

I ended up losing 30 pounds in two and half weeks. I literally stopped eating, just drank tea and the occasional apple. It was like a walking nightmare, not knowing here any bathrooms were, not being able to read any of the signs, lying to everyone when I was in so much pain that I just wanted to curl up and cry.

I got home and progressively got worse. Being in social situations was horrible. Even thinking about going somewhere without a bathroom was horrible. It still is. I've tried biofeedback, getting rid of dairy and wheat, exercising, anti-anxiety medications of every color. And now, I'm just thinking maybe I'll never get better. I want to go and thrash around in my favorite band's mosh pit, be able to stand out back by the bus afterwards for hours and wait just on the chance of getting an autograph. I want to go visit my girlfriend. I want to be the spontaneous person I am, I want to drive across the country on a whim, just because I want to. But I can't. And having to leave college, having to have my mom come pick me up because I just couldn't do it, couldn't take it anymore, having to admit that to myself and sit at home with nothing to do and nowhere to go. It's horrible.

It's true. Every story I read, the bottom line is – no one understands. Not unless you have it. We're not faking it. We can't just 'get over it' or 'psych ourselves down'. This is a horrible illness, and it's making me shake just writing this down. When I never tell anybody, I hate people worrying about me, I hate pity and sympathy. I just want to get better.

Thanks to everyone who wrote their story, and gave me the courage to write mine.

– Name withheld by request
^{February 20, 2008}

I have had stomach problems ever since I was a little girl. I remember my mom having to give me enemas frequently just to help me go to the bathroom. I was always constipated. Now, I am 32 and still constipated more so than not. I do get diarrhea but usually only for a day. I deal more so with constipation. I have to constantly take a fiber supplement or it will be bad. If I forget, I can be constipated for several days.

I am not sure which foods if any really trigger my symptoms. I guess fatty foods and diary are suspects in particular. If my stomach hurts it hurts all day and even into the next day… sometimes for 15–20 hours. It is hard to describe the pain to someone who doesn't experience this. It is definitely not a normal upset stomach because I know the difference! I get what I call ‘hard tummy’ where my stomach gets hard as a rock and bloated and it looks as if I am pregnant. My pants are tight and I cannot keep them buttoned up. I just feel huge and uncomfortable. Sometimes I think that the pain would subside if I went to the bathroom, but I can't even do that because of the constipation! It is very embarrassing and annoying. My boyfriend tries to understand but it affects our love life as well... the gassiness and pain and bloating…

I am so happy that I found this site because I feel a little better knowing that I am not alone in what I am feeling.

– Name withheld by request
^{February 18, 2008}

My eyes teared up reading the stories that are so very similar to mine. I am 68 years old and have had IBS since I was about 20 years old. At the time, no one knew what the problem was, I was told by a doctor that he hoped whatever was bothering me would go away. In other words he thought it was all in my head. I can't count the number of embarrassing moments I have had, many similar to those listed and worse.

I do know that stress does have an effect on exacerbating my symptoms as does dairy. For the last five years, my symptoms have grown farther and farther apart, although I still have them every few months... diarrhea and cramping and time after time on the toilet. The thing that has helped me mainly is hypnosis. It has helped me immensely.

I too always know where the nearest toilet is when I go out, and am careful to not eat too much before venturing out shopping or on a trip. Cruises are great because of the prevalence of bathrooms nearby as noted by one of the other submitters.

[Editor's Note: For more information on hypnosis as a treatment for IBS, please visit our Learning Center: Go »]

– Name withheld by request
^{February 15, 2008}

IBS is a real issue. It affects dating, going on my daily activities and interacting with people I used to once interact normally. I know everyone says it’s hard to control and really heal; what is hard about it is keeping a normal social life and good self esteem when dealing with this problem. Going to the bathroom 8 times a day is not only disturbing but hard on self esteem, and I'm still looking for ways to solve this.

– Name withheld by request
^{February 14, 2008}

Hi, I was very happy to find this website! My story is very embarrassing. I am a 52 year old female and had a hysterectomy about 5 years ago. Ever since my surgery I have had problems with going to the bathroom and gas problems. Finally today, I called a doctor for a check up. This was after three stops to different bathrooms on the way to my daughter's house. I do not know much about IBS, but need help and found this site to make me a little less stressed. It is very hard to do anything, even going for a long walk without bathrooms around. I hope the doctor can help me when I go in next week.

– Name withheld by request
^{February 12, 2008}

I found out I had IBS about 3 years ago. I suffer with constipation on a daily basis and horrible gas and cramps. My doctor has tried different treatments but nothing seen to work. I stay home a lot because the gas and pain are overwhelming. I find it hard to be in the public with this problem. I use a fiber supplement 3 times a day so I can go to the bathroom. I'm at my wits end and don't know what else to do or how to get it under control.

– Lill
^{February 11, 2008}

I was diagnosed with IBS when I was 15. I am now 22 and the symptoms have gotten worse, but I have become used to them so it doesn't seem as bad.

It is difficult to be a college student and now trying to enter the work world when I have to make presentations and have interviews. I have to think about if there's a bathroom nearby and if I should go out with my friends or not when I'm not feeling well just in case I have an ‘episode.’ I usually have an episode once a month or so, which isn't too bad compared to other stories I have heard. Each time I have one I spend the entire night in the bathroom, usually doubled over in pain waiting for the awful spasms and diarrhea to stop. For the next week I'm usually a bit afraid to eat anything that might trigger it again, and mainly eat toast.

Thankfully my friends and family are very supportive, even though they don't always understand what I'm going through.

– Name withheld by request
^{February 4, 2008}

I am a female age 52. I have suffered from IBS for over 20 years. My symptoms are pain, gas, bloating and diarrhea; mostly diarrhea. I have not had a formed stool in 15 years, mostly watery or at best mashed potato like. The diarrhea part has gotten worse –more frequent over the years. My bottom gets very irritated at times and I am so sick of constantly cleaning out the toilet and dealing with this.

I noticed when I took a yearly vacation, always a cruise, with bathrooms everywhere my symptoms would lessen. I realized I was more relaxed and also I ate yogurt 2 to 3 times a day then. I started eating more yogurt at home plus added probiotics to my daily diet.  It helped for awhile – fewer bathroom visits and more formed stools – but it doesn’t last. I am trying to keep a food diary to maybe rule out other food or add some foods. I am very happy to have found this web site. Tired of all the tests.  Best wishes to all of you.

– Name withheld by request
^{February 2, 2008}

I am 34 years old and was diagnosed with IBS in my mid-20s. After reading some of these postings I first want to say that there is hope. In the beginning, before they diagnosed me with IBS, I was constantly having stomach pains, diarrhea, and nausea. After every medical test I could take I was given the IBS diagnosis. For awhile I would have attacks weekly to the point that I stopped being social for fear that I would get sick while I was outside of my home. I missed a lot of work days and thought I would get fired – thank goodness that never happened. Although my family is supportive, no one truly knows what this illness does to you on an emotional level, unless you are a fellow IBS sufferer.

I was finally able to take control over my IBS when I changed my thinking towards it. I decided that I was not going to let this ruin my life. I changed my diet, tried meditation, and learned how to better deal with stress. For some people medication works; for me it did not. It made me feel worse, so I tried a holistic approach of meditating and diet change. I still have attacks, but they are not as frequent. Although I still have my moments of frustration over this illness, I am happy that I can now go out with my husband for a nice dinner without having to run to the nearest restroom.

– Name withheld by request
^{January 31, 2008}

 

I've been a sufferer of IBS since I was 16, ever since then I had a number of doctors telling me I was faking and that the pain was all in my head or that I was stressed. Really the only thing I was stressed about was the pain I was in and couldn't understand why! I underwent a lot of scans, scopes and prodding, and my appendix was taken out for no reason, and all because of my IBS.

I was properly diagnosed when I was 18 and then I was told everything I couldn't eat such as wheat and dairy. However even though I've been given all the medication to help deal with my IBS. I still go through bad phases when I could be bent double over in pain for a week and I miss everything and become so bloated I look pregnant. When I get this pain I'm able to deal with my regular daily pain a lot more because it doesn't seem as bad anymore . I realized that I have to do my daily routine with this pain because then when it gets really bad I can’t do anything.

I am now 20 and in my 3rd year of college. I have missed a lot of college social events due to my IBS. The worst thing is when I buy a ticket to the social and am not able to go, that is when I get the most depressed because I miss out. Even though my friends are really good about my IBS and look after me when I'm in pain, I always feel they think I'm being dramatic with the pain and sometimes that I'm faking. It is also embarrassing when people ask what’s wrong with you and when they hear the word bowel syndrome all they can think about is toilet matters – and because I'm a girl I feel this has turned a lot of guys off me.

I'm so happy I came upon this website it really helped reading everyone’s story.

– Name withheld by request
^{January 20, 2008}

I have been dealing with IBS flare ups for about 5 years now. I have been to numerous gastroenterologists with no relief. I’ve been prescribed 3 different meds, but when I get a flare up nothing helps. I've had tests including colonoscopy and CAT-scan and my results still point to IBS.

I am questioning myself if it is really IBS. Here's my problem, pain – severe pain. People talk about constipation, but I never get that, and diarrhea comes later when the pain eases up. I’ve gone to the ER 4 to 5 times a year because of pain. It doesn't seem to matter what I eat, and when I have a flare up, I cannot eat or drink anything because this causes the pain to get worse. Would any kind of colon cleanser (high colonic) help? My doctor told me it would cause me more pain. I don't need that. Thanks.

– Patricia
^{December 29, 2007}

Editor's Note: The hallmark feature of IBS is pain (or discomfort); it is associated with a change in bowel habit – either diarrhea, constipation, or both in alteration. Bloating is another common symptom. The pain/discomfort generally gets better with a bowel movement. For many people, pain is the most troublesome symptom. See our Learning Center Library for information on pain management. High colonics (colon cleanser) are not recommended (see our Clinical Corner – 'Is there a health benefit from high colonics?')

I have always been very active and never noticed any GI disorder-like symptoms until the last 6 months. I am 19 years old, and realize now truly how much of a toll the stressful last 4 years have taken on my body.

Four years ago my younger brother was diagnosed suddenly with cancer. Just recently, on Dec 1, my brother passed away.

I am a very healthy eater; no soda, no high fat foods. Yet, I find that eating anything just tears up my stomach and I have a hard time eating. Every time I eat my stomach balloons up and I find it very hard to go to the bathroom. I have tried cleaning myself out and that just makes it worse at first. I am thin but yet feel like I could probably lose about 30 pounds just by going to the bathroom. It makes me so tired. On some days all I feel like I am up to is sleeping all day and when I work out I feel better but it’s almost like my stomach has been stretched out, it is so uncomfortable. I have been to my doctor for several tests. I really need some help. This is hard for me.

– Breanna
^{December 23, 2007} 

I suffer from IBS and I usually get it in the mornings before I leave for work. I am sometimes on the toilet anywhere from 30 minutes to an hour. My mum always says it is down to stress but even when I am looking forward to going out with friends I get it. I take some meds if it gets really bad and I do try to watch what I eat, but I find it really hard.

– Name withheld by request
^{December 17, 2007}

I am a 38 year old female who suffers with IBS on a weekly basis. It starts with diarrhea for a few days, then constipation. Very painful abdomen, can't wear tight jeans. Diet has little to no affect that I can tell. I am under a lot of stress, divorced, and in a custody battle over my son. I am a owner/operator of an 18 wheeler, so it is very frustrating for me to deal with this condition while on the road.

– Name withheld by request
^{December 15, 2007}

Hello, I am a 42 year old female, and just came home from one of my countless doctor's appointments depressed again. I don't know whether I am coming or going anymore. I have had stomach pain for years. However, within the last year it has increased. I have had the endoscopy, colonoscopy, hysterectomy, and it seems like whatever else they can do you to you. My pain is significantly severe at times with cramping and stabbing pains. I also seem to suffer more from constipation. I have yet to find a doctor who is sympathetic to my plight. And no one has offered any kind of treatment, so it does seem hopeless at times. Although, I am on my way to another appointment in hopes of finding some kind of relief. I am also lucky that I have an understanding family, as this is most important for piece of mind. Good luck to all who suffer from this insidious disorder. My thoughts and prayers are with you all.

– Name withheld by request
^{December 13, 2007}

I am a 40 year old female from Illinois. I have always had a ‘funny tummy’ and was told I had a ‘spastic colon’; however since July 23, 2007, my whole life feels like it has been turned upside down. First I developed a staph infection, then the official IBS set in. I was hospitalized in mid-August and have had every test done, but still I am sick every day. Colonoscopy was negative. Endoscopy was negative. Multiple stool samples and blood work show nothing. Diagnosis: IBS.

I feel like I have lost who I once was and don't know how to get ‘me’ back. The diarrhea starts every morning around 6:30 am and the nausea and stomach pain continue. I don't feel like I'm on an uphill swing until it is time to go to bed and then I absolutely hate it because I know this whole process will resume again tomorrow. I have said countless prayers and feel like a prisoner in my home. I know that I am depressed. I feel sorry for myself and for everyone suffering for this condition. It truly is life altering. I will continue my prayers and medication and plant my feet firmly on the floor again tomorrow a.m. I just wish someone would knock at my door and say ‘I can make you all better.’ Thanks for listening and God Bless!

– Leigh Ann
^{December 4, 2007}

My IBS began just as I was finishing college. I was engaged to be married, looking for a job, living in a new city and all of a sudden certain foods began causing me to have urgent (very urgent) diarrhea. That started making me socially anxious which lead to bathroom urgency all on its own. This became a vicious cycle which, at the time I didn't understand.

I spent the next 20 years living with constant anxiety never knowing just when I would be in trouble. Sometimes I was fine and then, in the same general scenario another time I would be rushing to the bathroom. The only place I felt really comfortable was at home and the place I felt most anxious was at a friend's house for a meal.A gastroenterologist started me on huge doses of a fiber supplement and a sedative. One made me sick and the other made me dim. I moved on.

Finally, when I was about 40 a doctor suggested a low dose of the fiber supplement and that was the best advice I ever got. It has made me much more comfortable. Now I'm 57 and instead of finding better ways of coping with my IBS I find that I am losing ground. I don't have the emotional energy I once had and fighting this affliction every day has worn me out. I now get mild panic attacks when I feel uneasy about my ability to get to a bathroom when needed. I'm always fine with my wife but as soon as anyone else is present I can't handle things like eating out and then going to a show (that makes me anxious just to write down). Bottom line is that it interferes with my life more than ever. Even though my wife has lived with my problem for decades she still doesn't really understand. On top of everything, my company shut down the division I was working in and my IBS is interfering with my ability to find a new job.

There is so much I'm not writing but I know that those of you with IBS understand. There is a percentage of your consciousness that is continuously monitoring your bowels and keeping track of the nearest bathroom. There is a gremlin on your shoulder all the time whispering that you shouldn't have had that last meal or eaten so much. It also wonders how many stalls are in the men's room, will there be toilet paper, will the smell and the sound embarrass me at a friend’s house. And that continuous fear of the day I don't make it. What will I do??

I tell people about my problem...they don't really understand but they are sympathetic and accepting. I don't go into detail but I let them know that there is a reason for my odd behavior. It actually makes me calmer and less likely to have an attack. It's nothing to be ashamed of and if others want my company they will have to accommodate my affliction.

Well. if any of this sounds familiar welcome to my world. I'm sorry to say that your existence gives me a feeling of comfort that I am not alone. I know that everyone has a different experience with IBS, but no one should have to live like this. I understand what you're going through even if no one else does and I care.

Thank you to all who have written their stories...it has helped.

– Ken
^{December 3, 2007}

My 'stomach problems' started after a trip to India 9 years ago, I was slightly ill on the trip back but didn’t think anything of it 6 months after returning home I was still having diarrhea up to 9 times a day with bloating stomach cramps, extreme tiredness and feeling generally run down. To cut a long story short I have had all the tests and eventually been told that I have IBS. Its been a long and extremely hard journey but life is better,. The hardest thing is that other people who don’t have IBS can never understand what its like – even the closet friends get fed up with you always needing toilet stops or stressing about new places. I have to be careful not to let food and bowels run my life but you can find a way to live with IBS.

– Emma
^{November 26, 2007} 

I was diagnosed with IBS in 2005. As a teen still working my way through High School, it’s very difficult to explain to my friends, teachers and others about the disease. I tend to go to the bathroom quite frequently and I sometimes encounter such severe stomach pains that I can't make it through during class. Many teachers have thought that I ask to use the bathroom so I can "skip" out on class (even though I would never do such a thing). Sometimes the stomach aches are so bad that I start crying, but I try to hold the tears back so I can make it through the class period, it never seems to work though. My Health Care teacher actually kicked me out of class because of stomach aching.

If I don't have something in my stomach for my stomach to feed on, it feels like my organs are trying to feed off themselves. The pain is so unbearable it’s hard for people to understand what I mean. I've had so many complications with my stomach, friends, teachers, and doctors; I could make an inspiring movie out of six years of complications. No one will understand how I feel, except anyone else who is going through what I am going through.

– Name withheld
^{November 26, 2007}

I'm very grateful to have found this web site. The last 3 years have been so aggravating. I've always had ‘nervous stomach’, particularly during stressful situations. In 2004, the tests began: stool samples, urine samples, blood tests, barium swallows (eww), multiple doctor visits. All found nothing. I'm healthy as a horse, according to the tests.

It seems to come in waves. Sometimes I feel fine, no problems. Then for weeks at a time, anti-diarrheals are a daily necessity. The hour-long drive to work can be a nightmare. After dinner, every night, bloating and cramps. I've learned to stop eating before I'm full, but the pain still comes sometimes.

My mom also has IBS, a little bit worse than I do. I wish there was an official test to tell you what's wrong, so you don't feel like it’s all because you're eating the wrong thing or because it's ‘just stress’. Even worse, I also suffer from hypoglycemia (low blood sugar) so I have no choice but to eat despite my fear of those unpleasant symptoms, even when I'd prefer to not even look at food. I just hope that research continues while I try to figure out the best solution for me in the meantime. Take care of yourselves!

– Name withheld by request
^{November 19, 2007}

I am so glad I found this site and realize I am not alone with all these symptoms. When I am nervous I feel ache in my stomach and constipation or the reverse. One time, I was afraid of getting cancer and my symptoms became worse. I went to hospital and the doctor assured me that it’s IBS, and it has nothing to do with cancer or other diseases. It was a relief and very magically, all the symptoms went away. So I think keeping a happy mind is an important factor in treating IBS.

I am still fighting it and don't know how long it will last. But I just want to share with other IBS sufferers my experience and encourage them. Don't give up. You are not alone.

– Crystal
^{November 19, 2007}

I am a 40 year old mother of 4. I started having symptoms of IBS about 12 years ago, but I thought the diarrhea was due to a stressful job, so I suffered through it for 5 years without going to the doctor.

At the age of 31 I had a hysterectomy to treat prolapse. I hoped the IBS pain would go away with the surgery, but my doctor explained it is unrelated. A few years later I went on a low carbohydrate diet and for a year I do not recall being in pain. A year later the pain came back, I had a colonoscopy, the test came out normal and the doctor suggested that I may be allergic to wheat.  I had allergy tests done to no avail. [For more on celiac disease Go »]

I have had constant pain now for 6 months. I've tried an anti-spasmodic and other medication with no luck. I still take the medicine even though it doesn't relieve the pain. I am afraid if I weren't taking it, the pain would be much worse. I'm probably wrong but I hold out hope for it to work.

I describe my pain to my co-workers as a migraine in my stomach. I can't concentrate on my work and I feel like it helps to push in on my stomach in the painful area.  I appreciate reading the similar stories. I just wish someone would say ‘Hey, I found a cure!’

– Sonya
^{November 13, 2007} 

I was diagnosed with IBS about 3 years ago, not long after my Mum passed away from colon cancer. It's been a scary rollercoaster and my GP has been next to useless with ideas, he seems uninterested in my condition. I've not been tested for anything else, which makes the stress and worry worse because of my Mum.

It’s hard to go shopping, to the zoo with the kids, even walking them to school sometimes leads to me frequenting the loo about 15 times before I leave. I am now on the point of not eating, my theory being if there's nothing in there there's nothing to come out! (I have two small children so not eating is not really an option.)

Family don't really understand when I get the urgency and can sometimes get annoyed when we're out and they don't see much of me because I'm in the toilet. I'm at my wits end and reading similar stories has helped a bit. I hope there is more information and research available soon.

– Kim
^{November 12, 2007}

I have never written anything like this before - where do I start?

I met the man of my dreams when I was 26 and life was amazing. He was diagnosed with a painful illness that left him depressed.  I did my best to cope and nurse him, though it’s been hard on me too.. My partner is getting slightly better, however I took a turn for the worse and got diagnosed with IBS.

I cannot explain to anyone, even my partner, how bad it is and how it makes me feel and how it affects my moods. I need his support and it feels like I have lost him and I am losing the battle to IBS too. I am stressed out now to the max and I desperately want to save my relationship. I just feel I am so young and have so much against me and my partner. I have turned so volatile and sharp and short and don't know how to deal with all this.

– Louisa
^{November 10, 2007}

Hi, I was diagnosed with IBS a year ago. My story started when I started attending university, there were days where I had to go to the bathroom 5-6 times a day on campus. It affected my social life in college both because I had to skip classes, and because I had to reject offers to go out with friends. The most disturbing moments are when I am in class and my stomach starts to rumble loudly, and I get the urge to leave the class and head to the toilet. Unfortunately, the medication has been no help, but over time I have come to control some of my symptoms. Hopefully, this nightmare will stop someday and my life will return back to normal.

– Name withheld by request
^{November 9, 2007}

I am glad I found this site. I've been suffereing with IBS since I was about 16. I'm now 25. This disease, that's really what this is, is awful. I struggle day to day, from going to work and going places. I try not to let it control me but I just don't have control over it. It's been very hard to deal with. People just don't understand. This disease affects one on so many levels, not just the physical part.  It's hard going somewhere and the first thing I look for is a bathroom for 'just in case.'  Most days I wish I could just stay in my house. I know some of my triggers but most of the time it's whatever/whenever. I hope one day there is a cure. Good luck to everyone. We are in this together.

– Name withheld by request
^{November 6, 2007}

I'm 19 years old now and I've been suffering from IBS since I was 9, Since then I have dealt with severe constipation and diarrhea constantly. I've had to leave friend's houses unexpectedly because of an episode. I've had to miss school and work. I only have to know where the bathroom is in any building that I am. Long car trips are the worst. My parents always know that when I say my stomach hurts, they have to quickly find the closest bathroom.

My stomach also makes loud rumbling noises all of the time, which can be incredibly embarrassing. I'm in college, and a lot of the time I have to leave classes because my stomach is making so much noise or I have terrible gas. It's incredibly embarrassing.

I have a wonderful boyfriend and I've tried to explain my problems to him but it's just so mortifying. He knows that when I say my stomach hurts, he's to leave me alone for a while. The other day we went out to eat and we going to go to his parent's house after, but whatever I ate caused an episode so he had to rush me back to my dorm. I literally almost didn't make it...

Living with IBS is really, really hard, mainly because it's such an embarrassing problem that explaining somewhat rude behavior such as leaving a party unexpectedly is impossible. I can't even tell you all how many excuses I've come up with in the past. I hope someday there is real help for IBS sufferers and it becomes a much less taboo topic for us all.

– Name withheld
^{November 4, 2007}

Where do I begin... I was diagnosed with IBS about a year ago because that was the first time I really started to feel the abdominal pains. I didn't ever know what was wrong with me. I now cannot have a BM without taking a medication. I have gained about 8 pounds in the last 5 months all in my abdominal area due to bloating, and I feel so self-conscious. I am miserable. I did get a colonoscopy, and I was diagnosed with a ‘beautiful colon.’ Nothing is helping me. I'm at my wit’s end here. I am looking for any help. I want to be myself again. I am sleepy all of the time, my face is breaking out, and my stomach hurts constantly. It has personally and professionally affected my life.

– Maroni
^{November 1, 2007}

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I'm twenty years old and have been suffering with symptoms of IBS. Last night I had an accident. It was in the toilets of my Student Union. Unfortunately all the other toilets were blocked, so everyone was queuing to get in. I was so embarrassed and did not know what to do. People were trying to get in, and complaining about the smell… all I could do was sit tight hoping I could soon leave unannounced and clean myself up. The risk of things like this happening scares me, and I started to become afraid to eat. I don't even like leaving the house anymore just in case I get ill.

My friends don't know the extent of my embarrassing problem, and I don't feel I can fully share my experiences with anyone, which is getting me down. So many times I have to decline invitations to hang out because I’m in pain and worried about when I’ll next have to use the toilet; or my friends will be going to lunch somewhere I can't eat so I’ll decline. When I’ve said there's no point in going because I’m not going to eat, my usual excuse, they say come anyway. But the thing people don't understand is, that if I was to go a) how fun is it sitting watching people eat foods you want to but can't? and b) if I did decide to ignore my problems and eat anyway I’d spend the whole time worrying about getting a reaction, which just upsets me and makes me not enjoy being out with my friends.

It's so hard being at university where everything is geared towards drinking and socializing as I often don't feel able because of stomach cramps, or the fear of not being anywhere near a toilet. It's really getting me down, and I don't know what to do about it.

I'm due to have an ultra-scan and a test done so I can hopefully be diagnosed, but I’m so, so scared. I feel there's no one to share my fears with because no one fully understands. I hate it so much. Why can't I be normal like everyone else?

– Name withheld by request
^{October 27, 2007}

I'm 16 years old but I've had symptoms of IBS for at least 4 years. Whenever I'm nervous about something, I get the 'nervous' pains and then the diarrhea. Then, I get even more anxious because I don't know if it will get better or if I'll be in the bathroom for another 3 hours. At this point, I've stopped eating full meals and snack throughout the day to try and make it through the school day. I always carry an anti-diarrheal with me just in case, but it doesn't always work.

I began going to a gastroenterologist and he diagnosed it as IBS and I tried herbal remedy which worked, but later completely became ineffective and other medications didn't work, too. I recently had a colonoscopy (nothing was wrong) and I was prescribed a very intense medication that I'm extremely apprehensive about using because it can cause major bowel problems if constipation occurs. I'm at a loss of what to do though. My life has stopped, working is a constant stress and it's hard to explain to friends...especially since it's so embarrassing! It's a huge relief to know I'm not the only one though...thanks to everyone who shared their stories. I don't feel so alone and isolated with this disorder.

– Name withheld by request
^{October 27, 2007}

I have had IBS for over 20 years. I have tried dietary changes and medications for diarrhea, gas, and cramping. Nothing has helped, except eating nothing but toast, and that’s not a workable option. Unless they experience this condition, it seems there is no way for others – doctor, relative, or friend – to fully comprehend the misery that you go through. I always think that I want to ask everyone, ‘How would you feel if you felt like you had a stomach virus every day for 20 years, and that your bowels act as if you’d taken a laxatives so that you live on the toilet bowl. Or if you had no social life, no job that you really want but had to work at anyway. Or if you had to wake up several hours ahead of work time to try to have all the intestinal stress over before you walk out the door, and all the while have everyone expect you to carry on as usual.’

Can anyone possibly comprehend this if they have not experienced it? Not in my experience. I watch people at work eat breakfast, then lunch, then snack, and I think, ‘Wow, how do they do that?’ Then I realize how people take for granted the simple fact of eating and eliminating without even a thought.

– Name withheld by request
^{October 20, 2007} 

This is my first time visiting this web site. I was diagnosed with IBS 3 years ago when I was 35 years old. It has been three years now I am putting up with this syndrome.

Lifestyle – it has really taken a toll on my lifestyle. I dare not make any appointments fearing that my stomach might work up last minute. I have at this point totally given up holidays or traveling. I am also unable to take up challenging careers in fear of stress causing IBS. This also means I take back a smaller paycheck end of the month. Some of my friends are thinking that I am anti-social.

Fear – I go through so much of fear especially after an attack because the pain is still fresh on my mind.

Cure – I am hoping for a cure but I guess science has not come up with one yet. Meanwhile I live with anti-spasmodic tablets, controlled food, and good deal of prayers. Thank you for letting me share my feelings and I hope science will come up with a cure sometime soon.

– Cindy
^{October 23, 2007}

Hi, I'm a 26 yr old married woman, mother of two and I was just diagnosed with IBS after suffering with bloating, cramping and constipation for about 3 years or so.

I've always had a sensitive stomach, but it had never been as bad as it's been these last few years. I just recently had a sigmoidoscopy to rule out other things, and it came back clean. The doctor says I suffer from IBS, I must say though that I'm thankful that it wasn't cancer because I was so terrified of that diagnosis. I'm trying to find ways around it now that I know I have IBS.

I'm glad I'm not alone. This disease isn't taken serious by most people. They think, if you're constipated just take a laxative, if you are bloated than just pas gas. Well I wish it was that easy. I walk around feeling like a kettle most of the time. It's so uncomfortable. I'm glad that I found this website and am able to share my story and read others and be encouraged through some. Good luck to all of you in finding something that will help.

– Name withheld by request
^{October 20, 2007}

 

Hello, my name is Rachel. From the outside I look like a healthy, happy, normal 26 year old.... If only that were the case.

My problems with IBS all started on my 13th birthday. I have not lived a normal day since before that birthday. I went to doctors and specialists and had every test done. All I was told was that, ‘nothing’ was wrong with me. My last specialist went as far as to say it was all in my head and he wanted to put me on antidepressants. Can you believe that?

So for over 14 years of my life I’ve lived in pain and discomfort. My bowels only work once a month for me; the pain is excruciating. I have ended up in the emergency room numerous times. It is so scary. I can barely work anymore.

I eat all organic foods, no dairy, no real meat (all soy and tofu – yummy) lots of fruits and vegetables, high fiber, drink a lot of water, exercise, and still I am struggling tremendously. I have chronic pain in my lower abdomen. The pain is always there and when I eat it’s easily doubled in severity. Plus I get bloated, like being inflated with air, every time I eat.

I am dealing with all of this one day at a time and my spiritual faith helps me keep a positive attitude daily through all of these trials and tribulations., Since doctors have raised their hands in the air with no answers, I am determined to find some answers on my own. Hopefully they are out there somewhere for all of us struggling with this.

– Rachel
^{October 11, 2007}

I am a 65 year old female that was diagnosed with IBS many years ago. I had the usual symptoms (cramps and diarrhea) after a meal. I’ve put up with it for approximately 30 years. 

Nine months ago I went to the hospital for an unrelated procedure and contracted an infection in the hospital known as C. difficile. I have never been that sick in my life. After large doses of antibiotics I was sent home and my bowel has not worked even halfway right since. The doctor insists it is still IBS, but I have never read or heard of anyone with IBS experiencing what I am. Severe cramping with pencil size stools or not being able to pass anything. The abdominal pressure is so great I am forced to strain. Laxative and anti-spasm medicines relive it for a short time. Then it is up to 20 or more pencil size movements in a day. When I consume a few meals, it starts all over again. 

I have not been able to work full time in the past nine months. I am self employed and it’s taking its toll financially. I have had 5 CT scans and a colonoscopy with no positive diagnosis. I would like to know if anyone else diagnosed with IBS has ever experienced these symptoms, and if any relief was found. 

This disease has controlled my life completely. It feels as if my bowel is being constricted in some way. I can't go anywhere without a box full of pills for the spasms. I do take fiber supplements and stool softeners but when it locks up the only thing to get it loose is laxatives and/or anti-spasm meds. I pray everyday for a miracle. I feel for anyone who is crippled by this cruel disease.

[Articles of interest in IFFGD Library: Clostridium Difficile Infection; Gut Bacteria and IBS]

– Name withheld by request
^{October 10, 2007} 

I am 32 and have been suffering from IBS for the last 10–12 years. I am happy to know that there is a website where I can express my thoughts regarding IBS. It is very difficult when the pain occurs. I read the stories of other people and then realized I am not alone suffering IBS. I feel sorrow for all of them. I want to say, everyone, I hope you are able to keep smiling and enjoy your life though you have IBS. 

– Ponkoj Roy

^{October 10, 2007}

 

I have had IBS symptoms for many months now and have had to drastically cut out most of the foods I used to enjoy. I guess I could look at the positive side of all this and realize that I have developed healthier eating habits and lost 20 lbs. as a result. Still, I miss being able to eat popcorn at the movies, have pizza with my friends or enjoy the occasional piece of chocolate. My family doctor prescribed an antispasmodic drug that I take three times a day. This has helped me a great deal. I used to not eat at all, for fear I would be in pain or throw up at work. At least I can now eat somewhat normally. I find that my state of mind plays a role in my IBS symptoms; I have been trying to relax more and it helps. I encourage anyone with IBS to try deep breathing, where you inhale through the nose and exhale through the mouth. Its amazing how that alone helps alleviate stress. I sometimes wonder if all the anxiety I have lived with since childhood has finally caught up with me and manifested itself into IBS. If that's the case, then maybe I can learn to stop it.

– Maria
^{October 9, 2007}

Well everyone, I'd like to begin by saying it's so relieving to discover that I'm within a community of diverse individuals who share a common illness. Although, I do believe that most people are oblivious to and even doubtful of the harm of the illness.

I'm 19 years old, male, and currently a college student. IBS has been so bad for me that it's begun interfering with my happiness and physical health. I can't eat with family and friends, and I can barely manage the abdominal pain and upset. I also feel so depressed sometimes that I have IBS. I just wish it could go away and I could be normal once more.

I really hope there is an effective treatment for me so that I can finally begin to enjoy my life again. I’ve made an appointment with a gastroenterologist (even though it's 4 months from now!). I’m going to go see a therapist also to see if I can work out some of my personal issues. I really hope things work out. Thanks to everyone out there for sharing your story! Reading some of them really helped me feel like I’m with others in the same boat.

– Name withheld by request
^{October 6, 2007}  

I am so glad to finally find a website with people 'like me.' Since childhood I have had a 'bad stomach' and been sensitive to certain foods. The IBS really started last year. I have lost over 60 pounds in 1 year due to it. I have cut out lots of food from my diet, especially those high in fat, to help with symptoms or to try and prevent them. My symptoms vary from severe diarrhea within minutes of eating, to instant sweating and teeth chattering pain. It's really hard for me since I have two children, one almost 13 and one almost 4 years old. My husband travels a lot so I have to care for the children no matter how I feel. I also get afraid to leave the house at times and no longer work or attend school due to my condition. I know how it feels to be waiting in line at the grocery, suddenly having to go to the bathroom and barely making it. My husband is very understanding but sometimes you can't understand if you don't experience it. I am glad to know that others know how it feels. Hope my story helps someone else feel a bit more normal.

[Editor's note: Unintended weight loss is not a symptom of IBS. The gut becomes active when eating and many people connect symptoms and food. Not everyone is bothered by food, or by the same foods. Care must be taken to maintain healthy eating habits and not sacrifice nutrition or enjoyment by being needlessly restrictive. Take some time to learn how to sort this out is. Find out more here.]

– Stacie
^{October 5, 2007} 

I am not exactly sure when I started having stomach problems but I remember when I was pregnant with my oldest (over 4 years ago) feeling the best I had in years. Unfortunately that did not last. After my second child was born my symptoms started getting worse. I am a 32 year old mother of 2 young, active boys age 2 and 4; plus an elementary school teacher. I was diagnosed with IBS just this summer. The GI doctor recommended I take a fiber supplement, which actually made me feel worse. After getting the diagnosis I called the GI nurse asking if it would benefit to get a food allergy test. She told me no, it would be a waste of money and usually inconclusive. Wanting some answers, I went ahead and did it anyway. It was the best thing that I did. I found out that I am allergic to peanuts (do you know how much stuff has peanuts, peanut oil, even peanut flour in it). I eliminated it completely from my diet and immediately felt the results. I still have attacks due to other foods, hormones (a week before my menstrual cycle-every month), and stress but they are much less frequent and severe. I would love to be able to get rid of the symptoms completely. It is nice to read about others with similar problems and know that I am not alone. Even my husband does not understand what I go through.

– Bridget

^{October 1, 2007}

Tonight I finally bought my first package of absorbent pads. I've been suffering with IBS for the last 5 months after being symptom-free for about the last 7 years. I had it when I was around 20 now I'm going on 27 and the same symptoms are back. I've had constant diarrhea, which has caused frequent accidents. I have maybe a 1–2 hour window from the time that I eat to the time that I have to go. It's horrible! I just got the job that I've always wanted and I had to have a meeting with my boss because I was caught by her boss leaving my post to use the restroom. A normal person can call for someone to relieve them for a few minutes and wait patiently for the relief person to arrive. I can’t.  Sometimes I don’t make it to the bathroom. I clean up my mess and return to work. I've had to leave work and other places where ordinary life occurs to change clothes because of accidents. I'm thankful that my boss is a very caring, understanding, and supportive person. I also have very nice co-workers with whom I've had to share this embarrassing problem so they would know what was going on with me. My boss suggested the ‘special undergarment’ to help me be able to handle my problem. I told her that I had thought about it before, but I had hoped the problem would go away before it came down to that. 

I do believe it has to do with a lot of different factors like stress and what you eat. But like others I’ve tried to control my stress, diet, and exercise and the problem still remains. I rely on my faith. I believe that the spiritual and physical go hand in hand.  I've recently ended a bad marriage and I am raising three children, along with my new job and handling everyday life as well. It's hard but I know I'll get better. My hope and prayer is that in my sharing this with others that it will bring about the same hope and healing that I have received before and will receive again. 

– Tici
^{September 23, 2007} 

Living with IBS is very hard for me. Right now I am only 12 years old and I have had IBS since I was 10. Sometimes I go over to my friends' houses and my stomach starts cramping up and I get diarrhea. It ruins all my fun! Last year, when I'd already been having IBS for about a year, at school I'd have episodes randomly during classes and I started crying very hard. I had no clue what was wrong with me! My mom took me to GI doctor and I told him all the symptoms I'd been having. The doctor understood everything so I didn't have to take a scope. I had some blood drawn, the doctor diagnosed me, and since then I have been taking medicine, which works for me. I have also limited my diet, and although I still can't eat out at restaurants very much anymore, the number of episodes I have in a week has decreased. Thanks for your support!

– Name withheld
^{September 22, 2007}

I was 12 when I used to feel horrible pains but never thought it would affect other areas of my body. I always kept it to myself thinking the pain will go away. One day I went to my mom and told her about the pains and she said to me it’s nothing serious, but she didn't really know. Now at the age of 17 I told my mom these pains never went.  So I decided to go to the doctor because I was constipated, my stomach was swollen, and it really changed the way I look. The doctor told me that I have IBS and that’s when I found out what those horrible pains were. I started a healthy diet which didn't really help me that much but I hope it will if I carry on with it.

To all the people that have IBS I feel their pain and know what they are going through. All I can say is have hope like I do and trust that everything is going to be alright.

– Name withheld
^{September 19, 2007} 

I have had constipation since I can remember. I am only 19 yrs old and I wonder why I have to go through pain and suffering due to this problem. I just got out of the hospital a day ago because I had unbelievable pain. I sometimes wonder will I ever have the chance to feel normal. For a moment I was thinking that I was the only one in the world suffering from what I have. I am so glad that I know I am not alone. There are other people out there that experience the same thing I do. I am trying to take different approaches such as discontinuing dairy products and eating more fiber to see if I can pinpoint what is causing the constipation. I do hope that I find something so that I can take the proper steps into feeling normal.

I remember when I was younger people use to think I was 'pregnant' because my abdomen was so huge. I have since come a long way. I now have a little more control of my bowels which is good, but I hope to eventually regain or perhaps gain full control of my bowels.

– Cory
^{September 20, 2007}

It's good to hear that there actually are others who really understand and know what I've been dealing with for the last 11 years. My family understands as best they can but I have family by way of marriage who live in another state. It's been years since I've seen them because I can't or won't travel any more than I absolutely have to. I've had too many ‘incidents’ on the road over the years. Also, when the dreaded cramps and pain hit, waiting for the next rest stop 30 or 40 miles down the road just isn't an option. 

This disorder has kept me from doing a lot of things that I used to loved to do. Even something as simple as a country fair is a thing of the past. When an attack hits, waiting in line for a toilet, again, just isn't an option. I try to hang in there at work as much as possible, but there are days when it just isn't possible. 

Anyway, I appreciate knowing that I'm not alone, not just in the disorder itself but in the fear and stress that accompanies it. I even choose grocery stores and shopping areas where I know just exactly where the rest rooms are. My doctor has treated me with anti-anxiety drugs and I use loperamide, which is helpful most of the time. But the uncertainty of when an attack is coming still causes a lot of stress and anxiety. Anyway, thanks for sharing and listening!

– Name withheld by request
^{September 14, 2007} 

I'm 18 years old and have had symptoms for 6 years. I recently was diagnosed with IBS and only now am having some relief. I tried exercise and regulating my diet including trying to figure out which foods caused problems and which didn’t, but it always seemed to change.

I usually go three days without a bowel movement then suffer severe diarrhea for hours at a time with varying levels of pain. On good days it's mild and lasts about an hour . . . on bad days I’m doubled over in pain, vomiting, and passing out. I'm absolutely terrified to travel (even going as far as canceling a trip to Europe). Going out for dinner is a risk; depending on how the food reacts I could be rushing home. I’m absolutely mortified – I refuse to use the washroom anywhere but home, which poses a whole new set of problems.

I'm constantly canceling plans with friends because I’m 'sick' and even calling off work last minute. I refuse to tell anyone what I have so I’m constantly bombarded with accusations of eating disorders because I’m so picky about what I can eat. I’ve been trying not to let this control my life but I constantly feel like I need to get to the washroom and can never tell a false alarm from the real deal. If I’m not in pain I’m worrying about being in pain later. I’ve recently started a medication prescribed by a physician. I do find the pills helping but since it’s a 3 times daily med I find it difficult to balance school, and my social life and when I do forget a dose I can really feel the difference. This disease totally takes over your life but it does help knowing other people understand. I wish everyone on here the best of luck and anyone who may read this.

– Megan
^{September 12, 2007}

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I’m an IBS patient that has struggled daily with a very painful and real disease that can occur at any given moment without warning. Ever since I can remember, I’ve had the classic symptoms, but for years never knew why, or understood that I did indeed have a very debilitating disease.

Even though I struggled with painful ‘attacks,’ I tried to ignore what my body was dealing with or telling me, even when I was at work or social gatherings. Unfortunately, as time went on, the symptoms seemed to become worse, until I could no longer carry on in this manner and my body eventually had broken down.

I had my dream career as a law enforcement officer and had to leave it all behind due to the persistent problems with my illness. You see, wearing a duty belt and bulletproof vest on a daily basis, including grueling shift changes, can be very painful for an IBS sufferer. No amount of pain medicine could relieve my symptoms and allow me to function, as needed. Let alone, running to the bathroom every five minutes, when after-all, I had a very serious important job to do, and time was of the essences when dealing with emergency responses as a patrol officer. Even court dates were a huge issue and eventually I had missed too many days of work, to continue my career.

Years later and after many tests, emergency, and doctor visits, gallbladder and ovarian surgeries, I was finally diagnosed. I later had a complete hysterectomy due to complications with my IBS ‘flair-ups,’ along with other ovarian problems, to try to help relieve some of the discomfort associated with being a woman and dealing with the disease. Unfortunately, it didn’t take the disease away or the symptoms.

I think I’ve tried every diet plan known to man and every advice given by my doctors at one time or another and the problems still persist. In fact, recently, I’ve been suffering for two weeks straight with another long bout of pain and complications. Furthermore, I’ve tried anti-depressants (even though I’m totally against them and not depressed), prescribed medications including tegaserod, additional fiber treatments (that can lead to bloating, gas, pain and other problems), and to no avail; problems continue with new added side effects from the drugs. Some of the symptoms that are relieved briefly and will always return with usually worse problems in the end. This in turn, usually requires higher dosages, additional and/or different medications. Unfortunately, no amount of medicine or diet plan seems to truly alleviate the problems.

Even if as I try to help relieve the symptoms from another daily attack with the knowledge I’ve gained dealing with the disease, I really can’t make it go away. It always returns at a moments notice! There’s no cure or hope to live a normal life, like other people can, knowing that it can occur at any time. This disease is so disabling to those like me that can’t even keep a job, no matter what type it is. I’ve tried several, including working in the home, over the years, since I had to leave the department with no compensation. We can’t claim disabilities, or receive proper medical care, because the government doesn’t recognize it to the standards of other diseases and disorders. So what is a person like me, to do – remain unemployed and feel helpless, knowing that I cannot continue to do a fulfilling and rewarding job that I once enjoyed?

My social and professional life is not as fulfilling as I would like it to be, no matter how hard I try. Those of us that have IBS are not the only one’s that suffer. Family and friends also have to deal with the issues that I deal with on a daily basis. That in itself, is very difficult, especially when they don’t understand this disease or believe it to be serious, because after-all it’s not ‘officially’ serious in other people’s eyes. How would you feel as a law enforcement officer being told by a doctor that you were not right in your head and that’s why you're imagining your pain and suffering? And I know for a fact, that I’m not the only one being told this by medical professionals. For those family members that do see you in actual severe physical pain, they feel helpless and concerned for your welfare, since there’s no relief or cure for you until it passes on it’s own, whenever that is. Then it returns and starts the whole process all over again.

Until you have a loved one, or personally go through the same that many of us have, you cannot even begin to understand this life-long debilitating disease. The seriousness, hurt, frustration, embarrassment, disappointment, extreme pain, loss of a normal life/career, and complete suffering of the symptoms from IBS that inflicts people on a daily basis. Please give this medical problem the same fairness of treatment, research, funding, understanding, and respect that other diseases already have.

Thank you for listening and giving me the opportunity to express my thoughts.

– Name withheld by request
^{September 24, 2007} 

[Editor's note: Surgery is not a treatment for IBS. Yet IBS patients are exposed to more surgical procedures than the general population. Find out more here.]

I was diagnosed with IBS 4 years ago after a particularly bad episode of diarrhea. I now realize that I have been living with this monster since I was around 16 years old. For the most part I put it off as food poisoning or a stomach virus or something going around thinking I was just one of those people who picked up everything.

I have found some things that have helped me include dietary changes such as limiting consumption of alcohol or caffeine containing drinks, eating smaller meals more frequently, and avoiding food I find aggravates my symptoms. I also take a probiotic and have found that with ongoing dietary rules I have set myself I have only had 7 episodes since I was diagnosed, which is doing well for me. I found that certain broad-spectrum antibiotics trigger episodes in me. I’m not sure if there is any link between the two. [Editor’s note: Antibiotics are medicines that destroy bacteria. Antibiotic therapy is a common source of diarrhea. About 20% of patients taking antibiotics will develop diarrhea.]

I just hope that my story helps someone else to manage the monster and start to look forward to a brighter life as symptom free as possible; and that rather than IBS ruling you, you are able to rule it and enjoy life.

– Name withheld by request
^{September 20, 2007}

I have suffered from IBS for my entire life. Until a few months ago, I thought it was just me being a hypochondriac. I remember being 7 years old and refusing candies from my teacher because they gave me diarrhea. My teacher told my parents and they all thought it was so cute – not that I was serious!

When I was 13, I ran for class president. Right before the results were announced, I got the ‘feeling’ (as I had come to refer to it as), and I had to go home ASAP . . . from then I learned that certain foods, and any anxiety-producing situations would cause ‘the feeling.’

Going to college was a nightmare. I was so embarrassed about having to share a bathroom with 8 girls on my floor. Luckily we all became really close, and it was definitely much better than it could have been.

This summer I was talking with a friend who told me she had IBS. I had never even heard about it. She told me the symptoms, and it sounded a lot like what I had! I had always thought my flare-ups were normal, and that every person experienced them. I thought it was my fault for not eating healthily enough, or by putting myself in anxious situations.

It took a lot of courage to tell my doctor about it. I usually don't get embarrassed, but I finally just laid it all out there. I knew she had heard way worse stuff in her career, and it was nothing I should be ashamed of. She diagnosed me pretty much on the spot, and gave me some medicine.

The medicine has been working incredibly. I haven't had one flare-up since I've been on it. I take it 3 times a day, so it is kind of a pain, but way worth it. I do get some cramping, but nothing like the excruciating pain that I used to feel.

I'm no longer embarrassed to go out to eat with people, and I don't have to worry about finding a private bathroom to use. I am so much happier and confident. I encourage everyone to talk to their doctor if they expect they may suffer from IBS. I lived with the condition for my entire life (22 years) before I sought help. It was the best thing I ever did.­

– Name withheld by request
^{September 14, 2007}

I just came across this website today, and I must say that while it's hard to hear about everyone's suffering, it is comforting to know that I am not alone; it's also inspiring to hear the message of hope in many of your stories.

I am a 28 year old female that has been dealing with IBS for about 10 years. My symptoms are constant and occur daily and include bloating, gas, and constipation. If I do get relief it's minimal. It never feels as though my bowels are completely empty. I spend at least 30 minutes several times a day in the bathroom trying to go, because the urge or feeling that I have to pass a bowel movement is constant. Strangely enough, more times than not I experience what I refer to as 'constipated diarrhea' – an oxymoron I know! I've tried everything from yoga to diet changes, etc.

I wanted to share my story for several reasons, but mainly I found it disturbing that the doctors I visited wanted to know if I was constipated or if I experienced diarrhea. My IBS (as I'm sure is most of yours) cannot be so easily classified as one or the other. IBS is made up of many components with the symptoms ranging from discomfort to painful. The severity of the symptoms changes on a daily basis for me. The only constant is that the symptoms are there. Good luck to everyone.

[Editor's note: Pain and discomfort related to altered bowel habit are the hallmarks of IBS. But what is ‘altered bowel habit’? The commonly used terms diarrhea and constipation mean different things to different people . . . and to physicians as well. Yet bowel symptoms affect treatment choices so it is important that you and your doctor be ‘speaking the same language.’

How do we 'translate' bowel symptoms in a meaningful way? Does diarrhea mean frequent stools, or loose stools? Most people endorse a loose stool as diarrhea more than the frequency of bowel movements. What about constipation? Doctors consider constipation a hard pellet-like stool, because that reflects that the stool has remained in the colon for a long time. But to many individuals constipation means infrequent stools, difficulty or straining at stools, the sensation of wanting to go but can’t or of not having finished a bowel movement. So while it may seem strange to have ‘constipated diarrhea,’ if one has difficulty having a bowel movement or feels he or she hasn't finished but has a loose stool it all makes sense.]

– Kate
^{September 9, 2007}

I am 23 and my IBS started after I developed anorexia at University when I was 20. I managed to get better and get to a healthy weight and I thought that would be the end of my tummy troubles. But since then I have suffered from constipation and severe bloating. I can be OK for months then a sudden attack comes on and I start going to the toilet less frequently and my tummy starts to grow. Last December 3 people asked me if I was pregnant and it upset me so much that I stopped going out, I'm so self-conscious about my weight that the comments just made me so depressed. The first time I went to my doctor she told me I was just fat and needed to lose weight (I know the difference between weight gain and bloating!). After 2 months of pain and not going to the toilet I had to be taken into hospital for help. I finally got the diagnosis of IBS. I take an anti-spasmodic, which works when I'm relaxed and stress free.

My only problem now is that I get quite stressed. I've tried everything out there to help and nothing seems to work. Then my tummy starts to grow and I begin to get constipated, which is uncomfortable. It makes me moody and I look nine months pregnant, it really is such a distressing illness to live with.

I eat right, do yoga/meditation, drink disgusting herbal tea and try to de-stress as much as possible. I think that you can make all the life style changes you want but if you are still stressed then the IBS will not go away. I have noticed that when I am stress-free and happy my IBS seems almost non-existent.

It’s great to read everyone’s stories and it really helps to share my own experiences. Good luck everyone.

– Rachel
^{September 5, 2007}

I’m from Sweden, 57 years and I have had pain in my stomach my whole life! I am lactose intolerant in addition to having IBS and I spend all my time trying to find out what to eat and when to eat.

When I was 14, I went to a doctor, but he couldn’t do anything. My father brought me to the hospital in 1967 and I was there for 8 nights. Before I went home the doctor told me the pain was due to my period! For many years the doctors have even told me that I don’t really have a GI problem, because I am a Swede, and people with Swedish ancestors don’t have that kind of problem! I’m so sick and tired of people who don’t know how much pain this causes.

– Christina
^{September 5, 2007}

I was recently diagnosed with IBS and I am only 15. I am on medications to control it and have not been shy about my IBS with people close to me. However, even though I can control it sometimes, there are other times I can't. I guess I've learned to accept it and to not let it rule my life. After all, we only have one of them, right?

– Name withheld
^{August 30, 2007}

I suspect that I’ve had IBS for years but it was only confirmed a few months ago after an awful experience on the way to the airport for my recent holiday. I had to keep stopping at every service station on the way and struggled not to mess myself, which was not only unpleasant but embarrassing (as I’m sure you can all relate to). I took anti-diarrhea tablets all week, which stopped me from having the need to go to the toilet until the last day when I ran out of tablets and couldn’t stop going to the loo until I got a new supply. The whole ordeal was so nerve racking and stressful that months later it’s still making me feel unhappy and paranoid that it will suddenly strike.

For weeks when I came back I couldn’t bear to go out. I’m only 19 years old. It’s a time when I should be going out, but even getting on a bus has become an issue.

For awhile my life started getting back to normal when my symptoms stopped but they’ve recently come back, which has brought my fear back. I start college again soon and I’m starting a new important job, which is making me sick with worry. I’ve been to the doctors several times but they don’t seem to understand the emotional effects of having IBS.

I feel like its changing my whole life and it’s making me so unhappy. I respect all you others, who suffer too so much, for sharing your experiences learning to cope well. I just love my boyfriend so much for helping me through it all. I suggest confiding in the ones you love and care about, as it has really helped me.

– Kat 
^{August 30, 2007}

I'm a 35 year old male from India suffering from IBS for the past 10 years. Doctors have advised me that there is no medicine for IBS, but that it would automatically improve day by day. 

My problem is that I have to go toilet 3 to 5 times a day, usually at least twice in a morning. Sometimes, I have to go after taking meals, tea, or coffee. It is not always possible to get to a toilet and then I feel ashamed. This causes fears and thinking continuously about what will happen when I leave home. I can’t control my bowel. I feel guilty and become depressed. Is there no way to improve this condition? 

– Sanjay
^{August 28, 2007}

I am a sufferer of typical IBS symptoms and spend between 4-6 hours on the toilet daily. I get up early in the morning just so I have time to try to relax before I go to work; then I spend my lunch time on the toilet. I finally began to get some relief, for the first time in my life, when I started taking the prescription drug for IBS with constipation that was then taken off the market. Now it’s available again but at only one-half the dose that helped me . . . back to square one.

This disease is indeed an invisible problem. As soon as you say that you have IBS people pigeon hole you into the group of ‘it's all in your head’ diseases. So I usually tell people who ask that I have colitis (it makes people see you as someone that has a ‘believable’ and a ‘real’ disease). I hope that soon help will be available to us and this disease will be seen as a true condition that has a devastating affect on our lives and the lives of our families.

– Name withheld by request
^{August 19, 2007}

This is my first time visiting this web site and after reading all these stories I don't feel alone. Thank you for taking the time to share your stories. I can truly relate. I can't exactly pinpoint when all of these symptoms and problems began as it seems forever. I feel blessed that I don't have a life threatening illness but, on the other hand IBS has put so many limitations in my life. As someone who has IBS it just seems that we are held hostage by this terrible disorder. It affects me in so many ways. I don't seem to enjoy the things I used to. I am 43 now and like so many of you I can't enjoy going out and eating with my family or even feel like I can travel much unless I plan my routes and eating schedule. However symptoms may arise without having to have eaten anything at all.

My symptoms have worsened and some days I am in a lot of pain. Like many of you I am currently seeking treatment and nothing seems to help. My hope and prayer is that someone will find a cure for this debilitating condition. Unless someone has IBS it is hard to explain our frustrations, embarrassment and our inability to control our sudden urges to go to the restroom and our limitations. We are limited to what we can do or where we can go. It is especially difficulty when you have a job where you travel, and speak in front of groups of people. When I have a meeting or speaking engagement I tend not to eat and sometimes this may be all day and this causes other problems such as headaches and feeling tired or weak. One last thing I'd like to share with all of you. Don't ever give up. Let's pray for one another for strength to make it day by day and an uplifting spirit when we are feeling down. Thank you for letting me share my story. This was very therapeutic.

 – Name withheld by request
^{August 16, 2007}

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I’m 27 years old and from Iran. My first symptoms of IBS (diarrhea) appeared when I was 14 years old and I had to go to the bathroom frequently. I was so ashamed to go out of my class several times. Often bloating was very difficult. No one could find the reason for my stomachache, nausea, and diarrhea. I was (and am) sad and disturbed always. I worry about going out socially or to classes. I don’t eat or drink most foods before I have an exam or any class. Sometimes I’m very disappointed and I feel my life is being wasted. I’ve lost my self confidence. In the last 2 years I’ve used several drugs for diarrhea, inflammation, and anxiety to control my symptoms; they make me feel better but their effects are short term and if I forget to use them my symptoms come back. It’s very difficult to adapt with this disease. Really, isn’t there any way to cure it? 

– Somi

^{August 15, 2007}

My IBS with diarrhea started when I was 13 years old; I am 21 years old now and still living with this condition. When it started I had to stop taking the bus in the morning because I’d have to run to the bathroom every morning (even to this day). Ever since it started it has controlled my life. It is a constant threat. I don't go where I want or leave my house when I want.

 

I remember in high school going to a play in NYC with my friends and I knew there were very few chances for me to use a bathroom on the turnpike, so I refused to eat anything for two days before the trip to make sure I couldn't get a ‘stomach attack.’ I’m underweight from lack of food out of fear of getting diarrhea. It’s getting a little better as I know the signs of an oncoming attack and when I am safe. But I still don't go out when I want or where I want.

 

I live in NYC and taking the subway in the morning is hell. I refuse to visit my friend in Brooklyn because I know that there are few restaurants, bars, shops or other places that would let me use their bathroom. I would love to travel to other places around the world, but I know with IBS it makes those trips impossible.

 

I really wish someone could just exchange their digestive track with me so I can just lead a normal life and not have to be in constant fear and stress. The prescription antidiarrheal drug I got from my doctor does help a lot but I still get attacks and I still live in fear. I'm glad I found this community because I can relate wholeheartedly to these stories and it makes me feel a little less alone in this. Thanks. 

 

–Alison
^{August 10, 2007}

I am 32 years old and I have been having stomach problems for eight months now. I began having nausea, stomach pains, severe heartburn, and bouts of diarrhea, and embarrassing gas. This was all unusual for me, especially the amount of gas. I also felt so tired and didn't feel like doing anything. I am a teacher and I found myself becoming exhausted and agitated because of how I felt. I also have a spine problem that can affect nerves in the lower spine. Dealing with both problems was very difficult at times. I was also experiencing several very stressful life events at the time.

I went through different acid meds for my stomach and have found some relief from a PPI. I've had an upper GI and many blood tests but they haven't found anything serious, luckily.

Then today at the doctor he mentioned I may have IBS. I would definitely say I have a mild case, however. After hearing all of your courageous stories I realize that my condition could be much worse. I can certainly relate to feeling like you don't want to eat anything. If I don't eat I feel great, as crazy as that sounds. I obviously need to keep eating so I'm hoping that the med the doctor gave me will help some of my symptoms, especially the bloating. It's very ironic that I'm eating less than ever, working out daily, and yet I still feel like I'm gaining weight! 

Anyway, I feel lucky that my symptoms are as manageable as they are. I wish all of you the best of luck. You are all very strong, courageous people.

– Mel
^{August 9, 2007}

My history with IBS is long, and it doesn't seem like it's going to end. Since I was 6 years old (I'm 24 now) I've been having horrible stomach aches that are only relieved by going to the bathroom. It started after I almost drowned and got worse with time; frequent stomach aches, gas, and urgency to go to the bathroom. From the age of 10 I’ve had every test possible. I've tried everything! Nothing helps.

I got to a point where I stayed at home, making up a lot of excuses and shutting myself off from the rest of the world. I was mentally dead. Three years ago I traveled abroad for 3 months and it was a nightmare. I've been to so many bathrooms in my life that I'm sick of them.

The worst thing is that my family (except my twin sister who is, thank God, healthy) doesn't understand my situation. My brother just doesn't understand how an adult cannot “hold it” and has to go to the bathroom every hour.

I had so many embarrassing moments because of IBS, such as stopping a bus I was on at a gas station just so I could go to the bathroom, while causing 49 people to wait for me. I wanted to die of shame! I quit a job due to IBS. I couldn't work alone in a candy shop. This was a turning point for me; things got worse after that. I had given up almost everything. But I missed having a life, especially a love life.

Last year I decided to make a drastic change – to get myself a life. I started going out, regardless of the stomach aches and the need to go to the bathroom. I've decided that I'll deal with it when I have to. I started meeting new people and I have even had a boyfriend for the last 9 months. For awhile I was able to hide my IBS from him, but I eventually told him. He was supportive, but he still doesn't get what IBS really means.

It is a daily struggle to live with IBS. Every time I find myself planning my life around this disease I start getting depressed, though I try not to think that way. I don’t want to go back to my old way of doing things. The stomach aches are the same, and I have the same symptoms. Nothing has changed physically, yet mentally it has changed a bit. I still wake up every morning, asking myself, ‘Why me.’ I still envy people walking down the street for not having to think about where is the nearest bathroom, or being able to get home by bus before the pain starts. I'm still afraid of going hiking, of going abroad.

I was offered a job as a teacher (I have a teaching certificate) but I'm still very nervous about what will happen if I need to go to the bathroom and leave 30 children alone in class. Every day I seek for a solution and I read a lot about IBS. I still don't know how to deal with it, but one thing I do know – surround yourselves with people you trust and love because it is the only way to survive. 

– Name withheld by request
^{August 4, 2007}

All my life I lived on over the counter medicine for gas relief. You name it, I've tried it. Nothing worked. I wake up in the morning with a flat stomach. The minute a drink or food goes in my mouth, I look like I am pregnant! Even water bothers me. I love food, believe me! But I do not look forward to meals at all. I am constantly bloated and I feel like I always have gas. How do you explain to your lover that you don't want to be intimate because your stomach hurts and you are afraid of passing gas! How do you tell your friends you don't want to go to the beach today because your stomach looks too big for your bathing suit. How do you tell yourself you look good when you try on clothes at the store and cannot button the pants size you should fit into. I feel horrible all the time.

The one prescription drug that finally worked for me is suddenly no longer available. One doctor told me, "Sorry, nothing is going to work as good for you." Now what!

I have been to many doctors and many have treated me like I am an idiot. Nobody believes me. I am off again to see another doctor and I am not sure how this will go. I have been off medication for a few months now and I am tired of feeling sick all the time. I have not even found a diet to help me. I recently found this website and I was so excited to finally see something that showed encouragement and a desire to want to help people. I just hope someday we will be able to find relief!

– Kristen
^{August 3, 2007}

I am French, and have suffered from IBS since I was 12. The symptoms have changed throughout the years, but they have remained very present. Until recently, I was very frustrated because I felt I was the only person having tummy aches like I do. I would try to hide my problems by finding excuses for not going to this particular theater because I didn't like the seats, or because it was too expensive, whereas it was only that the bathroom was not clean enough. I was always scared someone would suggest we do something like hiking, or go to an outdoor concert.

 

Now I'm starting to accept myself as I am. I've decided to organize my life around what I can do or not do, and not lie to others. If I plan something and feel sick a few hours before, I'll just cancel (when it's possible). Of course, that's how I feel in good days. When I get a flare up (and they can last from a few days to a few weeks), I take medicine, watch my diet, and wait for it to go away.

 

People who don't suffer from IBS cannot understand how hard it can be. It's not like a tummy ache once in a while. It's something that's always on my mind (and nerves), even in good days.

 

It feels unfair sometimes, but I try to concentrate on nice things I have in life. IBS is a very big handicap in my work. Even though I've been proposed very nice opportunities at work, I've declined because they meant going abroad from time to time. And having to travel is hell for me!

 

I've recently realized that I was reluctant to have a baby, because I'm too scared my child might get that problem too. I have no clue whether IBS can be transmitted genetically. But I don't think I could bear the guilt if my child had to go through everything I've suffered.

 

I'm still hoping I will get better one day, though. I've started psychotherapy and I'm hoping it'll help. I must admit it's very comforting to know that others feel the same way I do!

– Celine
^{August 2, 2007}

I’m 20 years old and have been suffering from IBS every since I was 15. It’s been so embarrassing; I hardly ever go anywhere because I fear I might have to run to the restroom. Not much helps. A lesson learned – you all out there are not alone. I’m right there with you.

– Matthew
^{August 1, 2007} 

I was diagnosed with IBS when I was in my 20's. I am 44 now. My symptoms ranged from feeling my intestines jiggle around while processing food, to having sudden urges to void, to going several times a day, to uncontrollable flatulence. I am in the public relations field – on live TV, radio, public speaking, etc. To top it all off, both of my children weighed in at over 10 pounds at birth, which damaged my pelvic floor. Imagine the lack of control I have since I don't even have normal muscle tone to keep things in check. I have to be ever vigilant to be able to cover up unpleasant smells, get to a private area to recover from painful cramps, or get to a bathroom before an accident. No eating or drinking pattern seems to help. I drink water constantly and exercise regularly. I'm in the process of getting wonderful help, so I don't know where that will lead me, but my heart goes out to all who have to suffer through this very strange disorder. With all the modern breakthroughs in medicine, we can be hopeful help is on the way!

– Dani
^{July 30, 2007}

 

 

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I am a 68 year old man and have had IBS for at least 18 years. It manifested for the first few years as diarrhea only, but starting in 2003 was accompanied by the most excruciating stomach pains. I knew when a severe attack was coming as I felt a little ill and weak for most of the day. Soon the cramps would start, usually in the evening, building up to the point where they would double me up with intense pain, lasting about 15 seconds. They would repeat about every 30 seconds and such periods would last for hours, accompanied by vomiting and diarrhea. The pains would slacken overnight and I would be prostrate for most of the next day, with a bloated stomach very tender to the touch. It would take three or four more days for the pain to disappear and normality to return. These episodes became fairly frequent in 2005, returning about once a month and I was at my wit's end as to how to obtain relief. Gradually they began to occur less frequently such that last year I only had two.

Last week I experienced a major attack again, the first this year and was it a doozer. It started last Friday and only today (Thursday) am I really back to normal. I sympathize with all of you who suffer from this wicked disease. Some have mentioned the difficulty of going anywhere for fear of an embarrassing incident. I can tell you I have had many such; one on the golf course with only shorts on, in the city far from a washroom. It is extremely unpleasant and I too feel safer at home.

There is a tendency to want not to go out at all, but I feel it is better to wear a pad and go out than to shelter from the world, which is not really living is it? I make use of an anti-diarrheal (loperamide) to help me when I am going to a theatre, but as many of you know, the relief is obtained at the expense of a build up of constipation, the release of which is unpredictable and which will always be followed by repeated diarrhea. So we pay the price for it. No doctor has suggested a cure and I am on my own.

– Ian
^{July 19, 2007}

This is in reply to Janice's story (July 12, 2007 below). My heart went out to you as I read your story about your anxiety with your new job working with special needs children. I have worked in a school for 14 years now working with special needs, and have IBS with diarrhea. I love my job! I've had IBS for about 15 years, and over the years I have found the best way for me to deal with the need to use the bathroom more frequently that others is to be honest with the people you work directly with. You don't need to go into great detail, just let them know you may be needing restroom breaks throughout the day. I also talked with the school nurse, and she is soooooo supportive. If I cannot find a co-worker to give me a break, I walk my student to health services office and the nurse happily lets my student wait with her while I use the restroom. Just knowing that I have that support helps with the anxiety – panic – urgency cycle. Also, take good care of yourself. When I don't eat right, get enough sleep, or take time out for myself . . . things get tough – you know what I mean.

This past year at my job, has been the best as far as my IBS absences. With the support of school nurse, and a few wonderful co-workers, I was only home 'sick' once this past year! It really has made a difference for me to be able to confide in certain trusted people.

– Tess
^{July 23, 2007}

I start a new job in the education field in a few weeks. I'm sick with panic over the fact that I may not be able to go to the bathroom. Over the past 18 years I've worked in a business environment where I could discreetly disappear. Now I'm going to have to ask someone to watch my kid ( I’m working with autistic children as an aide) and I'm just sick over it. I want to make this career change, I need to work where my passion is and reduce my stress, but yet I'm stressing myself out worrying about going to the bathroom. I can't be the only person at the school with IBS, but I don't know what to do. Do I tell everyone my first day there, or wait until I have a flare up? This is no way to live.

– Janice
^{July 12, 2007}

I am from Wales and am 23. Been diagnosed with IBS within the last 3 weeks but think I've had it for about 2–3 years. I have had bad stomachs for years now but my doctor never explained why and said it could be excess acid in the stomach and gave me a neutralizer that didn't work. In the end I changed doctors and explained what I was feeling (burning sensation throughout my stomach and pain when eating, bad diarrhea and constantly sick), he diagnosed me with IBS. I have been advised to give up playing rugby but I really don't want to. I don't want to let IBS stop me from doing anything I do now if I can help it.

I find if I don't eat much then I don't get that bad with it. As soon as I eat then that’s when I get the urge for the toilet and stomach pains. I went out with some friends on the weekend and had to visit the loo/toilet 5–6 times during our 2 hour meal but I was adamant to enjoy and make the most of the evening with them. It was embarrassing explaining to them why I had to go to the toilet so much as I’d not seen them in a few years but they understood lucky for me.

The major problem I have is with work as I'm a plumber and going to the toilet in a customer’s house isn't pleasant but if I’ve got to go then I can't help it. I'm getting married next year and I'm wearing a kilt so I hope I don't get a bad day as that will be really embarrassing.

– Dean Cherrington 
^{July 15, 2007}

I was diagnosed in my early 20s with ‘spastic colon,’ which I believe now most doctors call IBS. My symptoms during that time were horrible and what I remember is that every Sunday I would be in the bathroom for 2 hours straight and would be so exhausted that I could not go out with my friends for fun in the evening. They eventually stopped calling.

I was able to manage it by diet and exercise for quite a while. I finally could eat and travel to the beach without worrying about where the nearest bathroom was, or what if I urgently had to go. Last winter I had caught every stomach virus going around and haven't been the same since. One doctor, who practices mostly alternative medicine (a rare thing where I come from), told me that my IBS got kicked up again and it would 'just take time” to get back to normal.

I'm not one to go back to the doctor but after reading others stories and looking at the wealth of information on this site, I'm making an appointment with my doctor today to see if there is something else I can be doing. Although personally I don't want to be on any medications for long-term, I do need some relief.

– Janice
^{July 12, 2007} 

Well here goes. Once again I am off work this week due to my 'problems.' Although IBS hasn’t been diagnosed just yet, it was too good to find this site and learn I am not alone! As everyone else seems to feel, my condition has awful affects on day to day life. It is affecting my work, my time with the children, and I feel so guilty as I am always 'short fused' due to being in so much pain. I have tried numerous treatments like others have said. But it just keeps me at home by the toilet! It’s the pain and the cramps that are unbearable; the nausea, and when nothing comes I feel scared to eat because it’s like, ‘Where is it all going coz it ain't coming out?’ I am so tired all the time and now I am off work. Sorry, but I'm fed up! This is not me, as I am normally so active and actually love the job I do. This site has helped, as I feel I am no longer alone. Thanks for reading.

– Name withheld by request
^{July 9, 2007}

I have worked all my life and looked so forward to retirement with my husband; then IBS set in. It has just taken everything out of me. When I plan a trip, golfing, or just shopping with the girls, most all of the time I have to cancel. I follow my diet to the letter, take extra fiber every day and have read every piece of information on the Internet for help and nothing helps. I have been to several doctors and they say the same – there is nothing they can do. I just try to enjoy the good days I have and when a flare up occurs I know it will be lost days. I can not feel sorry for myself but I do feel sorry for my husband who puts up with me and having this problem all of the time.

– Name withheld by request
^{July 8, 2007}

I am 17 years old, and I have had IBS for two years. It didn't get very bad until recently, when I missed the last two weeks of school due to frequent bowel movements and lack of energy. I've been trying to deal with it for quite some time now, and it just keeps getting harder and harder. I can't travel, I can't work, I can't play soccer anymore, as all of those things trigger an attack and I confine myself to the bathroom. I'm still trying different medications waiting for the right one that will lesson the symptoms of IBS.

– Name withheld
^{July 2, 2007}

I am a 26 year old male in Nashville TN. I started having IBS symptoms about 8 years ago. I have gone through all the tests with no clear answers except for I have severe IBS.

I feel like this has affected every aspect of my life. Monday through Friday I am in agony trying to work everyday and then on the weekends all I want to do is stay home. I panic if I go somewhere and dont know where the restroom is, and especially if it is crowded.

I am very embarrassed by this problem, I am always scared that I will have an episode and not make it to the restroom. I have tried several different kinds of meds, fiber makes it worse, antidepressants and anxiety medications havent worked and I fear taking them. Sometimes I feel like I am at ropes end, but knowing there are others with this horrible problem, does help.

– Name withheld by request
^{July 1, 2007}

My troubles started with IBS when I was a teenager. I was a very shy, introverted teen, and then to have IBS on top of all of that was very hard on my self-esteem.

Over the years I've just developed a system of little white-lies when eating out at restaurants, traveling, visiting friends etc. 'Oh I'm not very hungry' or 'No, I couldn't eat another thing.' Meanwhile I've spent most of the time pushing the food around on my plate to look like I've eaten something.

When I don't feel well, I only shop at malls where I know there are washrooms available. I would like nothing more then to be able to go out for a nice meal and then a walk along our lakeshore; forget it – that would be too stressful for me. So I meet friends/lovers for a cocktail and skip the meal. Certain foods do trigger the onset, but you get tired of eating plain foods most of the time. I love to travel and would like to try different cuisines but wouldn't dare try different foods, so even when I travel I eat very little, and stick to very plain foods – which can be very challenging at times. Interestingly many of my symptoms lessened when I was pregnant – go figure. But then I had my beautiful little baby and the nonsense started again.

Society generally finds any discussion of the bowels embarrassing and/or just funny, so I don't talk about it very often to friends and family. I'm now almost 50 and still search for ways to lessen the severity of IBS. I wish more research was done to find a solution – IBS really is very hard on one's 'nerves.'

– Mareka Martin
^{June 29, 2007} 

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I am 35 years old and have suffered with GI problems since the age of 12. I remember the very first episode being so painful I buckled over in my chair at the dinner table, wrapping my arms around my middle in agony from the cramps. For years doctors told my Mom that I was just eating too fast, swallowing air, suffering from growing pains and any other useless fact they could provide. Fact was I was in pain but no one seemed to know what was wrong and I couldn't make the cramps happen on command. My father passed away from colo-rectal cancer when I was 11 so when I turned 32 I went for a colonoscopy to begin my 5 year check ups because of my family history with Cancer. For whatever reason, the procedure triggered one of those nasty cramping episodes. Despite the mild drugs I was given to feel little discomfort during the procedure I felt these cramps full on as though I were completely coherent. After the procedure was finished the doctor asked me a series of questions and for the first time ever I felt like I was being listened to. He asked me if I had heard of IBS . . . never. So he explained it to me and I was in tears. I finally had answers. Every single symptom he mentioned, I had at one time or another. I've been managing my IBS with diet and exercise for the last 3 years. I notice that if I don't eat exactly right or I don't get at least of 30 minutes of exercise (as simple as a brisk walk) my symptoms get worse. For me, eating enough fibre helps but I have to be careful just how much I eat . . . too much roughage and I'm camping out in the bathroom. Not enough roughage and I'm suffering stabbing pains of constipation. Drinking plenty of water helps, stress seems to make it worse.

I was prompted to do a search for information about IBS because I haven't had an episode in months and suddenly I'm getting all too cozy with the washroom again. The most embarrassing part is the audible movement of gas through my colon. Co-workers at the next desk can hear me in a shared office space. Its also very painful . . . and then the urge comes on fast and furious and I have to politely excuse myself. I've been relieved to read about all your information on your website as well as reading other people's stories. I don't feel as alone.

– Name withheld by request
^{June 28, 2007}

I am a 23 year old female living in New York City. I loved school, traveling, enjoying my friends, eating out, and enjoying my life until I developed symptoms of IBS about 2 years ago. My symptoms are sometimes so severe that my life has been interrupted by this disease as I am often afraid to leave my apartment for fear that I will have an episode. I constantly experience stomach pain, and I am always worried that I am going to feel sick. I have been to numerous GI doctors, had many blood tests, a sigmoidoscopy, and all with no findings except that I have severe IBS. I have yet to find a medicine that helps and all I want is my life back, to feel healthy and like myself again. I am comforted to learn that there is a large community of people that understand my symptoms.

– Name withheld by request
^{June 18, 2007}

I am a 47 year old woman whose IBS started when I was 28. It was first diagnosed as constipation and then IBS. I am also lactose intolerant which doesn't help at all. I’m prescribed a drug for constipation but two pills a day cause me to almost have a bowel movement accident and one a day doesn't seem to be enough. When I do have a bowel movement I have to go at least three times before feeling empty. Diet isn't always the answer. I have cut myself off from almost all foods and only a few plain foods will not irritate my stomach. Sometimes I’m afraid to eat period. I am afraid to go out; I automatically get a “nervous” stomach. I tried taking anxiety and depression medication, but had to find a better way. I have a certain routine for traveling (flying). I clean my system the day before and will not eat afterward until I reach my destination. I am lucky to have such a supportive significant other.

– Vanessa
^{June 18, 2007}

My birthday is coming up soon and I will be turning 19 years old. I've already graduated high school, and now, I'm currently working on getting into college. I can comfortably say that my problems began at my first year of high school, while I was going through a very traumatizing event. Ever since then I've always had problems with my stomach. Very shy, and embarrassed, I refused to do anything outside of my own home because of my frequent bouts of diarrhea. That was over three years ago.

Throughout high school, I remember relying on over-the-counter medicines for stomach aches and diarrhea. IBS made those years a living hell for me and after I graduated, I finally made it to a doctor. He laughed a bit from my worry of it being something serious, but then he told me IBS was a disorder and there are medicines to treat it. It wasn’t fatal, I didn't need surgery, nothing serious. Yeah Doc, because running to the bathroom every ten minutes is just so much fun, let me tell you!

I was thankful for the doctor’s support and the medicines I was given. Of course, there's some times when they won't do a thing, but 9 times out of 10 they at least get rid of the stomach ache and the sudden urge to use the bathroom. I'm thankful for finding a community of those who also suffer from IBS, and I'm thrilled that I'm really not alone in this struggle. Its rough guys, but hang in there!

– Name withheld by request
^{July 15, 2007}

I'm nearly 17 and live in England. I first noticed something different with my digestion when I was taking my college entry exams. I'm not sure whether it was triggered by stress in the first place, but it could be the reason. Up to the age of 15 I never even thought about going to the loo, I just did it when I needed too, but suddenly I was worried about it, because I had increasingly frequent attacks of diarrhea, and I was scared that it was going to happen when I was out or at work. I started to get sharp abdominal pains, and also churning pains – as painful as period pains but I could feel my insides churning – it was horrible. I hate it for distracting my life, and making me feel down.

I'm young and have ambitions, and this is stopping me from going to college. My friends joke that I skive, but I'd rather that than them telling each other that I have IBS and suffer from long-term diarrhea.

However, I don't find it as embarrassing as I used to. I've started to tell people close to me and I couldn't believe how common IBS is; I thought I was quite alone at first. I actually found out that a person who I saw everyday, nearly, had it and I didn't even know, until she found out I had it and then shared her story with me.

I definitely think there needs to be more research into IBS, because even though some people thinks it is in people's minds, they haven't felt the cramps and bloating we've been through, and also how low I feel when I have upset stomach. I just want to go to the loo like I did when I didn't have to think about it at all.

– Name withheld
^{August 15, 2007}

I first noticed irregularity when I was in high school. Some days, I would have the sudden, severe urge to go to the bathroom; and it was painful. I just figured I was eating wrong or something similar. I'm 24 years old now, and over the years I've tried several different approaches to my stomach problems. I tried cutting out dairy/lactose, taking fiber, dieting. Nothing made even the slightest difference.

Earlier this year, I finally went to a specialist, and had all sorts of blood and stool tests, and even a colonoscopy. All they told me was that I have a healthy colon; which is good. My doctor told me about IBS and what causes it, how to help, and what I should do about it. I've tried 2 different types of meds, neither of which have made any difference. Now we're going to try a diet/exercise/food diary approach.

I'm sure that a lot of people with IBS can agree with me on one big thing; that it forces you to plan your life around it. At jobs, I have to make sure I can be near a bathroom as much as possible. Going to movies, shopping, and that sort of thing are tricky. I hate being somewhere and having an attack. Driving with an IBS attack is truly terrible. It really sucks to have to think, "Am I going to be able to leave the house and do something today." I'm still confident that I can change all that, and I'm charging headfirst into a better lifestyle; with healthier food and lots of physical activity. Once I find out where my balance is, I'm going to stick to it for the rest of my life. To everyone reading this that suffers as well, I know how you feel. If you haven't yet, get to a doctor and keep plugging away. Best of luck everyone.

– Gabriel
^{July 31, 2007}

I am currently 53 years old. When I was 15 I started having chronic diarrhea and urgency issues. The doctor told me ‘You have a nervous stomach. Learn to live with it.’

The way I have learned to live with it was to close myself off from everyone, eat only at home and when I know I will not be going out again, and lead a depressing and isolated life. No dating, no marriage, no children, no friends; just work and home.

I have been to so many doctors / specialists / psychiatrists / counselors over the years, who treat me as if I am crazy and give me no relief from the symptoms. One comment I read on this site is so true, ‘No matter where I go for treatment options, I am left in the same pitiful state as before.’

I'm scared to talk to anyone, let alone doctors about my situation due to the way I have been treated in the past. I am so sad and depressed about my lack of a life. After living this way for nearly 40 years, the only thing the medical profession has convinced me of is, I will be living this way for the rest of my life.

– Netta
^{July 17, 2007}  

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I was 28 years old and working in Uganda/Rwanda with disadvantaged children when I fell sick. I had to return to the UK and spent six months bed ridden; I had little energy, was constantly throwing up, acid indigestion, diarrhea – the works.

After working all over the world and finally really making progress, I had to move back with my parents. It was soul destroying. The doctor's at first were fascinated with the chance of finding some tropical disease, but all lost interest, one by one.

I travelled to the US to meet a specialist, and to Spain, but in the end I returned to the UK, with my life in tatters. I've tried all the diets and medicines, and have one that works reasonably well.

Three years later, I'm married and manager of a company, and charity work is a long way behind me, though I miss it greatly. I take about 5 pills a day, which sometimes work, but the nausea and pain are never far away, nor is the fear.

It's three o'clock in the morning and my wife is asleep (so is the cat) but at least I don't feel so alone after reading the other stories on here, maybe now I can go back to sleep?

– Craig
^{August 18, 2007} 

I was diagnosed with IBS approx 4 years ago when I finally go up the nerve to go to the gastroenterologist. I am 24 and have been dealing with these pains since I was in elementary school.

 

When I get my stomach pains, they usually last anywhere from 20–30 minutes straight. My problem is not going at all. I can go 4 days without having a bowel movement. Laxatives do not work for me and fiber supplements only give me gas, which sometimes makes the problems worse. I have learned what my trigger foods are so I avoid them but that’s no promise that an attack can't happen at any minute.

 

I can relate to the fears of traveling. I live on Long Island and work in NYC. I must take the train and then the subways to work each day. I make sure I sit in the train car that has the bathroom and have outlined a route of all available bathrooms from Penn Station to my job. It's rough leading a life where you are constantly worrying and planning your life around your stomach.

 

I have noticed that stress is a large contributing factor to the pains. However, it all turns into a vicious circle. I get stressed out about having pains, then I get pains, which adds to more stress.

 

Hopefully soon they will come up with a cure for IBS or at least something to aid in the symptoms. I greatly admire everyone who has IBS and it does help to know that I am not alone.

– Adriana
^{August 22, 2007}

I am having trouble getting a positive diagnosis for what I believe is IBS. I have had doctors tell me I was lactose intolerant, had GERD, was just under stress, had the flu, and even one doctor chuckled when he told me I was literally 'full of sh**' as he gave me a prescription for a strong laxative that just made the pain worse. 

I have experienced alternating diarrhea and constipation, severe pain in my lower abdomen and sometimes my lower back, fatigue, diarrhea with my periods, bloating that results in my owning two sizes of clothes – larger ones for my bad days, etc. for years. 

Within the past few years the constipation, pain, and bloating have become so severe I've been missing work. I just started a new job and am missing so much work I am afraid I won't make it through the probationary period. The stress only makes it worse. I break out in a cold sweat and the pain washes over me. I am also nauseated more often, especially in the morning. Everyone either has a theory about what causes my pain, thinks it's all in my head, or thinks it is funny when I tell them I miss work because of constipation or diarrhea. 

It helped a lot when I found this website and read others' stories. I know I'm not alone, and while this knowledge doesn't help my symptoms, it helps ease my mind that I'm not just overreacting or being a big baby. Also, I plan on taking the information I got from this website and others to my doctor. He hasn't made the connection yet, but I'm sure he will when faced with the facts. Where to go from there I'm not sure, since I've also learned that there is really no good drug for my constipation anymore.

– Nancy
^{August 16, 2007} 

I have suffered with IBS for as long as I can remember.  I am 57 years old and  remember being rushed to the doctor when I was about 6 due to severe pains in my abdomen that my parents thought was a sign of appendicitis. 

The symptoms weren't too bad during my school years but when I was about 21 it came on with a vengeance.  My doctor prescribed valium for my "nerves."  Over the years I have had to schedule my life according to my symptoms – mainly flatulence and swinging back and forth between constipation and diarrhea.  It is not pleasant but I do have a husband and 2 grown children and teach school. I'm just really good at scheduling around this ridiculously difficult disease I guess.  One of my favorite laughs (you've got to laugh sometimes) was when I was being checked by my orthopedic surgeon prior to knee surgery and he listened to my abdomen with his stethoscope and said it was making the most noise he ever heard!

Like many others I have tried everything and nothing seems to work.  I pray that they will find an answer for us someday.  I think if this did not effect the bowel that it would be taken more seriously. 

– Name withheld by request
^{August 6, 2007}

I am 26 years old and have been dealing with/suffering from IBS since I was 14 years old. I never had a particularly sensitive stomach so when I had a severe stomach ache out of the blue while at a friend's house one day, I had no idea what it was. After that first attack, I began to have cramps, bloating, gas, etc more and more frequently until I finally went to see a doctor. Diagnosis was difficult back then because for one, IBS wasn't something you heard about as often as you do today. My doctor was surprised and said I was his youngest IBS patient ever, and although he gave me the diagnosis after numerous tests came back negative for other disorders, he was more inclined to believe that I was faking my symptoms in an effort to get attention or to get out of school. Please, what 14 year old wants to go to the lengths of getting a colonoscopy, endoscopy, etc just to get out of some school tests? That's not the kind of attention I'd ever want!

So after that diagnosis, treatment became a matter of trial and error, without ever truly finding something that helped me feel better. I was put on antidepressants, anti-anxiety meds, antispasmodics, fiber, fiber and more fiber, and a host of "natural" treatments, with no relief coming. I was practically bed-ridden for months at a time as my IBS ran its course, getting better for a short while before having another bad month. I had to finish high school through home schooling, I lost my friends who didn't understand what I was going through, and it was a bad few years. This led my doctor to believe even more strongly that I was faking it, because surely something should have helped me feel better, right? Needless to say after dealing with him for a year or two, my mom decided to let me stop seeing him because I clearly wasn't getting anywhere. We started trying to self treat, dealing more with the lifestyle changes of things. We bought every book on the subject, I found things to try while doing research online, and no one thing helped. I did learn certain foods to avoid but that only helped to a certain degree.

The strange thing was relief just sort of came by itself. By the time I was 18 or so, I was feeling better for longer periods of time. I was never 100% better, but I was functional. I got out and got a job, finished school, went to college, worked my way up in my jobs, met new people and things were great. Well lucky me, about 3 years ago my symptoms came back with a vengeance about as randomly as they went away. Since then, things have been so bad I haven't been able to work. I'm back living with my parents because I have nowhere else to go without earning my own money to live on. My social life is non-existant. I'm afraid to go anywhere for fear of an attack, and even when I want to go somewhere, it takes me hours to get ready because my mornings are the worst. I'm sick almost as soon as I'm out of bed and it takes a long time for my pain to settle down and to be able to get out of the bathroom. I couldn't even imagine being in a relationship right now because I'd be no fun to live with. I could never go anywhere. I never know when or how long I may have to be in the bathroom.

My diet is horribly limited because I have so many triggers, so I don't look forward to meals. Eating out is not something I enjoy! So right now, my life seems to be on hold. I can't even try medical treatment again because I have no health insurance and can't afford the out of pocket costs. So here I am, feeling like I'm back where I was when I was 14. Obviously the stress of it all doesn't help the condition any, so its a vicious cycle. I get stressed, which makes my symptoms worse, which causes me more stress . . . and on and on. It is comforting and sad at the same time to read the stories of everyone here dealing with the same issues. I don't even know who might read all this, but it does feel good to get it out and share with people who understand. As much as I love my family, they have a terrible time trying to understand what I'm going through and why I can't just "deal" with a "little" stomach ache, when we all know its so much more than that. Thanks for listening/reading and I'm happy to do the same for everyone else here.

– Name withheld by request
^{July 31, 2007}

I am a 26 year old that is suffering from IBS with chronic diarrhea and urgency issues. In turn I have severe anxiety about going to social events, traveling, or leaving the house for anything really. It has made me miserable and I feel like no matter where I go for treatment options, I am left in the same pitiful state as before. I look forward to the day when I can be normal again and enjoy life like I feel a 26 year old should.

– Name withheld by request
^{July 6, 2007}

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I am a 29 year old female living in Ireland. I always had problems with digestion and I remember having pains in my tummy all the time being a little girl. In Europe, IBS is always treated as a form of anxiety and doctors are nearly laughing at you when you described the symptoms. They only say ‘don’t be so anxious, you’ll be fine!’ But, still, I’m not.

My symptoms are sometimes very severe and painful. When this happen, I have to stop living and just stay in bed till it goes. I have stomach pain, diarrhea, headaches, fever and I feel sick. I’m so worried about it that I refuse to go to a place where there is no restroom. I avoid crowded places and I have to seat on the aisle when I go to the theater or if I’m traveling. This is very annoying and embarrassing.

I went to a lot of doctors, had many blood tests, a colonoscopy and gastroscopy. The only thing they told me was I have severe IBS. Good luck! Well, I managed to find a medicine and diet changes that help but I still experience pains. I’m glad to have found your website because where I live there is nothing on IBS to help people.

– Name withheld by request
^{June 28, 2007}

Like many other IBS sufferers, I have searched for the cause of my symptoms and have never received an adequate answer as to what has happened to me. I went through the standard diagnostic procedures which were all negative, and was prescribed anti-diarrheals and supplements and then sent on my way. What I find amazing is that I never received any counseling from my doctor. Instead I have had to do my own research and, in conjunction with the medication prescribed by my doctor, have found other ways of handling my symptoms.

Many people suffer from intestinal disorders and the sometimes profound effects that it can have medically, socially and psychologically can be very difficult to endure. If enough of us ask that all of our pertinent issues related to IBS be addressed, then perhaps the ‘diagnostician only’ type of doctors who are out there will finally get the message and begin to give their patients the kind of information that will enable them to proactively manage their intestinal disorder as soon as a diagnosis is made.

– Name withheld by request
^{July 11, 2007}

Hi, I am from India and I am 23 years old. I have been suffering from IBS for the last 7 years. It took me 6 years to find out that my symptoms were IBS. At the age of 16, I had only minor problems, like I was unable to digest wheat and some oily foods. But my IBS became more severe due to high stress levels in my education. For 6 years I have suffered from more diarrhea whenever my stress level is high. During the past year, I have been trying to control my reaction to stress, but when I am unable to control it completely it results in diarrhea. I don’t know how to control the stress. IBS is disrupting my life very much. It has led me to feeling bad about myself and this leads to even more stress on me.

– Name withheld by request
^{July 17, 2007}

I am a 36 year old mother of 7 year old twins. My IBS symptoms first occurred while I was pregnant. At the time I thought it was just side effects of carrying twins and the huge amount of weight gain. Unfortunately after giving birth, my symptoms did not go away.

There are days where I'm in the bathroom 10–15 times a day and then still never feeling as if I'm empty. I am a teacher and I find myself leaving my students alone in the classroom several times a day. I need to bring my own food when going to peoples' homes (fortunately, my very close friends and family are usually prepared with some food that they know I can eat) and I have to ask about every single ingredient that is in my food when eating out. I can’t eat anything with fat in it, anything that is fried or made with butter, desserts are out, most meat is completely taken from my diet except for chicken and turkey, and I'm down to eating only whole wheat pasta, while bread is out completely because if I eat it I won't go to the bathroom for a week, then we all know what happens when you finally go.

The worst part about IBS is the effect it is having on my husband. He is extremely supportive but yet he doesn't fully understand. I feel great anxiety every day knowing that he has to put up with my ailments again. Our intimate life is at a low-time peak, and I am extremely embarrassed that I have to turn him down almost every night due to the tremendous amount of bloating and gas. The mornings are the best time for the least gas pain but by the time evening comes (after eating throughout the day) I'm a mess. I often take pain killers at night to relax my stomach. If I don't I find I can be up all night with a very noisy, gassy stomach with severe pain. Knowing that other people have this is slightly more comforting, so at least I know I'm not crazy, but it's very upsetting thinking that I have to live like this forever.

– Carrie 
^{July 31, 2007}

I have suffered with IBS for 14 years. Over the last year it has got worse. I'm actually frightened to go out for a meal with my partner. It seems to happen an hour after I eat, everytime I eat, no matter how large or small the meal is. I start to get the worst cramps imaginable, so bad I get hot sweats. I have to run to the bathroom straight away. It feels like giving birth. I now carry an anti-diarrheal everywhere I go.

– Name withheld by request
^{July 27, 2007}

I have lived with constipation almost all my life. Twenty years ago I was diagnosed with IBS with constipation. It took years to find a gastroenterologist willing to deal with this. I am now seventy-three years old and see my doctor regularly. Now that the one prescription drug that gave me some relief, though not without side effects, has been pulled from the market I have no options. I am almost never without discomfort, pain, bloating. On the rare occasions that I am symptom free, it is so liberating.

I am unable to find support at home with my family, or even with my friends, who often tell me it's all in my head, or that I could ‘cure’ my problem with the proper diet, as if I haven't tried that. I despair of anyone understanding my situation. This is a very lonely ailment. Everything I use to relieve my constipation backfires and causes me incontinence, gas, and pain. My gastroenterologist is supportive but has not been able to offer much in the way of help. I am not managing my disorder well and am depressed. I want to make the most of my senior years but it is almost impossible to make plans. I never know when I can leave the house, especially now without a medication. Life has become unpredictable. I am trying diet but I have had little success. I am tired of the battle and feel quite alone.

– Name withheld by request
^{July 20, 2007}

I’m a 27 year old female Australian living in the UK. I was diagnosed with IBS over a year ago however I have had symptoms for at least 5 years now. I would have constipation then urgent diarrhea. My first visit to a doctor I was told that I didn’t go to the toilet when I needed to so I was backing up. However this wasn’t the case. I always went to the toilet when I needed to. After this failed attempt to find out what was wrong I went to another doctor (5 years later) and was referred on to a specialist who diagnosed IBS.

After changing a few things in my diet I noticed a change (no more caffeine or sugar free gum or drinks) and told the specialist I had had some success with this trial. But after almost a year things aren’t going so well. For example during a recent trip to NYC I was in Times Square trying to find a toilet. I was hoping it wouldn’t affect my travel but it has.

My most embarrassing time was getting into the back of my partners’ work van and having to go in there as there was no where else to go. I would never tell anyone that, but I’m sure you will all understand and not laugh at me.

I too have felt reading others stories that we aren’t treated well by people. I have just returned from the toilet and people looked at me as if to say, ‘Where have you been.’ It is upsetting when people do that. I’d much prefer to be sitting at my computer and not running off to the toilet. I take an antispasmodic and that works well for me. I just need to make sure I take it before the cramps start or else it doesn’t help.

My partner is great, but there are times he gets very stressed with me. He doesn’t blame me for my symptoms but he does get annoyed sometimes when we are running around trying to find a toilet. I am lucky that he loves me and puts up with me and my IBS.

– Erin
^{July 19, 2007}  

I'm six months from turning 40 and have had IBS probably for most of my life although a formal diagnosis was not made until my 20's. I've tried many different things to control my symptoms, each one seems to work for a while, some for a couple years even, and then the effectiveness lessens.

I've had somewhat of a good 'handle' on my IBS symptoms, although anyone with this illness can attest to the unpredictable nature of the disease. What bothers me most is that people that don't have IBS just cannot understand, even if they try (and my immediate family members certainly do), just how much this illness can interrupt the course of one's life. I recently had to explain to a sibling why I am often late to work; because if/when I get 'sick' in the morning, will it be for 10 minutes? 20? There's just no way to predict or plan.

At this moment, for the last week or so, I have had more trouble with my stomach than I've had in years. I had to leave my family reunion over the weekend. Being ill in a public restroom is no fun – get 'sick' at home and then return. I just spent nearly a half hour in the ladies room at work; embarrassing, but thankfully the 2 people I work with/for are not the type to scrutinize my every move. Now, it seems as though the constipation lasts longer and the diarrhea is the only way it ends. I have no 'normal' periods in between lately, and I'm frightened.

–Kat
^{June 19, 2007}

At 38 years of age I am once again up at 3:00 am with increased GI discomfort and worried why my symptoms are becoming worse. My bloating is so severe that the pants that were loose on me 6 days ago are barely able to be buttoned now.

I am a registered nurse and work hard during the week looking forward to my much needed rest on the weekends. As of last night (Friday) I have had a complete change in my weekend plans. I will not be able to go to the Farmers Market with my husband. I will not be able to meet with a friend in need later this morning. I will not be able to meet with friends later this afternoon. I will not finish my craft room re-do. I will not leave the house. Instead I must start a plan of action prescribed by my physician which includes a 4 stage process to help me evacuate my bowels.

This plan went into effect last night a 5:00 pm when I arrived home from work. It will consume my entire weekend, and will hopefully resolve my current bout of constipation in time for me to return to work Monday morning. I will be close to my bathroom all weekend in hopes that my plan of action will be effective.

IBS is real. It is painful, consuming, physically and mentally challenging, costly, and relentless. The burden of this illness needs to be understood and better treatment options for me and others with IBS need to be made available.

– Name withheld by request
^{February 24, 2007}

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