Online Studies
Here are ways that you can help advance research – from the comfort of your home. Take part in these online, telephone, or postal studies (or find in-person study locations).
Study Aimed at Improving Treatments for Children with Soiling or Incontinence – Online or by Mail
Soiling in children is a common condition that is difficult for the child and the family. Investigators at the University of North Carolina-Chapel Hill (UNC) are conducting an online research study to find out what parents think are the causes of soiling in their children and what kind of therapies and strategies are used to help children with the soiling.
They are looking for parents of children 4-18 years old who regularly soil or poop in their underwear. You will be asked to complete the same online questionnaire twice, 2 weeks apart.
You will be paid $10 for participation.
No visits to UNC are required. You will be asked to complete all questionnaires online at a secure website. If you prefer UNC will send paper questionnaires to your house by mail.
The study is funded by Takeda Pharmaceuticals North America Inc.
For more information and to take part go to this UNC web page: https://uncfunctionalgi.net/fi/cgi-bin/fiquestionnaire.cgi
MORE STUDIES AND TRIALS - IN PERSON
Go to this IFFGD web page to . . .
- Find a listing of places where you can take part in studies involving many different digestive disorders Go »
IBS Management Online Study
Do you have IBS? Boston University School of Medicine is doing an online study about irritable bowel syndrome. The purpose of our study is to do research on the management of irritable bowel syndrome.
The entire study is completed online and involves:
- 30 minutes/day online for four consecutive days
- Completing several questionnaires before and after the study
The compensation for participating in the study is $25. At this time we can only enroll U.S. residents. To participate in the study please visit www.bmc.org/ibs.
To learn more about the study please contact us at 617-638-6579 or email at ibs.study@bmc.org.
Online Survey to Help Assess Upper and Lower GI Symptoms and Health-Related Quality of Life
The website was developed, and the data collected will be used academically, by Professor Paul Enck PhD, Director of Research, Department of Internal Medicine VI/Psychosomatic Medicine and Psychotherapy at University Hospitals in Tübingen, Germany. Dr. Enck is an international member of the Advisory Board of IFFGD.
This is the first interactive Rome II Questionnaire for irritable bowel syndrome (IBS) in English; a German version can be found on www.gesundheits-umfrage.de, and a Spanish version is in preparation. Patients answering this questionnaire will be provided a statement of how their symptoms might fit into the Rome II classification of functional bowel disorders, as well as how symptoms affect the quality of life. The website is hosted by Holburn Clinical Trial Corporation, a contract research organization. To participate, go to the questionnaire »
Understanding Episodes of Irritable Bowel Syndrome: Online Study
Have you been diagnosed with IBS (irritable bowel syndrome)? If so, you are eligible to help out with a one time online survey that may take up to 20 minutes to complete.
Douglas A. Drossman, M.D. and Stephan Weinland, Ph.D. from the University of North Carolina (UNC) Center for Functional GI & Motility Disorders in Chapel Hill have constructed an online survey in order to compile written reports of IBS episodes and gain a better understanding of the symptoms and experiences people have during an IBS episode. The survey is completely confidential and you will not be asked any identifying information.
To participate in the survey, please click on the following link: http://www.surveymonkey.com/s.aspx?sm=Ci82_2f2xszPLejV0D5_2b8fRw_3d_3d
IBS Partner Study: Postal Survey
Have you been diagnosed with Irritable Bowel Syndrome (IBS)?
Are you living with a spouse or partner?
If you answered YES to both of the above, you are eligible to take part in a simple survey being conducted by the University of North Carolina (UNC) Center for Functional GI & Motility Disorders in Chapel Hill. The study seeks to evaluate the effects of IBS on the lives of the spouses and partners of patients.
What does this survey involve?
- A questionnaire to be filled-out by the patient
- A questionnaire to be filled-out by the partner/spouse
The survey will be conducted through postal mail. Participants be compensated $10 for completing the survey.
This study is sponsored by Takeda Pharmaceuticals.
For information, please contact Amie Rodgers (919-843-8490, amierodg@med.unc.edu).
Leiden University IBS & Quality of Life: Online Survey
A research group from Leiden University in the Netherlands is conducting an online survey to identify predictors of quality of life among patients with irritable bowel syndrome. The online survey takes about 20 minutes to complete, and participants will be entered for a chance to win €100 ($130). The results of the survey will be used to create future interventions to improve quality of life among IBS patients.
The study is available in both English and Dutch:
English version: Go »
Dutch version: Go »
IBS Energy Metabolism Study
The University of North Carolina (UNC) Center for Functional GI & Motility Disorders is seeking volunteers with irritable bowel syndrome (IBS) to participate in a research study. No travel to UNC is involved.
The purpose of this research study is to learn about the role mitochondria can play in IBS. Mitochondria are the tiny parts inside the cells of our body that make the energy that we need. Mitochondrial disorders involve the ability of the body to produce sufficient energy.
The study will involve 1 phone interview, completion of 1 questionnaire and providing a saliva sample for analysis. There are no visits to UNC required.
You must be 18 years or older, diagnosed with Irritable Bowel Syndrome by a physician, and Caucasian. Participants completing the study will receive $25.
Contact: Miranda van Tilburg, PhD
Bioinformatics Building, CB# 7080
Chapel Hill, NC 27599-7080
Phone: 919-843 0688
Email: Tilburg@unc.edu
To determine if you are eligible, log on to: https://uncfunctionalgi.net/mtdna/mtdna.php
[This study is supported by a grant from IFFGD.]
IFFGD's IBS Unmet Needs Survey
IFFGD wants to understand how IBS affects your daily routine, the ways your life is affected by IBS, and where the needs are for treatments – but we need your help. If you have IBS, participate in this confidential online survey, and help advance our mission to improve lives.
Log on to IFFGD’s survey web page: Go »

