Courageous Stories: New
I would like to reach out with some encouragement for the many people who have shared their stories. I have been an IBS sufferer for 38 years. Through the support of my physician and my stress management doctor who specializes in cognitive behavioral therapy I have wonderful resources that have helped me learn how to live with it and how to handle major flare ups. Yes, it can be a vicious cycle linked with stress, but help is available. What has been huge for me is that IBS is finally coming out of the closet and getting recognition for the valid medical disorder that it is. Until recently the shame of IBS was incredibly overwhelming for me. Now that its recognized by the general public that so many people have it, some of the stigma has been removed. I encourage everyone to be proactive with your physician and with finding psych support. Together they can be very effective. Give yourself a pat on the back for battling IBS and advocate for studies and increased treatment options. I'm working on accepting that I have IBS and deal with it to the best of my ability, and that everyone else will accept that too. Society doesn't condemn people struggling with diabetes, high blood pressure, etc. - this condition is no different and the social stigma is going away. Try to stay positive and surround yourself with positive people who understand your situation - and be ok with what your limitations are. Sometimes I just have to turn it all over to a higher power, when I'm feeling overwhelmed, and somehow its always worked out. We're stronger than we think.
– Julia
January 16, 2010
I don’t remember exactly when I began noticing IBS symptoms, but I can recall an incident from the 8th grade: I was sitting in class, experiencing intense and unrelenting gas pains, feeling like my gut would explode, and trying to act like it wasn’t MY “stomach” making those strange noises. For a shy adolescent in a new school, it was a painfully embarrassing incident. Unfortunately, it was only the first of thousands that I can recall. For most of my 50-something years I have not talked about my problem. Gastrointestinal problems aren’t the kind of thing one wants to discuss on a date, with colleagues, or even with friends and family. At most, I had "a nervous stomach" or certain foods "didn't set well with me."
Because I didn't talk about the problem, I felt isolated and never knew that others shared some of my experiences with IBS. And I didn’t know what to call it until I was finally diagnosed just a few years ago with IBS-C.
This is what happens to me during a typical IBS Attack: I begin to feel gas building up, then comes the discomfort, then the sharp pains, followed soon by a feeling of urgency to get to a bathroom. Once there, I sometimes immediately have a bowel movement, usually “explosive” in nature (making me very glad the toilet was only steps away!), but sometimes nothing happens. Those times, I go back to whatever I was doing until the urgency returns, usually within minutes, so I stay close to the bathroom. Most occurrences result in several hours of alternating between bed and bathroom. While on the toilet, I typically begin to perspire, eventually to the point where sweat pours down my face, and my whole body becomes sweaty. This will continue for a few minutes, during which time I’ll have a bowel movement. The times when I’ve been constipated are the worst: the buildup of waste in my gut over a period of weeks results in terrible pain and strain in trying to get it out. It is hard and pellet-like. It gets to my rectum and stops! This is the most embarrassing of my secrets about IBS: often, I have to “dig it out” with my finger in order to get things started moving. (If I don’t, I end up sitting and straining for an hour or more, so that I now have hemorrhoids.) I keep a container of Vasoline nearby to lubricate my finger. Even without the existence of constipation, however, I sometimes end up sitting and straining as I experience colon “spasms” that last for 30 minutes or more. Eventually, I feel it is safe to stand up. Then, damp and dizzy, I stagger to my bed and collapse, suddenly freezing, until the next wave of pain and urgency hits. This will usually happen within 5 minutes. I race back to the toilet, sometimes just in time, for another BM accompanied by pain, sweat, dizziness, and often nausea. Because I can’t get up to vomit into the toilet, I have a plastic trash can standing by. If I’ve recently eaten, it all comes up and I may vomit numerous times over several minutes. Even with an empty stomach, I’ll vomit bile for several minutes. I believe it’s the pain that makes me nauseated. When I feel it’s safe, I’ll go back to my bed, although there have been many times I’ve gotten on the bathroom floor, until I have to get back on the toilet. After I’ve gone back and forth for several hours, the worst of the attack will be over. Then I must stay in bed, usually freezing and feeling weak and exhausted, for another hour. I can’t seem to get my hands and feet warm and, even though I’m hot-natured and typically keep the A/C turned down to 65, I’ll crank the heat up until I return to normal.
Stress is definitely a trigger but not the only one. Certain foods and drinks, when and how much I eat, lack of sleep, fatigue – all triggers. Sometimes I'll eat nothing but Saltine crackers for days, and still have an attack. Maybe it’s my imagination, but symptoms seem to be getting worse as I head toward my 60’s - there are more occurrences, and the length and severity of attacks seem to have increased, too. Could it just be that the normal problems of a 50-something body - weight gain, arthritis, insomnia, menopause – are magnifying IBS? My life is stressful and more complicated these days, so maybe that’s the reason. Anyway, living with IBS is a humbling experience, a total lack of control over your body and your life. IBS is debilitating, humiliating, and painful. There’s no cure, little to nothing can be done to counteract or even control symptoms, and I wouldn’t wish it on my worst enemy.
– Name withheld by request
January 8, 2010
I have been suffering with IBS for 15 years. The pain can be almost unbearable most of the time, and at times lasts for 3-4 days. I had 3 children, all natural deliveries, and I tell you this pain is far worse than labor. I take anticholinergics, acetaminophen, laxatives, fiber supplements, and have had to take benzodiazepines when I cannot sleep because of the pain and anxiety that it causes. I am a nurse, and when it comes on suddenly while I am at work, I can barely stand up, never mind walk. I have to take my medication and put hot packs on my lower abdomen before I can go back to work-this only helps once in a while. I also have diverticulitis. Any suggestions for this pain?
– Name withheld by request
January 6, 2010
As I read these stories I'm shocked that there are people out there that have had the same experiences as myself. I have felt so alone, ashamed, embarrassed, gross. I always make jokes with those around me to cover my embarrassment of how often and urgently I need to use the bathroom. People think I have a good sense of humor about it but really I'm so tired and disgusted with it. It seems so unfair that everybody can eat and drink what they want and feel fine, but for me, its anyone's guess how anything I eat will make me feel. I haven't figured out my trigger foods yet because I don't have consistent reactions to any foods. Its stressful and depressing. I was incontinent twice while with my 15 year old son. He was understanding but I know how upsetting that must be for him. My husband is also understanding but he doesn't understand why there's nothing that can be done to fix it. I feel hopeless and tired.
– Name withheld by request
December 28, 2009
I was diagnosed with IBS in 2004. Pain in the abdomen, gas, bloating, belching, burping, sudden urges to the bathroom seems too much to handle. Very frustrating. I'm depressed due to the fact that these symptoms don't go away. I'm on low fat, high fiber diet, but nothing seems to help. I'm done with medications. After a while it stopped working. I cry over this almost every day, because I'm so tired of this. I can't enjoy a normal life nor my spouse. Please someone help me.
– Name withheld by request
December 24, 2009
[Editor’s note: A high fiber diet is not always helpful for IBS. Too much may even worsen symptoms. Be especially careful with insoluble fiber, found mostly in cereals and whole grains (or bran). Soluble fiber, mostly found in fruits and vegetables (or psyllium in supplements), will usually be easier on your system. Find out more here.]
I, like so many others, have been suffering with IBS for over 30 years. But it has been a daily event for about the last 25 years. In retrospect, I think there were telltale symptoms even as a child. My symptoms have evolved and been added to over the years, but I cannot remember the last time I had more than one day of what I consider a normal day.
It started with the diarrhea 4-7 times a day. I lost 10% of my body weight in one week. Sometimes all I had to do was even think about food and it set me off. It was very hard to get thru my lunch hour in an hour as I was in the bathroom 3-4 times. At that time the gastro guy (after a flex sig and a colonoscopy) put me on mesalamine (which is really more for Crohn’s I think) and it was of mild help. Then, interestingly enough, I got pregnant and had a virtually symptom free 9 months. So I also attribute to the hormones playing a part to a degree. However, over the coming years, it has only gotten worse adding new symptoms every so often. Gut wrenching pain, gas, bloating, nausea, a full feeling so I don't eat or very little. I'm on two anti-depressants to help the pain in the gut, an anti-spasmodic (which doesn't always work), an anti-diarrheal, an opiod for pain, etc. etc. Quite a cocktail. Which then leaves me so tired, wiped out, sleepy, lack of concentration it makes it almost impossible to learn and hold a job, terrible memory problems and the constant freight train in my gut day and night. I am seeing another, younger gastro guy to talk about alosetron next although it is a pretty scary drug. And like some others have mentioned, I can find absolutely no dietetic component other than eating small amount throughout the day and keeping a baked potato on hand if I ever do feel hungry.
So, I too, hope some new information comes along pretty soon, as it has had a stranglehold on my life for too many years and I just can't imagine having to continue on like this another 20 or so years. Good luck to us all.
– Name withheld by request
December 14, 2009
I have been dealing with IBS forever. I am 33 years old and tired. I have been dealing with pain on my right side and diarrhea all the time. So sick of it. I read the story from July 22, 2009. Whoever you are I am in your shoes. I have been to the hospital several times. I thought many times I was going crazy. But, it’s always in my head. But, this IBS is very serious and can cause a lot of stress and anxiety. I had my gallbladder out 5 years ago and its been worse ever since. I hope someone reads this and realizes that you’re not crazy, it’s real and this pain that occurs is not in your head. I do get tired and sick of it. I want a new stomach. But, just remember to relax and stop eating a lot of dairy foods and greasy foods. Thanks
– Name withheld by request
December 2, 2009
My name is Liz and I am 17. Three years ago, I was formally diagnosed with IBS after years of symptoms. Unfortunately, as a preteen, the constant pain and irregularity led me to desperate attempts to control my stomach, including an eating disorder. Since my formal diagnosis I have become healthier and more optimistic that I will one day be able to regulate my bowels. I struggle every day in isolating trigger foods, mitigating stress, and living my life as a teenage girl. I have had many difficulties in overcoming the self-image issues that come with being a young woman with a quite un-glamorous syndrome. However, with the support of family, friends, and the help of humor, I am now fully comfortable with myself and no longer ashamed of admitting to my gastrointestinal issues. My teachers and close friends are aware of my circumstances and their compassion and understanding have alleviated many symptoms caused by the stress and anxiety of my frequent bathroom trips. I look forward to a healthy future as I explore new paths of treatment. If any teens have questions regarding the struggles IBS youth specifically face (i.e. first dates, sitting through classes, etc.) please write to IFFGD so we can start a dialogue. Thanks!
– Liz
November 30, 2009
I never knew so many people were affected by IBS. To think that all this time I thought I was a lone sufferer. Always feeling like I was alone and nobody understood me. Boy, was I wrong.
I started noticing my symptoms when I was about 12. I thought that everybody experienced what I did. But as I got older, the symptoms got worse. I finally asked my doctor about it when I was 14. He rather quickly concluded that I have IBS. I thought he was just giving me an answer so I would get off his back. But as I come to research more about IBS, he was right on.
I am the type of person that stresses about anything and everything... especially school. I keep my grades up towards the 4.0 area, and strive to do better. This determination makes my life a living hell because of IBS. Before an exam, or a paper/project is due, I get what I like to call an "IBS attack". Within these attacks I experience shaking, profuse sweating... to the point where I have to take off all my clothing, crying, cramping, and the rest of the works. During these episodes I wish that I wasn’t alive. I feel like experiencing one of these attacks isn’t worth living.
Unfortunately, these attacks don’t come only before tests and papers are due. They occur before I go out with my friends for the night, before I go on vacation, or anything that is not just staying home. If I have big plans to go out and do something, IBS restrains me and forces me to stay home until I finish passing a bowel movement.
IBS is my living hell. I hate it so much. I just don’t understand why something so horrible does not have a cure. I feel like nobody knows about it or cares about it and sees it as a simple complication that is manageable. Well, it’s simply not manageable. Something needs to be done to fix this horrible life that everyone on this website is enduring.
– Jenny
November 15, 2009
This year I was diagnosed with having IBS-D and it was only after I had soiled myself on several occasions where I couldn't reach the ladies room in time... well I had to take extra clothes to work with me. I was a teacher who had also been placed on anti-diabetic meds and the doctor that had then diagnosed me as a type II diabetic two years prior to the one who diagnosed me with IBS-D-- well he finally took me off the diabetic meds and for a short period I no longer had the soiling. I had loose and frequent diarrhea with no pain or discomfort aside from the burning after. Then six months ago- I lost control at a grocery store in the ladies room and it was a nightmare. Now, yesterday I had the unfortunate accident again - only this time in my mom's van!
I cut out eating fried foods, and due to the Type II diabetes I am on the diet with little to no sugar and low carbs. I still have two refills on my meds and I have started to really keep up my diary of foods that trigger the episodes.
– Name withheld by request
November 6, 2009
I have suffered from IBS symptoms since my late 20s, but did not get a medical diagnosis until 40 years old. My 19 year old daughter is a sufferer as well. IBS consumes my life, as the effects cause daily problems either with constipation, bloating, loose bowels or fatigue. I was diagnosed with anxiety w/ panic in 2003, which I feel added to the occurrence of symptoms. I did find relief with a digestive enzyme with probiotics. If taken daily, it minimizes my pain and loose bowel episodes. Using the supplement is expensive and annoying. I hate IBS and further hate that now my daughter has it. I know basically how to manage but have not yet developed the stamina to embrace it and change my eating, behaviors, stress, or life to manage the symptoms. I am otherwise a healthy, young 42 year old working mother of a 19, 17 and 13 year old. Can you relate?
– Sandy
September 17, 2009
It was difficult before I was diagnosed with IBS. I ended up having to go through a battery of testing, ending with the ever popular colonoscopy. I was told that IBS was likely the culprit, and that there was no cure. That was back in 2001, I had just gotten married, started a new job, and bought a house in the same year. It appeared as though stress is how it all began.
I'm 34 now, and still struggle on a daily basis; never knowing when the symptoms will flare up, never knowing if I will have an ‘accident’. I discovered that large amounts of leafy vegetables cause the diarrhea. Through research, I also discovered that IBS-D can be associated with dumping of too much bile in the gut, which causes the diarrhea. Cholestyramine seemed to help, however, the grainy powder was very unappealing to drink and now I am right back to where I started. It has been worse this year because of increased stressors. I have been an ER nurse for the past 3 years, I have a 5 month old son, and am going back to school for my Master's Degree. My IBS will probably be out of control for a while, with multiple more accidents in my future.
– Miranda
September 8, 2009
I have been struggling with IBS for seven years. I have frequent attacks of diarrhea, and burning intestines and rectum. It makes it very hard for me to do anything other than camp out in the bathroom and cry. I've had numerous tests, but everything comes back normal. I also have GERD, and when my IBS is in full tilt, so is my GERD. One product that helps keep my intestines calm is psyllium fiber. It's really gross to drink, and when I stop taking it, that is when my attacks reoccur with a vengeance. For me, it is well worth the awful taste in order to not deal with a severe attack. Diet helps me too, but who wants to eat cardboard for the rest of their lives? I find that with the psyllium fiber, I can pretty much eat what I want, except for foods that I KNOW will still trigger an attack. This condition has made me depressed and aloof, when I used to be so happy and outgoing. Hopefully, one day I may get this condition under control.
– Name withheld by request
September 4, 2009
I am 19 years old and lately I have felt so desperate and so frustrated by my own body. Ever since I can remember I have had to deal with what I now believe must be IBS. In a few days I have a doctor appointment and I intend to bring it up again, as the last time I had a severe problem I was told to eat more fiber and I don’t think it has helped.
When I was little I was a picky eater and did not eat enough fruits or vegetables and from what I can remember barely drank any water either. I was almost constantly constipated as a result. I worry that I may have somehow damaged my body when I was young. I have also always been very sensitive to stress and used to be very shy. Within the last 2 to 3 years my confidence has grown considerably. Things that used to stress me to the point of nausea I now think nothing of. I have also cut out bad food from my diet and I now eat lots of fruits, vegetables, and grains and drink a lot of water. I began exercising and I am now fitter than I’ve ever been, and yet I still have this problem. I worry that maybe because I was used to feeling sick when I didn’t eat right and let stress take a hold of me that now I automatically expect to be sick when I am stressed or even when I’m just doing normal everyday activities. In that case I would have to break that mental association and hopefully be able to do things without worrying in the back of my mind.
Now, instead of constipation its diarrhea. This entire month I have been miserable, trying and trying to justify my body's dysfunction. I think it may be from stress as my mom has been pushing me to get a job and get into college as soon as I can. I don't even feel comfortable leaving the house let alone having to go to class or work everyday. I can’t remember a time when I digested and passed my food ‘normally.’ I have been told many times that it is ‘in my head’ and that I just need to learn to deal with stress. I used to be so nervous going on a date that I get sick and I believe it interfered with my social life and my confidence. I am very lucky now to have a boyfriend who is understanding and supportive. Lately though I have just been crying and feeling so overwhelmed that I am stressing him out.
Every time I get my period I have horrible diarrhea that forces me to spend hours on the toilet. I nearly dropped out of school in my junior year because every single morning I would have diarrhea and nausea and I just couldn’t sit through class. I graduated early and got a job, but I quit that after a few months and now I am trying to convince myself that I can deal with this. I’ve adopted a healthy lifestyle and I hope that in time it will help my body to heal any past damage. I want to be a biologist and see the wilderness and the rest of the world without worrying about walking out my own front door. Thank you to everyone who shared their stories. Reading some of them has brought tears to my eyes knowing I am not alone and that others have it much worse. Hopefully more research will help us all in time.
– Ashley
August 28, 2009
I have been suffering from IBS for many years. It had restricted my life to the extent that I would get depressed. I could do some activities, if I knew there was a bathroom available. But traveling presented a problem and I would get angry because of my limitations. I kept this all to myself and my husband suffering alone. I tried biofeedback, and the nurse who was helping me thought I should see a psychiatrist, which I did. He put me on an SNRI which changed my life... to about 80 % normal. My focus is no longer on the worry that comes with IBS. My life has become freer, but on the downside, I've begun to ‘what if’ again, so we may have to increase the dosage. So, yes, there is some help out there.
– Name withheld by request
August 26, 2009
I am a 61 year old male and have had to deal with IBS-D for about 15 years. My first episode was at a football game and I didn't make it to the bathroom in time. Very embarrassing and traumatic. I thought ‘What just happened?’ Since then I have had other episodes while traveling that have either been disasters or close calls. Anxiety plays a big role in triggering episodes. I worry about having an accident which causes more anxiety which causes more accident potential– classic with the syndrome!
I have learned to avoid certain foods and beverages but do occasionally fall off the wagon. Anti-diarrheals and anti-anxiety meds in small doses has helped. Mostly, I scope out the nearest bathrooms and let the chips fall where they may (sorry!! haha!). I love golf and always use the course restrooms whether I need them at the time or not just to be on the safe side. I am up front with my golfing buddies and they understand when I need to rush ahead to the next ‘hole’. Airplane travel is really tough when the light comes on to stay in your seat and you really, really need to go. More than once I have been ‘that guy’ who gets up and rushes down the aisle. My biggest fear is having an accident on a plane or bus while touring. It has restricted my travel plans but my wife has the patience of Job and is very helpful in getting me through the tough times. It helps to write about it. Thanks for listening.
– Name withheld by request
August 20, 2009
My IBS started in my late 20’s. I am now 55. It’s been a very long painful road. I am sorry to say, but I have gotten worse as the years went by. Now I bloat as if I were 9 months pregnant. How do you explain that to people? I own my business, and I had to give up a lot of working hours to others. The guilt of not being able to do what I did do, or what I should be doing, is killing me. My family ise all wonderful, but I miss a lot of events with them. Does anyone have severe back pain with their IBS? Thank you for letting me vent, and I will search anywhere and everywhere for answers for all of us.
– Name withheld by request
August 4, 2009
I was diagnosed with Crohn's disease in 1991 at the age of 26, and I also have IBS. I had a bowel resection done the same year and have had several flares – some minor, some major, over the years. I had my gallbladder removed in 2003 and ever since then, have had diarrhea that's gotten worse over the years.
Four years ago, the diarrhea kicked into a higher gear. I noticed it's become increasingly worse since then, but at least loperamide or other anti-diarrheals would take care of it. The past two years, though, have been basically unmanageable and intolerable. I can no longer work out, take walks, travel for work, go to concerts, eat out, visit with friends/relatives – live my daily life – without being sick with such stomach/intestinal cramping and such severe diarrhea that I carry changes of clothing and underwear in my car because I'm prone to accidents and have had way too many to list here.
I, like many other people, have to plan EVERYTHING I do around having diarrhea. My case is a little different, though, because of the Crohn's disease – the disease has been active for two years now, and with regular bloodwork, am able to see the ups/downs of that illness – the IBS never rests or goes into remission. I have one of the best gastroenterologists on the planet – I also have one of the best families, boyfriends, friends and co-workers anyone could ask for. But no matter how much support and comfort I get from the people in my world, this illness/disorder is ruining my life and getting worse.
I've tried anti-depressants, antibiotics, narcotics, medicinal marijuana, home remedies, not eating, every anti-diarrheal out there, yoga, counseling; I've seen dieticians and nutritionists, and so on – absolutely nothing works. I maybe have 2-3 good days per MONTH. I've even asked my doctor for a colostomy. I'm at the end of my rope and will be starting alosetron before the end of August. This is my last resort. If this doesn't work, then exploratory surgery will be ordered to rule out anything related to the Crohn's, but I've been told I may just ‘have to live with it,’ that the diarrhea may be ‘idiopathic’ and that's not something I'm willing to accept. Thank you for allowing me to share my story.
– Karen
July 30, 2009
I've had problems my entire life, from maybe the age of about 4 on, but no one knew what was wrong with me. My mom would either be force feeding me bismuth or senna - depending on which end of the spectrum my bowels were - and most doctors either labeled me a perfectionist who was too hard on herself, or a hypochondriac.
After losing 60 pounds in a month in my mid-twenties, I was diagnosed with an unspecified IBD with markings of both Crohn's and colitis and put on a cocktail of medications. Nothing really helped though until a doctor told me what I had, even if unspecified, would be with me the rest of my life. There would be no medication or surgery to make it go away, it just was, so I might as well shake hands and make friends with it and learn how to live together.
I was 32 when told this and for the last 15 years I've worked very hard at doing just that. I've stopped letting these problems get in the way of my life. I even traveled to sub-Sahara Africa in 2005 with no trip altering problems. Some diarrhea, mostly at night, but everything manageable.
I've also changed my diet to include a lot of fresh fruits and vegetables, little red meat, mostly chicken and fish, and only skim milk. I exercise daily and along with some medications - a PPI and SSRI - I also take probiotics. I try to stay away from anti-diarrheal medications as I found when they wore off they were worse than just living through the symptoms.
Recently my symptoms were re-evaluated and I was given a definitive IBS diagnosis. Having IBS as a diagnosis makes more sense. It now explains the unexplained items with the IBD such as why I gain weight, or don't have low blood counts, or haven't gotten worse with age.
But I owe a whole lot to that doctor who told me to make friends with my condition. Before then I let it hold me back a lot, afraid to get too far from a bathroom, or go someplace different because even the ice cubes of different water in a drink could set me off. I found that when I relaxed, let go of the thought this would go away, and learned to listen to my body and live with what was happening instead of trying to predict it, over medicate it, or fight it, I felt so much better.
– Shari
July 29, 2009
I was diagnosed with IBS two weeks ago after my doctor did a colonoscopy and endoscopy to rule out any other diseases such as celiac or Crohn’s. I have been having a problem for over a year now, since I had my son in June of 2008. I had a lot of stress in my life at that time with just having a baby and also having a bad allergic reaction to some antibiotics. It was very scary for me and I worried like crazy. That must have triggered something and it all went wrong from there. I started having tons of gas and bloating, along with constipation all the time, and a headache every day. I also have had a sharp pain under the right side of my rib cage that also radiates to the right side of my back every single day for over a year. At times, the pain is so severe that I cannot function very well. Some days, the pain is not as noticeable and I feel almost normal.
I had the doctor check my liver, kidneys, gallbladder, appendix... nothing came up abnormal. I still am worried that they just haven't figured it out... it probably makes my problem worse because I stress everyday because I feel so terrible. I have never had anything like this in my life! I am only 29 and feel like I am on my death bed some days. I am constantly fatigued and feel nauseated most days. I feel like this past year I have been cheated because my quality of life has not been very good. This is the strangest thing I have ever gone through. I feel desperate because I feel like no one can help me. The doctors can't figure it out... I pray all the time that they will find out what the problem is and cure me because this is hard to live with. My whole family thinks I am nuts because I feel so awful all the time, but I can't help it if I am having terrible pain.
I am going to keep a food diary like some have noted on here and see if I can find a way to help my symptoms. This is just a terrible problem.
– Name withheld by request
July 22, 2009
I am a 27 old black man with IBS - too young to go through this! My little cousin, he has IBS too but he is only 17.
It hit me about two years ago and changed my whole life. From being into work/sports/clubs I’m now someone who can’t make it to work, or am going to be late. I do maintenance airport work and I can’t enjoy a full paycheck because of this.
So many tests/so many pills, but no feeling better here!! I want my life back so bad!! IBS is hell on earth. Something has to be done about this. I take all the pills but am still in pain and more pain.
Help, we need a cure NOW - also more men of all races need to talk more about this.
– Lost
July 21, 2009
My daughter will be 9 yrs. old in August and she was diagnosed with IBS about a year ago. I live in a small, rural community in Alabama. Our pediatrician sent us to Birmingham to see a gastrointestinal specialist. We were living a nightmare watching our daughter suffer from this disorder that I still know little about. She would wake up early in the morning sick to her stomach, slumped over with abdominal pain and vomiting on average 2 to 3 days a week! As a mother, I felt very helpless and began to wonder what brought this on all of a sudden.
After seeing the specialist in Birmingham, we learned what food she could tolerate and what she couldn't. We have changed her eating habits... which in itself, was a hard task. That has seemed to help. I wish the school would be more understanding. Sometimes she has to go to the restroom suddenly, sometimes she’s fine and then cramps suddenly, and they don't seem to understand. Her symptoms have improved but are not completely better. The lunchroom manager at her school gets offended because I no longer let her eat school lunch. She seems to have less problems when I prepare her food at home. I want to be able to help my daughter but without hurting others in the process.
I feel foolish as a parent because even though her symptoms are not as bad... I feel like I don't know enough about IBS, why she developed it, and will she ever get completely better. Our doctors here don't seem to know too much about it. There's always that what-if question. What if her symptoms persist or get worse like before? What do we do then?
[Editor’s note: View useful information in this article about helping a child with a painful bowel disorder in going to school, using the bathrooms, and interacting with teachers and classmates. Go »
– Name withheld by request
July 20, 2009
I have suffered from IBS for 20 years. It started with daily diarrhea, very painful and urgent. I visited several doctors until I was diagnosed with IBS. I usually have all kinds of symptoms, mixed or not: cramps, incontinence, gas, pain, and they get MUCH worse during menstruation. The symptoms come and go, I never know when. When a “good period” comes, I cannot predict how long it will last; it can last for months, or only for days. Eventually the pain and diarrhea always come back.
I still try to understand how my body reacts to foods and also to medicines, and I have found a personal diet that works for me. I know now that I cannot tolerate milk and cheese, nor some vegetables which are very rich in fiber. It's a long time since I have eaten ice cream, chocolate, cream, cheese, artichokes, asparagus, pineapple, strawberries and lots of other nice things.
The good news is that I have learned how to identify my body’s early warnings and react fast. I always take my medications with me, above all when I travel. I am very fond of traveling, and I refuse to limit this hobby because of IBS. At work, if I have to interrupt meetings, I tell people exactly why I need to do it. The disease is nothing to be ashamed of, and as people know about my problem, they become understanding.
For me attitude is everything in IBS, I try to keep positive, although from time to time I can't avoid crying in a corner.
– Name withheld by request
July 20, 2009
I am 23 years old and have just been diagnosed with IBS. My symptoms started when I was only 8 years old. My parents took me to the doctors multiple times, and they took blood samples on a weekly basis, but never got any answers. I remember the stomach pain that would leave my hunched over not wanting to move for days at a time.
My symptoms somewhat faded throughout the next few years up until high school. From time to time I would get nauseous, light headed and throw up, then feel fine again. Other weeks it would be, and still is, a week of constant diarrhea or constipation with excessive bloating or that same stomach pain that I got when I was 8.
I have finally been diagnosed with IBS after ruling out Crohn's, celiac, IBD, colitis, or any other major diseases. It has been an ongoing battle, and I still never know if I am going to have a on/off week. I have adjusted my diet, and no longer eat any fatty or greasy foods, minimal amounts of dairy products and absolutely no fast food! My Doctor prescribed an antispasmodic, which helps mea lot with the diarrhea and bloating.
IBS is very difficult to deal with, especially when waiting for answers and never getting any!
– Name withheld by request
July 14, 2009
I'm 15 and have suffered from IBS since I was about six. It used to be very mild. I could go months at a time without one flare up. Recently (the last two years or so) it has gotten a lot worse. Almost every day I'm in pain or feel like I'm going to throw up. I'm scared to leave the house even if it is only a few miles away. I watch what I eat but I'm still in pain.
Pacing the floor at night has become 'normal' for me. I dread my friend asking me to go somewhere with her. I can't have a normal life at all. Last night I stayed up until 3AM pacing the floor and trying to stay calm. I have turned into a person who worries almost constantly. I can't imagine getting a job and being able to go to it every day. My life is going by and I can't even enjoy it.
I get so mad and frustrated that I end up crying. I don't want my mom to worry so hide it most the time. Only when I feel VERY bad do I tell my mom. No one around me suffers as I do and they just don't understand what I go through. My brother once asked my mom if I could stay home (we were going to the mall). I felt so hurt. He didn't want me to go because of my IBS. IBS is running my life and I can do nothing about it.
– Name withheld
July 9, 2009
I have suffered from these symptoms for roughly 12-15 years, and only in the last 2 years been diagnosed with IBS. My symptoms are: cramps, nausea, bloating, and more constipation than diarrhea. I suffer from this every day of my life, some are worse than others, stopping me from going to work at times. Some days I just feel like crying, as I am so sick of not feeling normal, and being able to eat what I want. I drink coffee, smoke, and am a worrier and stressed person, all of which don’t help. I suppose I am aware that there is probably some things I could try/eliminate, but if I ate what they say will help and not ate what they say not to, I feel like I would be giving up so much. If I eat more fiber, I am worse, and I have tried so many tablets, none of them work, and I feel that doctor's and specialists don't really understand or care.
[Editor’s note: There is no one diet that works for everyone. Try to figure out what works best for you. Here is some general information. Go »]
– Jacinta
June 22, 2009
At the beginning of this year, 2009, I was diagnosed with IBS. The problem had, looking back, been coming on for two years prior. What a bummer – no pun intended. I must daily consider: What, how much, the mix of, food and drink I put into my belly. Unfair, say I, a seventy-four year old male who has enjoyed any plate or drink placed before him. Recently I had to purchase a protector for the bed as I have had 'accidents' in the past and do a fair amount of traveling. There is a site out there that will tell you where to find public toilets on this Continent and others -- probably great if you are near one such.
I have learned from speaking about IBS to friends and relatives (who I did not know suffered from IBS) that we all seem to be different as to just what sets of our IBS: What we ingest, the time period between onset and finish; the 'kind' of stool produced; mucous or no – a host of differences between us. I am slowly learning, I think, what I can eat and not eat (and drink) to best help in an understanding of ‘MY’ problem.
I kept a diary for some months of everything that I ate or drank, the times, and the outcome. I changed my drinking and eating habits. I learned not to fill my stomach but take smaller bits and pieces over the course of a day. I chew my food well; drink lots of water. I have been prescribed anti-anxiety pills. I take a pill off and on if I think there is something coming up which might stress me. I find cooked white rice both filling and non-irritating to my gut. When I fail to look after myself (thinking I am back to ‘normal’) and the symptoms of IBS come charging back, I go to the freezer and begin to microwave rice that is always prepared.
– Name withheld by request
June 13, 2009
Most of my life I have suffered from nausea. When I was a child I went to the doctor all the time with this issue and all he could come up with was 'Food allergies' I can't complain because they really didn't know much about stomach issues back then, and he really was trying to help. After years of nothing we gave up. After I got married, one day my husband walked into the bedroom and I was passed out on the floor. When I came to, he asked what had happened, I told him that my nausea sometimes gets so bad that I get light headed, sweaty, and dizzy. That was the end of giving up! We went to a gastroenterologist and he thought it was 'in my head,' so we never went back to him. We found another but he was so busy doing OTHER things in the exam room that I told him there was a monkey in my stomach to see what he would say - he just responded with an 'I see'! Needless to say, I walked out. Finally, I found a great doctor!! Not only has he found ALL my issues, but he make me feel comfortable talking about things females HATE to talk about. Stomach problems are laughed at by some doctors so PLEASE be careful who you choose, bring a symptom list with you and try to make eye contact if possible. If the doctor interrupts you then you can be pretty sure he's not listening. Good luck all!
– Katie
April 8, 2009
I have been suffering from IBS-diarrhea for a little over seven years now. When I was in high school I always had a sensitive stomach, but figured it was nothing and that I just needed to be more selective about what I was eating. That was until I started college and the 'episodes' would occur at least 4 days a week, several times a day. I would be embarrassed to go to classes because halfway through a lecture, I would need to get up and make a run for the restroom. And, even after going I would still feel like the same episode could happen only minutes later.
Since then any time I experience any amount of stress or even any emotion beyond complacency, my stomach reacts and I am sent flailing to a restroom. It's horrible. My most recent relationship ended because my boyfriend couldn't handle the nervousness and anxiety I would feel about eating or being in public places without a restroom. And then because I was anxious and stressed, my stomach would react and I would have diarrhea, the one thing I feared happening.
These symptoms are debilitating to my social and professional life. I don't feel I can travel anywhere without knowing for certain I will have access to a bathroom. My relationships suffer because I don't feel attractive or desirable when I am gaseous and experiencing frequent bowel movements. And I can't take a work position that doesn't allow me to get up and disappear for several minutes at a time incase I begin to feel sick.
I have felt alone and frankly, abnormal for a long time now. It's nice to hear that there are others experiencing the same, or similar, symptoms and that work is being done to help people get back to their lives without worry of their digestive problems.
– Name withheld by request
April 6, 2009
I have had IBS, the severe diarrhea type, for 20 years now. I have been on alosetron twice, once before its withdrawal and again at the present time. For a short while, it really helped but it now seems to be losing its effectiveness. Once again, I have to be very careful of what I eat, control strong emotions, and know where all the bathrooms are in the area in which I will be. Traveling is very nerve-wracking, the sudden ‘urge’ and potential diarrhea episodes make vacations tense and much more difficult to enjoy. What does one do when the only real help, the only medication available, no longer works?
– Name withheld by request
March 29, 2009
Fifteen years ago after eating at a popular seafood restaurant, I experienced a cramp-like pain in my lower left abdomen. I was misdiagnosed as having a urinary tract infection. At that time, my bowels started to move slowly and at many times took on a yellow appearance, however, I did defecate each morning! This 'cramp' lasted for approximately 10 years when suddenly it disappeared! Unfortunately, the pain showed up days later in the upper-left abdomen and stayed consistently for another 5 years. This January, my sister passed away after a most courageous battle with ovarian cancer and I was stressed. Along came a new and most disturbing symptom... nausea and upper right sided pain, and extreme bloating. I now have these symptoms along with diarrhea, and loathe even the thought of food. I'm interested to see if anyone else has these symptoms because I feel so alone and isolated due to my symptoms. Gastro-docs are not helping! May God bless each of you in your sufferings and know that I'm praying for a solution.
– Name withheld by request
March 7, 2009
I am 24 years old and I have had IBS since I was 6 years old. I have problems with diarrhea and major cramps. I have been scared to leave my house and I don’t go very far from home, due to the worry of the IBS acting up. I have been taking loperamide almost everyday. I understand with others that it is very embarrassing. I hate having to go to the bathroom 4-5 times in a public restroom. I get very stressed and worried what others may think of me. Or if they are laughing at me. I also don’t travel far from home either. My husband gets mad when I don’t like going out with him due to all the bathroom trips. He will make fun of me, so I don’t think he understands how painful it is for me to go to the bathroom. And more so in a public bathroom. I wish there was a cure for this. I have lost many jobs due to it and I have two kids to raise. I hate having it so much. If anyone has any suggestions please share your stories.
– Melissa
January 13, 2009
Hi, I am currently at university studying law. That in itself is extremely stressful but my symptoms of IBS only seem to get worse when there is coursework. I was diagnosed a few years ago and given antispasmodic tablets. I only used these for a period as I realized that they only delayed my symptoms and only added to the physical issues I was already dealing with.
My symptoms include a fuzzy head, inability to concentrate, bloating (I sometimes look as though I am heavily pregnant, stomach cramps, diarrhea, constipation, frequent trips to the loo, heartburn, urgency to urinate. I have read symptoms from other websites and only a few had the same symptoms as me.
I am depressed as a result as it means I can't be my normal self – none of my clothes fit, as anything around my waist feels as though I am wearing something about 2 sizes too small. I constantly feel nauseous and I know my breath smells as people tend to turn away when I speak. This has knocked my confidence.
I finally found some improvement when I started to drink more water, started going to the gym a few times a week, and cut meat out of my diet, replacing it with vegetables. I didn't give up meat completely, but saved it for once a week, the rest of the week was fish. I felt so much better in myself but the sad thing is I couldn't have a day off from this regime. I also had a probiotic each morning. My symptoms had more or less disappeared. But I find it so difficult to stick to this regime because it is so time consuming. Does this mean that I am a chronic sufferer and have no other options?
– Name withheld by request
January 8, 2009
I am thankful that God brought this website my way. I, like everyone who have posted a story thought I was alone. Today I left work because of the embarrassing symptoms that I was having: Bloating, running back and forth to the restroom, and the GAS is just the worst. I work in cubicles and sit at the very end where everyone has to pass me to leave my row. The embarrassment and discomfort is daily.
I have spasms everyday and always feel like I'm going to the bathroom on myself. If I didn't need my job I would quit. I am pretty open with a lot of my co-workers about my situation, and they often sympathize with me during my daily stomach issues but, it still doesn't take away the embarrassment. If I didn't need food to survive I would never eat again.
Durn, it felt good to get this out. You can tell people who don't have this problem about how you’re feeling, they will listen but probably never understand it.
– Tiffany
January 5, 2009
I just wanted to thank others for their stories. I am 26 years old and have suffered from IBS for about 5 years. Recently it has become more annoying. I am quite tired, always have a bloated stomach, and also pain. I can relate with the others about being alone in this.
– Derek
January 2, 2009
I was diagnosed with IBS about 7 years ago, after a lifetime (I'm 55) of upset stomachs, diarrhea, bloating, constipation & gas. I've been reading some of your stories, and they are so familiar! I can laugh at some of my experiences now, although back then they were pretty terrible – like the time when I was 17 when I farted really badly in front of a boy I particularly wanted to impress. It took me years to get over the embarrassment.
The hard part, I know, is that IBS affects everyone in different ways. A few years ago I cut all except for very pure foods out of my diet, and gradually reintroduced potentially problematic foods. I've found I have a very low tolerance for dairy foods, especially milk. Milk powder is used as a filler in a huge variety of products from mayonnaise to cookies. I stand in the supermarket and read lists of contents on packets these days. I don't drink coffee or aerated/carbonated drinks.
The good news is I can eat fruit, vegetables, meat and eggs and soy milk. I bake my own bread and cakes when I can. So I manage a varied and interesting diet. For a dinner out, I find Asian food (but not Indian) is reasonably safe.
On the alcohol front, I rarely drink beer or aerated/carbonated wines like champagne, but I find spirits such as Scotch with water or ice (not coke or dry ginger) can be quite soothing, in small quantities.
My main point in writing is that having had IBS for most of my life, I’ve found it possible to live a full and varied life. I have a career (I'm an accountant), I've been married, I've had three children. I've also traveled, taking my diarrhea tablets with me. I use an off-the-shelf brand which works for me, and I make sure I always carry them. When I arrive at a new place I usually have an IBS episode, but once that passes, I'm fine.
Two things I regard as essential – drinking lots of water, and exercise, even if it's only walking. Both definitely have helped me. I have long periods where, provided I stick to my diet, I have virtually no symptoms.
– Jennie
December 28, 2008
I have had IBS since I was an infant. My dad has IBS and so does my first cousin. I really think it’s hereditary. Well now I’m a junior in college and it’s difficult but I refuse to let it get in the way of my everyday life. I guess it does to a certain extent. When reading all these stories I realize my situation is usually not as bad as others, although at times it has been.
It was way worse when I was younger. I didn't want to go to the bathroom because it hurt so much. As a result I always ignored the urge to go and before you know it two or three months had passed by. Yes, I would go two and three months without using the bathroom when I was younger. My system would be so backed up I had to spend a week in a children’s hospital. My mother didn't know what was wrong with me. I was depressed, it hurt to sit down, stand up and I didn’t want to eat. The hospital had to help regulate my system. After a week I was released and put on fiber, prune juice, and prunes but none of it helped.
Today, I still don’t have a remedy but I just have to remind myself every week that I need to go to the bathroom even if I don't have a urge. I really never have an urge because I resisted it when I was younger so I don't get it at all. However, even when I use the bathroom frequently it still sometimes hurts really, really badly to the point where I'm almost in tears. When I get to this point I usually do a mineral oil that my doctor prescribed to take only if I know I need assistance.
None of my friends know about this because it’s just too embarrassing to say. I wish there was cure but looks like I’m going to be dealing with this a long time. There is hope – mine has gotten so much better over the years. I just have to stay on top of it and don't let it progress or get out of control.
– Name withheld by request
December 22, 2008
I'm so glad I found this site. It's nice to see people, especially young people, who suffer from IBS.
I was told I had IBS when I was 15, but my pediatrician thinks I have had it since I was 3–5. My mother agrees saying I constantly had constipation and complained of pain in my stomach. When I was in 3rd grade I was miserable. I was told that it was 'all in my head'. So, I lived for 7 years thinking I was crazy. I thought I was a hypochondriac. The summer before my junior year I got really sick. The whole month of September I lost 30 pounds because I couldn't eat. I was fainting and just so sickly. My parents were so scared, and finally my dad said he wasn't taking it anymore and was going to find the answer. I went to doctor after doctor, which between being sick and going to the doctor I missed 30 days of school. Luckily, because of doctor notes and my being able to keep straight A's, I passed. I had tests done and blood taken. Finally they sent to children's hospital where I was diagnosed with IBS.
I am now a freshman in college. Every day I question if maybe I should go to the sister branch of my college, which would allow me to live at home until I was older and able to get an apartment on campus instead of dorm life. My first semester sucked. I constantly worried about how my condition would be that day. I missed so many classes because of pain and because of nausea keeping me up till my alarm went off. I went from a straight A student in HS to failing all my classes and being put on academic probation. I so badly want to be at home, just until I figure out what works for me, but I feel so embarrassed because my family (not immediate) will think I just couldn't do it. I already heard they think I won't finish just because I'm so shy.
Social-wise college sucks too. I can't be a normal college student. While everybody is bonding over late night pizza, pop and even booze. I am sitting in my room fighting off nausea and gas. I feel so alone because I can't do those things and I never will be able to.
My boyfriend is really great about my IBS but I fear one day he will just get tired of it. I understand why, but if he just understood what I go through. I hate that IBS runs my life as much as it does.
I am on my winter break and I don't want to go back to college… at least not back to my dorm. I hate the fact that I hate college. I want to love college but I can't – at least not while I live the dorm life, sharing bathrooms with complete strangers.
– Chantell
December 12, 2008
I am a 57 year old female who had all 3 of my children by C-section and have had no injuries to the rectal muscles. I have had IBS for as long as I can remember. Within just the past month, I have had two incidents while asleep where I had diarrhea and had an accident, had to get up and shower and put all the bedding in the washer and remake the bed, while crying. It was hard to go to sleep, I was shocked and ashamed and could not believe it happened. But 3 weeks later, it happened again, after having a day of mild IBS pains which I am used to, but had unusual gas that day and even as I went to sleep that night, I still had extreme amounts of gas even though I had eaten nothing strange or unusual from my regular diet. It does not take anything strange to set off my IBS. The third incident happened just this morning after I had been up for half an hour and was going about my daily routine. I felt the urge to go but missed getting to the toilet by maybe a mere 3 seconds. I had another shower and laundry scene, cleaning the toilet, etc. I finally told my husband but no one else. I don’t know which one makes me feel more like a leper, the nocturnal ones or the wide awake accident. I have been taking anti-diarrheal medicine at bedtime, in fear it will happen again. Sometimes that over the counter medication causes severe problems upon awaking, as it did with me this morning. I have learned to listen to my IBS when it talks and plan my routine around it pretty much, but this past month or so, I cannot always rely on the signals and am reluctant to go out much. This disease does not 'show' on the outside, so even good friends are not always understanding. I am aware of this so I keep it to myself. It could be so much worse.
– Name withheld by request
November 7, 2008
I was diagnosed with IBS in 2004 when I was in graduate school. I was glad to finally have a diagnosis but when the doctor told me nothing could be done about it except be given drugs for pain I was completely stupefied. I was given several different drugs over a month, but couldn't function at all normally because of side effects. I was completely unsatisfied and frustrated. I don't want drugs for pain, I want a cure or something that will reduce the occurrence of symptoms. I have found out over time that stress and certain foods are triggers for me.
I started seeing a nutritionist who gave me a lengthy symptom questionnaire to fill out before my first appointment. It had questions pertaining to every major system in the body. I was interested and hopeful. She altered my diet and suggested I take several supplements. The diet has been difficult to say the least, but I am determined to try to take as much control over my sickness as possible. It helps me physically and psychologically. I have learned how to cook through this whole experience and am grateful for that and for having reduced symptoms.
I also started seeing a therapist who has helped me deal with stress of daily life better and has helped me reduce my anxiety. She has given me perspective of my anxiety and life.
It is incredibly disheartening to know that I can't do everything I want to do, but I am thankful for what I am able to do. I've decided to continue on my diet, take my supplements, do yoga and meditation, and work on dealing with my stress. They are the best tools I have to try to feel better and have a “normal” life. I am forever grateful for the help my nutritionist and therapist have given me.
– Elizabeth
September 1, 2008
I have struggled with constipation and occasional diarrhea my whole life. When I was little I always struggled but my mother didn't allow ‘potty discussions’ so I didn't talk about it. I've always had terrible gas. When I went to slumber parties as a kid, I'd wake up to everyone making fun of me for my gas all night long. It was humiliating. I told my mother and she said that my story was ‘disgusting’ and to never tell her that kind of thing again! I needed help!
It wasn't until I was in college and had roommates that I realized how abnormal my bowel movements and gas really was. We'd go out to eat a meal and a while later they were in the bathroom. I didn't have to have a bowel movement. I could go weeks without one. When I FINALLY went to the bathroom hardly anything would come out. There would always be stuff right there but it wouldn't come out. And, actually, soft stools were more problematic than hard ones. It was like paste and I couldn't ever feel ‘clean’.
I wake up in the morning with a flat stomach but as soon as I take a bite of ANY sort of food my stomach bloats out like I'm pregnant. I often have severe abdominal cramps. I have gas CONSTANTLY.
Nothing has helped so far. I have to take more than 20 laxatives every two weeks or so just to ‘cleanse’ my system because I never seem to evacuate my bowels completely. No one has helped me. I still haven't told my husband because I feel so disgusting.
Often I have to put on medical gloves and go in there to help get stuff out. I feel so gross just writing this! But what can I do? It can't just stay in there. I'm miserable.
I don't feel good. I'm ashamed. I'm so bloated and uncomfortable. I pray that this issue will be resolved and taken seriously in the medical community. My quality of life has suffered. I can't imagine what it will be like for me when I'm an old lady!
– Name withheld by request
August 31, 2008
I've suffered with IBS since age 13. I've always felt alone with it, I've felt that I've had to hide it... I've been ashamed. It's great to have found this site and see a light at the end of the tunnel.
– Name withheld by request
August 10, 2008
I have had symptoms since age 10, and am now 55 years old. I always attributed it to IBS, but just last an endocrinologist tested me and confirmed that I have Celiac disease. Celiac disease is an autoimmune disease brought on by severe allergy to wheat and gluten, which causes the body to attack the intestines, destroying their ability to absorb nutrients. My symptoms also mimicked IBS: the hours and hours of cramping, attacks of terrible diarrhea. Stress just made everything much worse.
I would advise anyone with IBS to explore the possibility of Celiac disease, which requires - initially - a simple blood test to detect. Some doctors go on to intestinal biopsy as another tool, but my biopsies were inconclusive, while the blood test was glaringly positive!
[Editor’s note: Find out more about celiac disease. Go »]
– Ann
August 4, 2008
I have suffered from constipation, bloating and gas for about 20 yrs. It started in college when I was under a considerable amount of stress and subsided when I graduated. It resurfaced in a teaching position a year or two later. The teaching duties were stressful enough but dealing with the constant bloating/embarrassment was unbearable. In the end I left the profession but the stress of dealing with the job and my IBS symptoms led me to develop major depression
For the last 12 yrs I've been in a job as a store manager which is challenging, but not as overwhelming as teaching. I still have bloating every day but it's more manageable because of things that I'm doing to take care of myself. I changed my diet, exercise regularly, and worked out a bowel management program to help control my bowel movements.
I just started seeing a nutritionist and she has been very helpful with suggestions since she has struggled with IBS in the past. I'm concerned about always cutting out otherwise healthy foods which aggravate my IBS symptoms and she is helping me avoid that. When I'm done eating I spend time 10 min meditating at the table repeating two affirmations: 'I have perfect digestion' and 'I rest after eating'. Occasionally I need lubiprostone or a stool softener or an enema but I would rather rely on fiber and water doing its job than to always rely on those stronger measures.
Thank you to everyone who posted stories like this one on the IFFGD websites; it helps me to not feel so alone with this chronic health issue. My hope for all of us is strength, perseverance, stress relief and understanding friends/coworkers. Be well!
– Name withheld by request
August 2, 2008
I was officially diagnosed with IBS today. I knew that there has been something going on with me for many years and it has always been a very embarrassing subject with me. I have had tummy problems for as long as I can remember and my hubby just thinks it's all in my head. I am 31 years old and I have a daughter that I'm pretty sure is going to have the same problem as me.
This has just made me totally depressed because I know that I am not alone but I am alone within my family because no one understands what I am going through. My husband gets upset if I tell him that he has to watch our daughter for awhile because I'm ‘camping out’ in the bathroom for hours. So I try to suck it up as much as possible and not complain but I also have no one to talk to. This is a very lonely problem.
– Amy
August 1, 2008
There is no question I have a sensitive digestive system - and stress makes the symptoms worse. I read some of the testimonials here and not everyone talks about depression or anxiety – but I find that goes along with the abdominal pain.
It seems to be a chicken and egg question - because I read that IBS can cause depression and anxiety - and depression and anxiety can cause abdominal and other pains.
Here's hoping your symptoms improve.
[Editor’s Note: See the article from IFFGD Research Award winner Bruce Naliboff, PhD for an explanation of this topic. Go »]
– Norman
July 31, 2008
I am so thankful to find this website! I'm 21 years old and have been suffering from IBS since high school. I seriously can relate to every single person’s problem on this website whether it is people telling you that your stomach problems are from stress, or that it’s just in your head, or people just totally not understanding the severity of the pain.
For a long time I really thought that my problem could not just be IBS, that it must be something worse but after a colonoscopy and several other tests come back negative I just decided to agree with the doctors. It helps to know I’m not alone with this. I wish everyone well and here’s to finding some treatment that actually works!
– Heather
July 28, 2008
I was in college when I was diagnosed with IBS. I had been having almost constant diarrhea. Finally when I was at the campus clinic for a cold, I asked about the bowel problems. The doctor told me I had IBS and I should eat more fiber. What a load of help that was...not. I spent the last five years finding my own triggers and crying and wallowing in pain and informing people who are around me. This is part of who I am and I think people should accept it. I am fortunate to have a family that suffers from bowel problems so everyone understood and my boyfriend turned into husband has been incredibly supportive.
I have had my share of embarrassing moments. I remember taking a test in my psych class and having to ask to be excused to go to the bathroom. I had a great teacher who let me go and come back to finish the test. I had to run the entire length of the building to get the women's bathroom and barely made it in time. It was extremely embarrassing explaining it to the teacher afterward, but she was very understanding.
Now I'm a kindergarten teacher. I can only go to the bathroom at certain times of the day. Still there are times I have to fight intense bowel pain to stand up and teach my students or sit and read a story. Another teacher across the hall has been my savior, because when I can't hold it in any longer I can pop in and say watch my kids please! Then I run down the hall to the adult bathroom. Equally embarrassing is the gas that comes with it. Fortunately, five year olds have great potty humor and it is good reminder that everyone has gas.
Public bathrooms are nightmares when you have diarrhea. Is there anything more embarrassing than the nasty wet loud poop followed by the inane giggling or sniffing by the other bathroom occupants? I know I sometimes wish I could flush myself down the toilet instead of having to walk out of the stall.
Remember you are not alone out there! Often you will find that people can be very caring even when they don't fully understand. Also, you never know when the person next to you in class or at work has the same problem and is just as afraid or ashamed to discuss it.
I still struggle with IBS, but I have been slowly changing my diet and habits to meet my needs. Just because IBS screws with your GI tract does not mean it has to keep you from your life. People can't understand until you inform them! Then if they don't understand maybe you need to find some new people.
– Dixie
July 27, 2008
I have been dealing with IBS for many years. I don't travel any more because of the IBS and when I do go somewhere I need to know where the bathrooms are so I usually don't venture very far from home.
The hardest part for me is the anxiety it causes and the difficulty in getting people to understand the impact it has on my life. I think a lot of people don't get the fact that it's a serious hindrance to a persons' life. I missed both of my in-law's funerals, who live a good distance away, because of my fear of traveling. That doesn't go over very well with most people and in many ways I can see their point. But when I'm on the road and what I call a "gut attack" takes place, I usually have to go several times in a short period of time. Stopping once and then having to wait for the next rest area which may 40 miles up the road just isn't an option. The cramps are usually too severe and the need even greater. I also deal with an anxiety/panic thing when these attacks occur on the road or when I'm away from home. For the most part, people are pretty understanding, but it is hurtful when someone just doesn't "get it" and judges me for it.
– Andi
July 22, 2008
I was diagnosed with IBS when I was 22 years old. However, after my diagnosis, my doctor wasn’t able to help me treat my symptoms, which fortunately only occurred a few times a year. I went two years trying to treat myself with moderate success. I finally sought professional treatment after suffering daily symptoms while on deployment in Iraq. Apparently the increased stress I was experiencing was taking its toll on my intestines. I was put on a mild antidepressant and a stool softener. Both helped within a week. The only problems I still encounter happen when I lapse in my diet and eat too much dairy. I also found that I can’t take the antispasmodics with the antidepressant so I'm still searching for help with abdominal cramps. For now I'm just trying to find a way to live with my stress while in Iraq while looking to the future when I'll be in more control of my surroundings and diet.
– Name withheld by request
July 20, 2008
As far back as I can remember I have had issues with my bowel. When I was a baby it was constipation. When I was a teenager I started having the spastic colon, and diarrhea. I remember not even being able to laugh during a movie for fear that I would lose control. The pain was so intense and sharp at times that I would double over, screaming.
By the time I entered college things had really gone downhill. I wanted to be like everyone else and be able to drink and eat what I wanted. I paid severely for it. I had ‘hidden’ bathrooms all over campus. The heartburn became unbearable at times, keeping me up all night.
Eventually, my wild ways slowed and my symptoms lessened. There have been times of severe flare ups, when my life is extremely stressful. I am 27 years old and want to feel normal. I am tired of nausea, indigestion, stomach pains, no energy and lack of nutrition. I eat well, rarely drink, don’t smoke.
I hope this makes someone feel like they are not alone.
– Name withheld by request
July 13, 2008
I’ve suffered with IBS symptoms ever since I can remember. First mistake: I did not know it was a medical problem and I ignored it. As a child, I thought it was embarrassing to mention something like that to anyone and to be honest I still do, which makes me feel bad every time I get the pain and need to visit the bathroom. That stresses me even more and makes the symptoms stronger and more painful. I have tried every kind of treatment. The problem remains. I now understand that no doctor or treatment will cure me. So I fight this thing by myself.
These are some of the things I do to face IBS: Every day in the gym no matter how tired I am. At first I had problems in the gym because of the IBS but I did not quit and now I enjoy that time very much. I avoid food that I have found makes my IBS worse. I try not to panic every time the IBS hits. This is very important, but it is hard too. Wherever I am I visit the bathroom as many times as I need and I don’t care about what others say. It was that or staying home for the rest of my life. I picked the first one! I talk about my problem to people I trust. It makes me feel better and I also try to use humor. Most importantly I never accept defeat. In my case at some point I felt that whatever I do I’ll never be able to live a normal life because of this syndrome. That is the worst thing that this disease can do. So my advice is never quit, do things that make you happy, and feel good about your selves.
– Name withheld by request
July 9, 2008
My bout with IBS started about seven years ago. I got really sick (was in bed for three weeks) and was prescribed a number of antibiotics. Soon after that the IBS started. On a bad day I am in the bathroom 6-8 times. I went to various doctors, had numerous test and everything and everyone said I was just fine. There was no way everything was fine. The worst was having accidents in public, especially at dinner parties. To have to suddenly leave because I had an accident was really embarrassing. Having it for seven years, I have leaned some ‘tricks of the trade’ if you will. I am not a doctor so please consult yours if you have any questions. Hopefully some of you will find this helpful.
To describe my IBS, my symptoms include frequent diarrhea, cramping, occasional bloating, in extreme cases, mild dehydration.
Over the years I have learned to live with my biological misfortune (I also have Cerebral Palsy) and here is how.
1. I always pack a set of clothing in my trunk. I try and have a black pair of pants and a pair of khakis. (Most commonly what I wear so if I have to change most people will not notice.)
2. For the diarrhea I take an antidiarrheal plus an antigas OTC. Takes care of the diarrhea and bloating for about four-seven days. I can tell by my bowel movements when it's time to take more.
3. Periodically I will stop taking any medicine for a few days to see how my system is doing. There have been a few times where I can go three to four months without needed anything. As soon as the symptoms come back, I continue taking the above regimen.
4. I have found that drinking soda prolonged the worst times and greatly increased my discomfort.
As you probably know, you are not alone. I know how lonely this can feel. My only advice is, find out what works for you and fight it head on! IBS is only disabling if you let it be.
Hopefully my experiences will help someone. I know how it feels to be searching for help and feel like there is nothing out there.
Good Luck and keep pressing on!
– Name withheld by request
July 6, 2008
It all started in my first year at University. When I had to take my exams in May 1994, I was very stressed and I had bloating, diarrhea, and urgency. The urgent need to go to the toilet happened many times a day. It’s still going on 14 years after, however I discovered that if I avoid certain foods I feel much better.
For me, I do not eat any food that is made from wheat flour and cow’s milk. I only drink milk and milk products made from goat’s or sheep's milk.
However, having to follow a specific type of diet is very tiring. But I believe I have to follow this diet as it is the only thing that helped me so far to feel better and have a better quality of life.
– Zoe
June 27, 2008
I believe I have IBS and have had it for as long as I can remember in a mild form. Recently it has become a very big problem with all the typical symptoms as described by other contributors. I am so concerned at work as I need to use the bathroom frequently, which in itself is not a problem, but the noisy evacuation has been worrisome as I am sure it can be heard in the workplace and in neighboring offices. I guess everyone is being polite, but I do not know whether to explain things to my work colleagues or not. Any suggestions?
– Embarrassed
June 24, 2008
I remember being diagnosed with IBS as a teenager, but can't recall my symptoms being this frequent or severe back then. I am now 28 and I've been dealing with IBS on a regular basis for about 3 years.
In March of 2005, my husband had a grand mal epileptic seizure. Fortunately, I was home when he had it and was able to help him and call 911. Unfortunately, witnessing this event affected me tremendously and caused my IBS to come on full-swing. I was so upset that I wasn't sleeping and barely able to eat for weeks.
I have worried about having everything from appendicitis to cancer at one time or another, depending on where my pain is focused at the time. It makes me feel like a hypochondriac, but I don't want to be stupid and ignore symptoms that might be life threatening. It is frustrating to never be sure if it really is just IBS, or if you need to be taking a trip to the ER. I noticed that several people are fearful of their symptoms being something more serious. It’s a scary thing to live with, and as everyone has said, unless you have it, you just can't understand.
Thank you to everyone who has shared your stories. I feel so bad for the people who are suffering far worse than I am and hope they will find relief. I have to say that reading all these stories does make me extremely fearful that my IBS will not get better, but worse, in time. There have been days with my combination of digestion issues and IBS that I will just cry in frustration feeling totally helpless. I can't imagine feeling any more sick than that and being told by doctors that they really can't do anything to help. I pray for all of us that we will get better and learn how to cope with this burden. I am sick and tired of being sick and tired! ‘God grant us the serenity to accept the things we cannot change....’
– Name withheld by request
June 24, 2008
I am going to be 50 years old next week and have had IBS for the last 5 years. I have pretty much given up hope of having any kind of normal life. If I don't have the runs then it is constipation. I have had every test possible and tried every drug on the market. I will get relief for a few weeks and then it starts all over again. I am in danger of losing my job (yet again) because of attendance issues. Sometimes the pain is so bad I just sit and rock and cry. I have tried food diaries, high fiber, low fiber and not eating at all. Nothing seems to work. All the doctors say is that it will not kill me. However that is scant comfort when financially and emotionally it gets worse and worse. My husband is very understanding but even he gets frustrated when I don't know what has triggered the latest attack. At least reading the stories here has let me know I am not alone. I do know this is not in my head. But I certainly hope they find something soon to help with this.
– Name withheld by request
June 18, 2008
I've been suffering from IBS for several years, I have been prescribed antispasmodic and anti-anxiety drugs, but they have not helped, I still have constant stomach and abdominal pain and lately I’ve been feeling nauseous almost all the time, I have been tested for Crohn’s and Celiac disease and everything comes back negative, I don't know what else to do because I’m always in pain and tired, I’m only 30 and have two very active kids. I don't want to be locked at home because I’m afraid to go anywhere. I honestly don't think it is IBS because my pains are all the time but I don't know what else to do.
– Name withheld by request
June 15, 2008
[Editor’s note: The degree and intensity of pain is an important determinant of the severity of IBS. A significant proportion of people with IBS report constant pain. For information on pain management, log on to our Learning Center Library. Go » ]
I am very young, 16 years old. I believe that I've had IBS all my life, and I feel that it’s getting worse now. It has been very embarrassing but I’m learning to deal with it. I’ve always felt like no one understands why I’m always so cranky. If they had to live with this they might understand. I'm thinking about being cyberschooled at home because it’s just so embarrassing, but that may ruin my future. I wonder all the time why I had to be picked to experience this. I just wish it would go away.
– Name withheld by request
June 15, 2008
I have just read some of the stories and I felt much better than before, knowing that there are a lot more people in the world who are having similar digestive disorders like me. I am only a 19 year old girl from Spain, and I started with this problems almost two years ago.
At the beginning I started not feeling well with some kinds of food, so I begun to be more careful with what I ate. However, instead of improving, my stomach got worst; I had a diarrhea every few days. I ended up last summer with an appendix operation because all my family thought that that was the reason for my diarrhea.
But when I began the university this year, everything was the same, or even worse, with even more frequent diarrhea. Now I have gotten to a point where I feel I don’t have enough energy to continue fighting. I have reduced the variety in my meals so much that I am fed up of always eating the same thing. Everybody I speak to says to me that it’s just the stress of exams that is the cause.
In my opinion, maybe the stress has something to do with it, but obviously my digestive system has something wrong too, and I wish to find some medicine soon.
I hope you understand my problem, because my friends always say, ‘poor you’, but in the end they don’t feel at all like I do. Thanks a lot to everyone who reads my story.
– Name withheld by request
June 12, 2008
I am 40 and have suffered with IBS since I was a pre-teen. It has been better and gotten worse at times. After the birth of my sons, I had more episodes. It is very tied to my hormones and going on a birth control pill that limits my menstrual cycle helped a lot. I am currently having many episodes due to the removal of my gall bladder. I have a job that I work at in different towns.
The best advice I can give is know your triggers like what you can eat and stick to it when you have to go out (just like a diabetic), surround yourself with supportive and understanding people that have your best interest in mind, and don't be afraid to use a public restroom. I am a "girly girl" and this took me years to get over, but I won't compromise my life or lifestyle over what other people may say about a physical condition. They wouldn't laugh or make fun of someone with cancer, epilepsy or any other aliment they can't control. So live your life, research your disorder and be strong.
– Name withheld by request
June 11, 2008
I am 30 years old, and I have suffered from IBS for as long as I can remember. When I was younger, even in college, it was manageable. It did not control my life. I would get IBS attacks but I would tell my close friends and they had my back.
Now that I am older, the IBS has gotten to the point where it controls me. I travel as little as possible. I turn down invitations for a social life because I don't want to get sick. Of course, worrying about getting sick usually makes me get sick. If I could only convince my mind to help my body! But generally, I get diarrhea two or three times a day, regardless of what I eat.
However, I have also learned that I can't NOT eat. I get weak and light-headed. My plans to just not eat all day so I can have a good time backfired.
Most people think I am exaggerating and don't get me. They actually get mad at me when I tell them my IBS is the reason that I can't go out. I have an apartment with 2 bathrooms even though I live alone because it relaxes me to know that one is always open.
It has also interfered with my relationship with men, needless to say. I always say I wish I could find a man with IBS and we could spend the rest of our days being sick together!
Hang in there, everyone, and don't be afraid to tell people about your IBS. Even if they don't understand, they usually won't make fun of you.
– AMS
June 10, 2008
I have been having problems for a few years and didn’t know what the problem was until recently, when my doctor referred me to a specialist. He found that I have been suffering from IBS and finally I feel like I can put a name to this awful monster that entered my life. Now the hard part is to find out the foods that trigger the bouts of diarrhea that hits at the worst times. I was told by this doctor to keep track of what I eat and to try and see what triggers it and what I can eat without problems. I was told that one size doesn’t fit all and that what causes it in one person doesn’t necessarily trigger it in another. I am so glad to see that I am not alone...Good luck to all and good health.
– Stephanie
June 5, 2008
[Editor’s note: Food or eating is just one of many triggers that can aggravate IBS symptoms. Use the IFFGD Daily Diary to help sort out your personal triggers. Go»]
I am a 38 year old woman, working in the big corporate world. I have been suffering (I use this term mildly) for over two years with social anxiety and now IBS. I am seriously considering quitting my job as the sudden spasms accompanied by severe pain are starting to impinge on my performance in the workplace. I cancel client lunches, avoid promotions, and travel as little as possible. But how much longer will the Execs put up with this?
I give many thanks to the Gastro specialist who spent over an hour with me in his office today, educating me on my condition that now has a name. It is specialists like him that give people like me hope.
– Name withheld by request
June 5, 2008
I am so glad that I came across this website and found so many other young people suffering from IBS as well, because I thought I was the only one! I am only 21 years old and have suffered since I was 15 or 16 years old. My junior year of high school, I missed 28 days of class due to intense abdominal pain, mixed with diarrhea or constipation. It just came right out of the blue and has persisted up until now, and it is getting worse.
I have missed out on so many events as well as important things due to the way I feel. I've had every diagnostic test in the book because no one could find anything really ‘wrong’ with me... colonoscopies, CAT scans, MRIs, upper endoscopes...you name the test, I've had it, and I'm so young. I've been given so many prescription meds I could open up my own pharmacy, yet none of them ever work!
The worst part is being told that ‘everything is in my head.’ People think I'm crazy because medical tests show nothing. My friends are getting irritated because I always say no when asked to go out, or sometimes when I'm out, I have to go home because I don't feel good. It's the most terrible thing ever, and I have missed out on so much because of it. The worst part is that none of my friends or family understand because they don't know what it's like to live like this. I hope that something can be done about this disorder because it has really prevented me from doing a lot of things, going a lot of places, and more. I am glad that there are other people out there who share my story and can relate!
– Natalie
June 2, 2008
Hi, I am a 22 year old college student, my symptoms of IBS became very strong when I was 17. I had stomach pains so bad that I stayed up crying at night in my mothers arms. I was finally diagnosed with IBS and have been struggling with it since then.
I have been to may different doctors- all of them have suggested different diet techniques. I have come to believe that with IBS, there is not just one diet that works for everyone, you have to explore different foods. Its hard because before I had IBS I loved to try new foods, now I have found that most of the time new foods upset my stomach and I am forced to choose plainer foods – which I don’t mind because in the end I feel great. What’s hard is to look at other people who are free to do, eat and drink whatever they want, while we are here struggling not to be bloated or in my case (constipation) pass a movement. Honestly, I don’t think I would be as positive as I am today without telling people about it. If someone asks what is wrong, I tell them what is going on with my stomach and how I have IBS. You would be surprised with how many people can relate to it!! Also, if they have experienced something like it, their solutions may help you out.
My now husband, has been by my side for 3 years now! He is the one that has to help me with the medicines. He is amazing, he sits next to me when I am in the bathroom, and starts a casual conversation to get my mind off things. His support is endless!
I have found that by reading a book, or even bringing my laptop to the bathroom to concentrate on has been a significant help. Sometimes my muscles contract at the wrong times preventing my bowel movement from taking place. When concentrating on other things, my muscles relax and that helps.
I guess why I am writing is because I was overwhelmed by the amount of people who are afraid to talk about it. DONT BE! I'm not going to say that some people aren’t going to be grossed out about it... but we have what we have. And I’ve found that those who are closest to me understand and appreciate my honesty.
– Jennifer
June 2, 2008
I started having gas and indigestion problems soon after high school graduation (1959). I remember being at a formal dance and I had awful gas cramps. I was wearing a tight fitting formal dress and all I wanted to do was go home and get out of that dress. I've had intestinal problems off and on all my life. For many years I had heartburn which increased as I got older. I now take a PPI, which has solved that problem. However, I suffer from violent gas cramps, bloating and intestinal pain at some level nearly every day of my life. Sometimes it's really bad, for instance, it will start up just as I'm going to bed and I'll be unable to sleep all night. I tend toward the constipation end of IBS, although I don't every get seriously tied up. I had a colonoscopy about two years ago which came out normal. So I was told I have IBS. I was sent off with nothing more.
What's really frustrating is that I cannot see any pattern. I can't connect a violent gas attack with any particular food. When I have a bowel movement, I feel temporary relief. That means for about 5 minutes. My bowels can be fine, but I'll still have this awful gas and pain problem. I can't burp it up and I cannot expel it. I try to go about my business as normal, but sometimes I have to lie down with a hot pack on my stomach. I've been invited to visit relatives in other states, but I don't go because I think, what if I have a big gas and pain episode, the kind that goes on for days and days. I'm embarrassed to tell people I have such a physical issue, so I make up excuses. I live alone. I retired last year and I'm basically healthy. I exercise a lot; I swim, power walk, ride a bike and do dance aerobics. I get some relief from exercising and I'm slender. I do a lot of drawing and painting but sometimes I can't get into artwork, because I'm so uncomfortable. This really bothers me because my dream about retirement was to get back into painting full time.
I don't know where to get help. I've read about all the foods that cause gas and it seems like everything does. I can't live on fats and proteins. It seems like doctors don't much care. They get their fee for the colonoscopy, but offer nothing else. You go off with no solution. I'm a pretty upbeat person, look on the positive side of things most of the time. But there are times when I lay in bed and cry because it's 3:30 a.m., I'm so tired, yet I cannot sleep because I have cramps. No one knows this, I've never even told my internist. I wish I could find a doctor or other professional who could help me figure out a diet that might help. I normally eat a low-fat diet with emphasis on fruits, vegetables and whole grains. If I tried to eliminate foods that produce gas, I'd starve. I'm 66 years old. Medical science has conquered Polio, Pneumonia, T.B.; great strides have been made with AIDS; successful organ transplants are commonplace; cataract surgery is a breeze... and so forth. But I have been suffering with this chronic problem since 1960, that's about 48 years, and here I still am, my enjoyment of life blunted. One more thing: I had chemo for breast cancer in 2005. While I didn't become actively ill from it, my stomach was in an uproar. I felt like I had gas in my face! It seems that ever since then, the episodes of cramps and bloating have been more frequent. It's a lonely experience.
– Name withheld by request
May 27, 2008
I am a little over 50 and was diagnosed with IBS when I was only 19 years old. I have lived with this condition for years, and don't really know what my exact triggers are. I have medication that I take that is the equivalent of the GI cocktails I used to get in the ER's. I don't take it all the time, just when the IBS starts. I get really gassy, bloated, and have a lot of pain. Sometimes it is so bad I don't make it to the bathroom. I do have to watch what plans I make, and I always check in advance (even when I go shopping) where the bathrooms are. I have a change of clothes with me if I am not near a bathroom. It has been this way for me for years.
I have had numerous endoscopies done, and the only thing I have been told is that my lining is ‘irritated’. Tell me something I don't know. The pain is awful, too. It feels like labor contractions, and sometimes I double over it is so bad. I don't take pain medications, but I do take I do take one that helps to reduce the painful spasms. I use simethicone quite a bit to reduce the flatulence, as that can be very embarrassing. I hate having to call off work, or leave work due to my condition, as that is embarrassing as well.
I do know that when I eat a lot of fiber, which I was told is supposed to help, it has the opposite effect on me. I try to stay away from fiber and wheat, fruits, cabbage, beans, onions, greasy/spicy foods, etc, as I know from my experience that these items don't help. Also no sodas, no juices, no milk. No alcohol! Just plain water.
Usually I don't eat during my episodes, but if I do, I limit it to a ‘BRAT’ diet: Bananas, Rice, Applesauce and Toast. No butter, just plain. I gradually ease back into my ‘normal’ diet after a couple of days of relief.
Hopefully my suggestions will help someone else who is having this problem.
– Name withheld by request
May 27, 2008
Hi , my IBS has been with me since the age of 16, I'm 51 now. I have been to several doctors, had all kinds of tests done, and not one could tell me how to treat it . My Mom also has it and so does my daughter who is 32.
The pain is so severe that I would have to take a pillow with me to keep my neighbors or family from hearing the moaning and from passing out from the pain and hitting the sink or the tile floor! After an hour of that I would be as white as a ghost, my clothes so wet from the sweating, and I was tired and exhausted . I just found out after years that there may be a way for me to eat for my IBS. I am looking for a list of foods that don't trigger IBS.
– Name withheld by request
May 26, 2008
I was diagnosed with IBS 15 years ago. I just couldn't believe that my symptoms weren't something else – I was in so much discomfort. I was frustrated with the doctors just turning a blind eye to what I was feeling. Every few years I convince my family doctor to conduct further tests just to make sure... yup... still IBS. Is IBS a catchall for digestive woes? My brother also suffers from IBS but his symptoms and food triggers are different from mine. He suffers from no bloating, where I always look like I am 6 months pregnant. I noticed that someone put down that they have cut out wheat products. I believe this to be one of my triggers as well. But no doubt about it, my worst trigger is stress. Stress and IBS seem to have the same amount of impact when begging for help: No one understands or respects what it feels like and I have found nothing that can be done to take away the pain of both! I believe I suffered from IBS in my teens. I am frustrated that I have spent 15 years trying to find ways to manage my IBS – I think I have and then the symptoms change and I start fresh. I am still in my 30's and can only hope and pray that I can find a way to manage my symptoms soon or researchers discover why so many of us have to suffer and hide.
– Name withheld by request
May 26, 2008
I hate IBS. I'm glad to know that others know how it feels, because I feel like such an idiot when I get immense pain and everyone thinks I'm exaggerating. I've had IBS since I was about six, I think, and I'm almost fifteen now. I don't go to the bathroom for about three days, sometimes more. Then I start to get the worst pain ... I always pray that I'll faint or something, just to drop the pain away. I was free of symptoms for about one month a while ago, and then I went on a trip to D.C. Ever since then, the flare-ups are more constant. Last week I had the pain and I got so aggravated that I drank a laxative tea. Big mistake. I needed it, but it caused the pain to worsen throughout the night and I ended up going to the bathroom about seven times that day. Horrible. I lost a significant and noticeable amount of weight. At this moment, I'm enduring the pain. I have to go to work soon and suffer through it with a fake smile. I despise IBS. It's sad that so many people have go through it, but I'm glad to know that I'm not alone. Ow!!
– Name withheld by request
May 24, 2008
I have suffered with IBS for a number of years prior to being diagnosed. The most distressing thing for me is incontinence and the ensuing depression which this evokes. I have given up well paid jobs because of it and have suffered a severe loss of social life.
It seems that my whole life is dominated by my bowel to the extent that some days I am afraid to leave the house. I have encountered severe incontinence where my bowel has evacuated itself in the street, in my car and once in a store when we were on holiday in America. I get none or very little warning. There is absolutely no control over it, I can only try to reach a toilet, which isn't always successful.
The other type of incontinence is where my bowel releases smaller amounts of stool frequently throughout the day without my realizing it is happening. This again results in me being afraid to leave the house and I get very down at constantly having to clean myself, wash my underwear and shower only for it to happen again a short time later. I am becoming more and more desperate and am at my wits end with it all.
– Name withheld by request
May 21, 2008
I was originally diagnosed with IBS about 15 years ago but I believe it has been with me all my life. From as far back as I can remember I have suffered from stomach problems. I am also lactose intolerant, which adds another factor to the drama. I have tried different prescription drugs and have changed my diet many times over the years but nothing seems to really work effectively. I lost about 75 pounds in a year and a half because I decided the best way to treat my symptoms was by not eating. My family thought I was on drugs and tried to have an intervention until I fully explained to them my life on a daily basis. Bloating, cramping, diarrhea, constipation, spasms so bad I cannot stand up… I had an episode so bad last year I had to go to the emergency room. My whole life revolves around my IBS. I am sitting here now writing this story and I want to cry because my stomach is hurting really bad and there is nothing I can do about it. Depressed does not even begin to cover my feelings right now.
– Keisha
May 21, 2008
After reading through some of the stories, I am realizing I guess my doctor is right with IBS. I just have so much pain that I keep wanting them to find something that can be curable. My doctor wants me to have another test, a barium swallow, to make sure my stomach is not herniated.
I used to have severe constipation, probably was lucky if I could go to the bathroom once a week. I started on the tegaserod and when it went off the market I started on lubiprostone. I guess you are supposed to take it twice a day, but right now I take it only once a day. I have to have the right time to try to take it in the morning so it won't interfere with work.
Since taking the lubiprostone, I can have a bowel movement every day. My problem is the swelling and upper abdominal pain and distention. It seems that everyone talks about lower pain... my is upper... so is that IBS? [Editor’s Note: The pain or discomfort of IBS can occur anywhere in the abdomen.]
I am so tired of the pain and not wanting to go anywhere because of bloating and soreness. I can hardly stand to touch my upper right abdominal area. It is extremely tender. The pain never goes away.
Finding out that there is really no cure and the stories that everyone goes through has not helped me... it only makes me feel it is hopeless.
– Name withheld by request
May 19, 2008
[Editor’s Note: There are virtually no diseases that have a ‘cure.’ The only drug that cures a condition is an antibiotic for an infection (and even this is being challenged by resistant strains of bacteria). Fortunately, many diseases are short term and resolve on their own like the common cold or the flu. But in chronic conditions symptoms persist. There are many different chronic conditions that between them affect all systems of the body. Treatments, whether drug or otherwise, are aimed at reducing symptoms. There are a lot of contributing factors to IBS. It takes time and research by each individual to figure out what does and does not help, hurt, and work best for their IBS. It’s not hopeless, but help is needed. Remember, you can call IFFGD toll-free (in the U.S.) at 1-888-964-2001 (outside the U.S. 1-414-964-1799) and talk to any of the caring people here who will try to offer useful guidance.]
I've been following this site for several months and have decided to share my IBS journey. I am in my 60's and my IBS symptoms started in my early 30's. It has steadily progressed over the years and pretty much controls my life now. I've seen many doctors over the years and feel I have a very good Gastroenterologist now. But, there is just so much he can do.
All of your experiences are ones I have gone through at some time during the past 30 years. I've had all the tests and medications to treat it without very good results. I have also had several bouts of diverticulitis which sets me back in getting my life together again. Four months ago my doctor suggested trying a probiotic. I had tried other ones before but finally found one which worked really well. Then after six weeks I fell and broke my leg and the trauma set my colon off to where now seven weeks later I cannot get to feeling good again. The constant discomfort, nausea, and changes in bowel movement and some bleeding has me worried that something else is going on. The doctor says it is just bad IBS and I should take what I need to get through is.
I too am waiting for someone to come up with something new to help with this terrible condition. My husband of 48 years is very understanding but very healthy and this also affects him because of my frequent down time. It's become a regular quick stop when we get into the car to go somewhere. For some reason it triggers my bowels and we don't get very far before I have to find the nearest bathroom. I have emailed this site to my four sons so they can read that ‘mom's’ not exaggerating her symptoms and it is a tough thing to live with. My prayers to all of you that there is something on the horizon to help us cope better.
– Judy
May 18, 2008
[Editor’s Note: Much more needs to be done to move IBS research forward. IFFGD has drafted the IBS Research and Treatment Act; we are currently seeking support from members of the U.S. Congress to introduce the Act as a Bill and move it through the legislative process. Success with the Bill will mean 1) expanding the IBS research portfolio at the National Institutes of Health (NIH), 2) developing centers to conduct research and train health care providers on IBS, and 3) facilitating improved public awareness and professional understanding of IBS. We must also work to ensure adequate funding for NIH. You each can help move this process forward! It will only happen with public support. Find out how you can do something to help. Go» ]